He aha te Stiripentol: Ngā Whakamahinga, te Inenga, ngā Pānga taha me ētahi atu mea

He rongoā motuhake a Stiripentol hei ārai i te hopu, e āwhina ana ki te whakahaere i ngā momo mate pāpā, ina koa te momo onge e kīia nei ko te mate a Dravet. He rerekē te mahi a tēnei rongoā i ētahi atu rongoā hopu, he taputapu whai hua tēnei ina kāore anō ētahi atu rongoā i whai hua.

Mēnā kua tohua a Stiripentol ki a koe, ki tō hoa aroha rānei, kei te raru pea koe i tētahi āhuatanga hopu uaua e hiahia ana ki te whakahaere hauora tupato. Mā te māramatanga ki te mahi a tēnei rongoā me te aha e tūmanakohia ana ka āwhina koe ki te whai i te māia ake i te haerenga maimoatanga kei mua.

He aha te Stiripentol?

He rongoā anti-epileptic a Stiripentol e noho ana ki tētahi akomanga ahurei o ngā rongoā hopu. Kāore i rite ki ētahi atu rongoā hopu, he huarahi motuhake tō Stiripentol ki te mahi i tō roro hei āwhina i te ārai i te tīmatanga o te hopu.

I hangaia tēnei rongoā mō te hunga e mate ana i te mate a Dravet, he momo onge engari he nui te mate o te mate pāpā e tīmata ana i te tamarikitanga. Tata tonu ka whakamahia a Stiripentol me ētahi atu rongoā hopu pēnei i te clobazam me te waikawa valproic, kaua ki te whakamahi anake.

Ka tae mai te rongoā hei pūtau ka tangohia e koe mā te waha, ā, kua ata rangahaua, kua whakaaetia mō tōna tūranga ki te whakahaere i tēnei āhuatanga uaua.

He aha te Stiripentol e whakamahia ana?

Ko te mea nui e whakamahia ana a Stiripentol hei rongoā i te hopu i te hunga e mate ana i te mate a Dravet, he momo ira onge o te mate pāpā. Ko te tikanga ka tīmata tēnei āhuatanga i te tau tuatahi o te oranga, ā, he uaua pea te whakahaere me ngā rongoā hopu paerewa anake.

Ka tohua e tō tākuta a Stiripentol hei wāhanga o te mahere maimoatanga whakakotahi. He pai rawa atu te mahi ina whakamahia tahi me te clobazam me te waikawa valproic, e hanga ana i tētahi huarahi rongoā e toru ka taea te whakaiti i te auau o te hopu i te hunga e mate ana i te mate a Dravet.

Kua whakaaetia te rongoa nei mō ngā tūroro e 2 tau, neke atu rānei te pakeke. Ahakoa ko te mate a Dravet te mea nui e rongoatia ana e te stiripentol, tērā pea ka whakaaro tō tākuta ki te whakamahi mō ētahi atu mate hopu onge kāore i pai te urupare ki ētahi atu rongoā.

Me pēhea te mahi a Stiripentol?

E mahi ana a Stiripentol mā te pānga ki ētahi matū me ngā tukanga i roto i te roro e whakahaere ana i te mahi hopu. E whakanui ana i ngā pānga o tētahi matū i roto i te roro e kīia ana ko GABA, e āwhina ana ki te whakamārie i ngā pūtau io kaha rawa e pōkaia ai ngā hopu.

Ko te mea motuhake o te stiripentol ko te pānga ki te āhua o te tukatuka o tō tinana i ētahi atu rongoā hopu, ina koa ko te clobazam. Ki te tango koe i te stiripentol me te clobazam, ka piki ake ngā taumata o te clobazam i roto i tō pūnaha, ka kaha ake te whai hua o te huinga i te rongoā kotahi.

E kiia ana he rongoā hopu kaha-āhua e hangaia ana mō ngā take uaua. Ehara i te kōwhiringa tuatahi mō te nuinga o ngā momo mate pāpā, engari ka whai hua rawa mō ngā āhuatanga motuhake i hangaia ai hei rongoa.

Me pēhea taku tango i te Stiripentol?

Tangohia te stiripentol i runga i ngā tohutohu a tō tākuta, te tikanga me te kai hei āwhina i tō tinana ki te ngongo pai ake. Ka tae mai te rongoā nei i roto i ngā kāpene e horomia ana e koe katoa me te wai, ētahi atu wai rānei.

Te tikanga ka tīmata tō tākuta i tētahi horopeta iti, ka piki haere i roto i ngā wiki. Mā tēnei huarahi tupato e whakaiti ana i ngā pānga taha i te wā e kitea ana te horopeta tika mō tō āhuatanga motuhake. Tokorua, toru rānei ngā wā e tango ana te nuinga o te tangata i te stiripentol i ia rā.

Ko te tango i te stiripentol me ngā kai, ina koa ko ngā kai kei roto ētahi ngako, ka āwhina i tō tinana ki te ngongo pai ake i te rongoā. Whakamātau ki te tango i ō horopeta i ngā wā kotahi i ia rā kia mau tonu ngā taumata i roto i tō pūnaha.

Mēnā he raruraru tō horo i ngā kāpene, kōrero ki tō tākuta mō ngā kōwhiringa. Kaua rawa e kuru, e whakatuwhera rānei i ngā kāpene ki te kore e tohutohutia e tō kaiwhakarato hauora, nā te mea ka pā tēnei ki te mahi o te rongoā.

Kia Pēhea te Roa e Tango Ana ahau i te Stiripentol?

Ko te Stiripentol te tikanga he rongoā wā-roa mō ngā tāngata e mate ana i te mate a Dravet, he maha ngā wā ka haere tonu mō ngā tau, ā, mō ake tonu atu rānei. Ko te whāinga kia mau tonu te whakahaere i ngā pākia i te wā e whakaiti ana i ngā pānga taha i te roanga o te wā.

Ka arotakehia e tō tākuta tō rongoā i ngā wā katoa kia mōhio kei te pai tonu te mahi a te stiripentol mōu. Ka aroturukihia e rātou te auau o ō pākia, ka tirohia mō ngā pānga taha, ā, ka whakatikatikahia pea tō horopeta i runga i te āhua o tō urupare.

Kaua rawa e mutu te tango i te stiripentol ohorere, nā te mea ka pā tēnei i ngā pākia nui. Mēnā e hiahiatia ana ngā huringa ki tō rongoā, ka waihanga tō tākuta i tētahi mahere tupato hei whakaiti i te horopeta i te wā e aroturuki ana i tō āhua.

Ka hiahia pea ētahi tāngata ki te whakatikatika i te horopeta i te wā e tipu ana rātou, i te wā rānei e huri ana te tauira o ā rātou pākia. Mā te whai i ngā pōti whai-whai-ā-roto ka mōhio kei te whiwhi koe i te painga nui mai i tō rongoā.

He Aha ngā Pānga Taha o te Stiripentol?

Pērā i ngā rongoā katoa, ka taea e te stiripentol te pānga taha, ahakoa kāore te katoa e pā ana ki a rātou. Mā te māramatanga ki ngā mea hei mātakitaki ka āwhina koe ki te whakahaere i tō rongoā i te huarahi whai hua.

Ko ngā pānga taha e kitea ana e koe ko te moe, te ngaro o te hiahia, me ngā raruraru whakawhiti. Ko ēnei pānga he nui ake te kitea i te wā e tīmata ana koe i te rongoā, i te wā rānei e whakanuia ana tō horopeta.

Anei ngā pānga taha e kitea ana e te nuinga o te tāngata:

• Te moe, te ngenge rānei
• Te ngaro o te hiahia me te ngaro o te taumaha
• Ngā raruraru whakawhiti, te kore rānei e tū tika
• Te wiri, te rūrū rānei
• Te whakapairuaki, te ruaki rānei
• Ngā raruraru moe
• Ngā huringa whanonga, te riri rānei

Ko te nuinga o enei paanga taha ka taea te whakahaere, ka pai ake pea i te wa e urutau ana to tinana ki te rongoa. Ka taea e to taakuta te awhina i a koe ki te kimi huarahi hei whakaiti i enei paanga i te wa e mau tonu ana te whakahaere i nga hauhautanga.

Ko nga paanga taha kino ake he mea onge, engari me waea tonu atu ki te taote. Kei roto pea i enei ko nga tauhohenga mate pāwera nui, nga huringa nui o te ahua, te whanonga ranei, nga tohu ranei o nga raruraru ate penei i te kowhai o te kiri, o nga kanohi ranei.

Ka pa pea etahi tangata i nga paanga taha onge engari kino penei i nga tauhohenga kiri kino, nga huringa nui o nga tatauranga toto, te rereke ranei o te toto, te maru ranei. Mena ka kite koe i nga tohu e pa ana ki a koe, whakapā atu ki to kaiwhakarato hauora i tenei wa tonu.

Ko wai e kore e tango i te Stiripentol?

Kaore a Stiripentol e tika ana mo te katoa, a ko etahi ahuatanga hauora, ahuatanga ranei ka kore e pai ki a koe te tango i tenei rongoa. Ka ata titiro to taakuta ki to hitori hauora i mua i te whakahau.

Kaua koe e tango i te stiripentol mena he mate pāwera koe ki te rongoa, ki etahi o ona waahanga ranei. Ko nga tangata e mate ate nui ana ka hiahia pea ki te karo i tenei rongoa, ki te whakamahi ranei me te tino tupato.

Ko etahi ahuatanga e hiahia ana kia whakaarohia i mua i te tiimata i te stiripentol:

• Te hapu, te whakamahere ranei kia hapu
• Te whakangote u
• Te mate ate, nga raruraru ranei
• Te mate whatukuhu
• Te hitori o nga tauhohenga mate pāwera nui ki nga rongoa
• Te tango i etahi atu rongoa ka pa mai

Ka whakatauritehia e to taakuta nga painga ki nga tupono mo to ahuatanga motuhake. Ahakoa kei a koe etahi o enei ahuatanga, ka tika tonu pea te stiripentol me te tino aro turuki me te whakatikatika i te horopeta.

Nga Ingoa Waitohu Stiripentol

Kei te waatea a Stiripentol i raro i te ingoa waitohu Diacomit i roto i te maha o nga whenua, tae atu ki te United States me Europe. Koinei te ahua o te rongoa e tino tohua ana.

He rerekē pea ngā ingoa waitohu, ngā momo rānei o ngā rongoā i ētahi whenua. Me mōhio tonu kei te whiwhi koe i te tauira rongoā kotahi i ia wā e whakakiia ana e koe tō rēhitatanga, nā te mea he rerekē pea ngā āhuatanga whakauru o ngā kaihanga rerekē.

Mēnā kei te haere koe ki tāwāhi, kei te nuku rānei ki tētahi whenua kē, mahi tahi me tō tākuta kia mōhio kei te haere tonu te tuku o tō rongoā, nā te mea he rerekē pea te wātea me ngā ingoa waitohu i te wāhi.

Ngā Kōwhiringa kē mō te Stiripentol

Ahakoa i hangaia te stiripentol mō te mate Dravet, he kōwhiringa maimoatanga anō pea ka whakaarohia e tō tākuta mēnā kāore te stiripentol e tika ana mōu, kāore rānei e whai hua ana ki te whakahaere i ngā hauhautanga.

Ngā rongoā kē mō te mate Dravet pea ko te cannabidiol (CBD), te fenfluramine, rānei ngā huinga rerekē o ngā rongoā aukati hauhautanga tuku iho. He rerekē ngā tikanga mahi me ngā pānga taha o ia rongoā.

Ka whakaaro pea tō tākuta ki ngā huarahi kāore i te rongoā pēnei i ngā rongoā kai pēnei i te kai ketogenic, i ētahi wā, ngā pūrere motuhake pēnei i ngā whakaohooho io uaua vagus. Ko te kōwhiringa pai rawa atu e whakawhirinaki ana ki tō tauira hauhautanga, te pakeke, me te hauora whānui.

Kaua rawa e huri i ngā rongoā me te kore e mahi tahi ana me tō tohunga mate roro, nā te mea ko ngā huringa i roto i te rongoā hauhautanga e hiahia ana ki te whakamahere me te aroturuki kia kore ai e puta ngā hauhautanga.

He Pai Anei te Stiripentol i te Clobazam?

Kāore i te whakatairitea te stiripentol me te clobazam hei kōwhiringa whakataetae nā te mea e whakamahia ana rāua tahi, kaua ki te kōwhiri i ngā mea rerekē. Ko tēnei huarahi whakakotahi he pai ake i te rongoā kotahi mō te rongoā i te mate Dravet.

Inā whakamahia tahi, ka whakanui te stiripentol i ngā pānga o te clobazam mā te whakanui i ōna taumata i tō tinana. He pai tēnei pānga, he mea whāinga, e kaha ake ai te whakakotahitanga i te rongoā kotahi.

Mō te mate Dravet, ko te huinga rongoā e toru o te stiripentol, clobazam, me te waikawa valproic kua whakaatu i ngā hua pai ake i te whakamahi i ēnei rongoā anake. Ka whiriwhiria e tō tākuta tēnei huinga i runga i ngā taunakitanga pūtaiao e whakaatu ana i te pai ake o te whakahaere i ngā pūhihi.

Ko te whiriwhiri i waenga i ngā huarahi rerekē o te maimoatanga e whakawhirinaki ana ki tō momo mate roro, tō tau, ētahi atu āhuatanga hauora, me te pai o tō whakamanawanui ki ngā rongoā rerekē.

Ngā Pātai Auau mō Stiripentol

Q1. He Haumaru te Stiripentol mō ngā Tamariki?

Āe, kua whakaaetia te stiripentol mō ngā tamariki e mate ana i te mate Dravet e 2 tau te pakeke, neke atu rānei. Koinei tētahi o ngā rongoā torutoru i akona, i whakaaetia mō tēnei āhuatanga tamariki.

Me mātakitaki tonu ngā tamariki e tango ana i te stiripentol e tō rōpū hauora, tae atu ki ngā whakamātautau toto i ia wā ki te tirotiro i te mahi ate me te hauora whānui. Kua whakamahia te rongoā i roto i ngā tamariki mō ngā tau maha i te wā e mātakitakihia ana.

Q2. Me Pēhea Taku Mahi Mēnā Ka Whakamahi Ahau i te Nui Rawa o te Stiripentol?

Mēnā ka tango koe, tō tamaiti rānei i te nui rawa o te stiripentol, whakapā atu ki tō tākuta, ki ngā ratonga ohorere rānei tonu. Ko ngā tohu o te nui rawa o te rongoā ka uru pea ki te moe nui, te rangirua, te uaua ki te manawa, te ngaro rānei o te māramatanga.

Kaua e tatari kia kite mena ka puta ngā tohu - rapua te awhina hauora tonu. Mauria mai te pounamu rongoā ki a koe kia mōhio ai ngā kaiwhakarato hauora ki te aha me te nui i tangohia.

Q3. Me Pēhea Taku Mahi Mēnā Ka Ngaro Ahau i tētahi Inenga o te Stiripentol?

Mēnā ka ngaro koe i tētahi inenga, tangohia i te wā e mahara ana koe, ki te kore e tata ana te wā mō tō inenga e whai ake nei. I taua wā, pekehia te inenga i ngaro, ka haere tonu ki tō hōtaka inenga auau.

Kaua rawa e rua ngā inenga hei utu mō tētahi i ngaro, nā te mea ka piki ake tō tūponotanga ki ngā pānga taha. Mēnā ka wareware koe i ngā inenga, whakaarohia te whakamahi i tētahi kaiwhakarite pire, i te whakatakoto rānei i ngā whakamaharatanga waea.

Q4. Āhea ka taea e au te whakamutu i te tango Stiripentol?

Kaua rawa e mutu te tango stiripentol me te kore e korero tuatahi ki tō tākuta. Ko te whakamutu ohorere i ngā rongoā hopu ka pā te hopu mōrearea, tae atu ki te tūnga epilepticus, he mea e mōrearea ana te ora.

Mēnā me whakamutu e koe te stiripentol, ka hangaia e tō tākuta tētahi hōtaka whakaiti āta, ka whakaiti i tō horopeta i roto i ngā wiki, i ngā marama rānei, i te wā e mātakitaki pū ana i tō mahi hopu.

Q5. Ka taea e au te inu waipiro i te wā e tango ana au i te Stiripentol?

He pai ake te karo i te waipiro i te wā e tango ana i te stiripentol, nā te mea ka taea e te waipiro te whakanui i te hiamoe me ētahi atu pānga taha. Ka taea hoki e te waipiro te whakararu i te whakahaere hopu, ā, ka pā tahi pea ki ō rongoā kē atu.

Mēnā he pakeke koe, ā, he pātai āu mō te whakamahi waipiro, kōrerohia tēnei ki tō tākuta. Ka taea e rātou te whakarato i ngā tohutohu whaiaro i runga i tō āhuatanga motuhake me te mahere maimoatanga whānui.