Eseme ry'uburwayi bwa Ebstein? Ibimenyetso, Intandaro, n'Ubuvuzi

Eseme ry'uburwayi bwa Ebstein ni uburwayi bwo mu mutima buke cyane wavukana, bugira ingaruka ku mikorere y'umuvure wawe wa tricuspid. Uyu muvure uba hagati y'ibice bibiri by'iburyo by'umutima wawe, kandi iyo ufite eseme ry'uburwayi bwa Ebstein, ntabwo uba warubatswe neza mu gihe cyo gutwita.

Tekereza ku mutima wawe nk'ufite ibyumba bine bifite imiryango hagati yabyo. Umuvure wa tricuspid ni umwe muri iyo miryango, kandi mu burwayi bwa Ebstein, uyu muryango uba uri hasi aho ukwiye kuba kandi ntufunga neza. Ibi bivuze ko amaraso amwe asubira inyuma aho kujya imbere mu mutima wawe nk'uko bikwiye.

Ni ibihe bimenyetso by'uburwayi bwa Ebstein?

Ibimenyetso ushobora kugira biterwa n'uburemere bw'uburwayi bwawe. Bamwe mu bantu bafite eseme ry'uburwayi bwa Ebstein buke cyane bumva bameze neza kandi ntibabizi kugeza bakuze.

Dore ibimenyetso bisanzwe abantu babona:

• Guhumeka nabi, cyane cyane mu gihe cy'imikino
• Kumva unaniwe cyangwa ufite intege nke kurusha abandi
• Ibara ry'ubururu ku minwa yawe, iminwa, cyangwa uruhu (bitwa cyanose)
• Gukubita cyane kw'umutima cyangwa kumva umutima wawe uri kugenda wihuta
• Kubyimbagira mu maguru, mu birenge, cyangwa mu nda
• Kubabara mu gituza cyangwa kudatuza

Mu bihe bikomeye, abana bashya bashobora kugira ibimenyetso bikomeye nko kugira ikibazo cyo guhumeka cyangwa kurya. Inkuru nziza ni uko abantu benshi bafite uburwayi buke babayeho ubuzima busanzwe, bukora neza bafite ubuvuzi bukwiye.

Ni iyihe mityari y'uburwayi bwa Ebstein?

Abaganga basobanura uburemere bw'uburwayi bwa Ebstein hashingiwe ku buryo uburemere bw'ikibazo cy'umuvure ari bwo bangahe. Ubwoko buke cyane bushobora kutazana ibimenyetso na gato, mu gihe ubwoko bukomeye cyane bushobora kuba bwangiza ubuzima.

Uko ubwoko bwo gukora bufasha muganga wawe gusobanukirwa icyo ategereza no gutegura ubuvuzi bwawe. Mu bihe byoroheje, umuvure wa tricuspid ukora neza nubwo uba uri ahantu hatandukanye. Mu bihe byoroheje, ushobora kubona ibimenyetso mu gihe cyo gukora imyitozo cyangwa umunaniro.

Eseme ry'uburwayi bwa Ebstein rikomeye bivuze ko umuvure utakora neza na gato, bigatera ibibazo bikomeye by'amaraso. Ubu bwoko busaba ubuvuzi mu buto cyangwa ubwana kugira ngo umutima wawe ukore neza.

Eseme ry'uburwayi bwa Ebstein rituruka he?

Eseme ry'uburwayi bwa Ebstein ribaho iyo umutima wawe utaratera neza mu byumweru bike bya mbere byo gutwita. Impamvu nyamukuru y'ibi ntabwo ihora isobanuka, ariko abaganga bamenye ibintu byinshi bishobora kugira uruhare.

Ibyinshi bibaho ku bushake nta mpamvu isobanutse. Ariko kandi, bimwe mu bintu bishobora kongera ibyago birimo:

• Gutakaza imiti imwe mu gihe cyo gutwita, cyane cyane lithium yo kuvura indwara ya bipolar
• Kugira amateka y'umuryango w'uburwayi bwo mu mutima
• Ibintu by'umutungo w'umuntu bigira ingaruka ku iterambere ry'umutima
• Indwara z'ibyorezo mu gihe cyo gutwita hakiri kare
• Diabete idakozwe neza mu mubyeyi

Ni ngombwa kumenya ko niba utwite kandi ufite ibyago bimwe na bimwe, ntibivuze ko umwana wawe azagira eseme ry'uburwayi bwa Ebstein. Abana benshi bavutse ku babyeyi bafite ibyo bintu bafite imitima ikozwe neza.

Ni ryari ukwiye kubona muganga kubera ubwo burwayi bwa Ebstein?

Ukwiye kubona muganga niba ubona ibimenyetso bishobora kugaragaza ikibazo cy'umutima. Ntugatege amatwi niba ufite ikibazo cyo guhumeka nabi, kubabara mu gituza, cyangwa kunanirwa bitunguranye bidakira n'ikiruhuko.

Shaka ubuvuzi bw'ihutirwa niba ufite ibimenyetso bikomeye nko kubabara cyane mu gituza, kugira ikibazo cyo guhumeka cyane, cyangwa kugwa. Ibi bishobora kugaragaza ingaruka zikomeye zisaba ubuvuzi bw'ihutirwa.

Kubabyeyi, banza kureba ibimenyetso ku mwana wawe nko kuba uruhu rufite ibara ry'ubururu, kugira ikibazo cyo kurya, cyangwa guhumeka. Abana bafite ubwo burwayi bwa Ebstein bukomeye bakunze kugaragaza ibimenyetso mu minsi cyangwa mu byumweru byabo bya mbere byo kubaho.

Nubwo wumva umeze neza, gusuzuma buri gihe ni ngombwa niba waramaze kuvurwa ubwo burwayi bwa Ebstein. Uburwayi bwawe bw'umutima bushobora guhinduka uko igihe gihita, kandi kumenya hakiri kare impinduka zose bifasha guhamya ko uboneye ubuvuzi bwiza bushoboka.

Ni ibihe bintu byongera ibyago by'uburwayi bwa Ebstein?

Kubera ko ubwo burwayi bwa Ebstein ari uburwayi wavukana, ibintu byongera ibyago bigira ingaruka ahanini ku bagore batwite n'abana babo bari gutera imbere. Gusobanukirwa ibyo bintu bishobora gufasha mu gukumira no kumenya hakiri kare.

Ibintu by'ingenzi byongera ibyago birimo:

• Umuntu utwite akoresha lithium mu gihe cyo gutwita (yongera ibyago cyane)
• Amateka y'umuryango w'uburwayi bwo mu mutima
• Diabete idakozwe neza mu mubyeyi
• Indwara zimwe na zimwe z'umutungo w'umuntu
• Imyaka myinshi y'umubyeyi (irenga 35)
• Kunywesha inzoga cyangwa ibiyobyabwenge mu gihe cyo gutwita

Indwara zimwe na zimwe z'umutungo w'umuntu zidasanzwe zishobora kongera ibyago, ariko ibyo ntibibaho kenshi. Niba ufite amateka y'umuryango w'uburwayi bw'umutima cyangwa ufata imiti ishobora kugira ingaruka ku iterambere ry'umutima w'umwana wawe, ganira na muganga wawe ku bijyanye no gukurikirana.

Ni iyihe ngaruka zishoboka z'uburwayi bwa Ebstein?

Nubwo abantu benshi bafite ubwo burwayi bwa Ebstein babayeho ubuzima busanzwe, zimwe mu ngaruka zishobora kuza uko igihe gihita. Ibyago n'uburemere bw'ingaruka biterwa n'uburemere bw'uburwayi bwawe.

Ingaruka zisanzwe ushobora kugiramo harimo:

• Ibibazo by'umuvure w'umutima (arrhythmias) bishobora gutuma umutima wawe ukubita cyane, buhoro cyangwa nabi
• Gucika intege kw'umutima, aho umutima wawe uhangana no gutuma amaraso agenda neza
• Amaraso ashobora gukomera mu mutima wawe akajya mu bindi bice by'umubiri wawe
• Stroke, cyane cyane niba ufite ibyuho hagati y'ibice by'umutima wawe
• Urupfu rutunguranye rw'umutima, nubwo ari bike

Ingaruka nke ariko zikomeye harimo cyanose ikomeye (uruhu rufite ibara ry'ubururu) na paradoxical embolism, aho amaraso ashobora guca mu bihaha akajya mu bwonko cyangwa mu bindi bice by'umubiri.

Inkuru nziza ni uko, ukurikije neza no kuvurwa, ingaruka nyinshi zishobora gukumirwa cyangwa guhangana nazo neza. Gusuzuma buri gihe bifasha muganga wawe kumenya impinduka hakiri kare.

Eseme ry'uburwayi bwa Ebstein rishobora gukumirwa gute?

Kubera ko eseme ry'uburwayi bwa Ebstein ari uburwayi bwo kuvuka, nta buryo bwo kubikumira buhamye. Ariko kandi, niba utwite cyangwa uteganya gutwita, ushobora gufata ingamba zo kugabanya ibyago byawe.

Ingamba z'ingenzi zo gukumira harimo kwirinda imiti ishobora kugira ingaruka ku iterambere ry'umutima, cyane cyane lithium, keretse ari ngombwa cyane. Niba ukeneye lithium yo kuvura indwara ya bipolar, korana na baganga bawe kugira ngo mupime ibyago n'inyungu.

Imikorere myiza y'ubuzima mu gihe cyo gutwita ifasha kugabanya ibyago. Ibi birimo gufata ibinini bya folic acid, kugenzura diabete niba uyifite, kwirinda inzoga n'ibiyobyabwenge, no kugira ubuvuzi bwa buri gihe mu gihe cyo gutwita.

Niba ufite amateka y'umuryango w'uburwayi bwo mu mutima, tekereza ku bijyanye n'ubuvuzi bw'umutungo w'umuntu mbere yo gutwita. Ibi bishobora kugufasha gusobanukirwa ibyago byawe byihariye no gufata ibyemezo byiza ku bijyanye no kwita ku gutwita kwawe.

Eseme ry'uburwayi bwa Ebstein rimenyekana gute?

Eseme ry'uburwayi bwa Ebstein rikunze kumenyekana binyuze mu bipimo by'umutima bigaragaza uko umutima wawe usa n'uko ukora. Rimwe na rimwe riboneka mu bipimo bisanzwe byo gutwita, mu gihe ibindi bihe riboneka mu gihe cyo gusuzuma ibimenyetso nyuma y'imyaka.

Ibizamini by'ingenzi muganga wawe ashobora gukoresha harimo echocardiogram, ikoresha amajwi yo gufata amashusho y'umutima wawe. Iki kizamini gishobora kugaragaza aho umuvure wawe wa tricuspid uherereye n'uko ukora neza.

Ibindi bizamini bifasha harimo electrocardiogram (ECG) yo kugenzura umuvure w'umutima wawe, ama rayons X yo kureba ingano y'umutima wawe, rimwe na rimwe cardiac MRI kugira ngo ubone amashusho arambuye. Mu bihe bimwe na bimwe, muganga wawe ashobora kugusaba cardiac catheterization kugira ngo abone ibipimo byiza by'umuvure mu mutima wawe.

Niba utwite kandi hari impungenge ku mutima w'umwana wawe, fetal echocardiography yihariye ishobora kenshi kumenya eseme ry'uburwayi bwa Ebstein mbere y'uko umwana avuka. Ibi bituma itsinda ryawe ry'abaganga ritegura ubuvuzi ubwo aribwo bwose umwana wawe ashobora kuba akeneye nyuma yo kuvuka.

Ni ikihe kivuriro cy'uburwayi bwa Ebstein?

Ubuvuzi bw'uburwayi bwa Ebstein biterwa n'uburemere bw'uburwayi bwawe n'ibimenyetso ufite. Abantu benshi bafite ubwoko buke ntibakenera ubuvuzi uretse gukurikiranwa buri gihe.

Niba ufite ibimenyetso, muganga wawe ashobora gutangira imiti ifasha umutima wawe gukora neza. Ibi bishobora kuba imiti yo kugenzura ibibazo by'umuvure w'umutima, kugabanya amazi, cyangwa gufasha umutima wawe gukora neza.

Ku bihe bikomeye, kubaga bishobora kuba ngombwa. Uburyo bwo kubaga harimo gusana umuvure wawe wa tricuspid, kuwusimbuza umuvure w'imiti, cyangwa mu bihe bike, uburyo bugoye bwo guhindura uko amaraso agenda mu mutima wawe.

Igihe cyo kubaga biterwa n'ibimenyetso byawe n'uko umutima wawe ukora neza. Bamwe mu bantu bakenera kubagwa mu buto, abandi bashobora gutegereza kugeza bakuze cyangwa ntibakenera kubagwa na gato.

Umuganga wawe wita ku mutima azakorana nawe kugira ngo umenye gahunda y'ubuvuzi ikwiye hashingiwe ku mimerere yawe. Intego ihora ari ugufasha kumva umeze neza no gukumira ingaruka mugihe ukomeza ubuzima bwiza bushoboka.

Uko wakwitwara mu rugo ufite ubwo burwayi bwa Ebstein

Kwitwara mu rugo ufite ubwo burwayi bwa Ebstein bisobanura kwita ku buzima bwawe bwose no gukurikiza amabwiriza y'umuganga wawe. Inkuru nziza ni uko ibikorwa byinshi bya buri munsi bishobora kugufasha kumva umeze neza kandi ukomeye.

Gukora imyitozo myinshi mu rwego rw'ubushobozi bwawe ni ingenzi ku buzima bw'umutima. Muganga wawe ashobora kugufasha kumenya ubwoko n'ubwinshi bw'imyitozo ikubereye. Abantu benshi bafite ubwo burwayi bwa Ebstein bashobora gukora imyitozo ngororamubiri isanzwe.

Kurya indyo nzima y'umutima ishobora gutera imbere imibereho yawe myiza. Ibi bivuze imbuto nyinshi, imboga, ibinyampeke byuzuye, na poroteyine nke mugihe ugabanya umunyu, amavuta yuzuye, n'ibiribwa byakozwe.

Witondere uko wumva buri munsi. Kanda ku mpinduka zose mu bimenyetso byawe, urwego rw'ingufu, cyangwa ubushobozi bwawe bwo gukora ibikorwa byawe bisanzwe. Aya makuru afasha muganga wawe guhindura ubuvuzi bwawe uko bikenewe.

Ntucikwe no gukumira indwara. Abantu bafite uburwayi bw'umutima bashobora kuba bakeneye antibiotique mbere y'ibikorwa bimwe na bimwe by'amenyo cyangwa ubuvuzi kugira ngo bakumire indwara mu mutima.

Uko wakwitegura gusura muganga wawe

Kwitwara neza mbere yo gusura muganga wita ku mutima bishobora kugufasha kubona byinshi mu ruzinduko rwawe. Tangira wandike ibimenyetso byose wabonye, harimo igihe bibaho n'icyo kibikiza cyangwa kibikomeza.

Zana urutonde rw'imiti yawe yose, harimo imiti yo mu maduka n'ibindi bintu. Nanone, kora urutonde rw'ibizamini byabanje cyangwa inyandiko z'abandi baganga wabonye ku bijyanye n'uburwayi bwawe bw'umutima.

Andika ibibazo ushaka kubabaza muganga wawe. Ibi bishobora kuba ibibazo ku bijyanye n'ibikorwa byawe, igihe ukeneye ibizamini byo gukurikirana, cyangwa ibimenyetso bikwiye kukubwira guhamagara ibiro.

Tekereza kuzana umuntu wo mu muryango cyangwa inshuti kugira ngo aguhe ubufasha kwibuka amakuru y'ingenzi yavuye mu ruzinduko rwawe. Kugira undi muntu uri aho bishobora kandi gutanga inkunga yo mu mutima no kugufasha gutekereza ku bibazo ushobora kwibagirwa.

Tegura kuganira ku mateka y'umuryango w'uburwayi bw'umutima n'impinduka zose mu buzima bwawe kuva ku ruzinduko rwawe rushize. Aya makuru afasha muganga wawe gutanga ubuvuzi bwiza bushoboka.

Icyingenzi cyo kuzirikana ku bijyanye n'uburwayi bwa Ebstein

Eseme ry'uburwayi bwa Ebstein ni uburwayi bw'umutima bushobora guhangana nabwo bugira ingaruka kuri buri wese mu buryo butandukanye. Nubwo ari ikintu wavukana, abantu benshi babaho ubuzima buzuye, bukora neza bafite ubuvuzi bukwiye no gukurikiranwa.

Ikintu cy'ingenzi ni ugukorana n'itsinda ryawe ry'abaganga kugira ngo musobanukirwe uko mimerere yawe imeze. Muganga wawe ashobora kugufasha kumenya ibikorwa bikubereye, ibimenyetso byo kwitondera, n'igihe ubuvuzi bushobora gufasha.

Zirikana ko kugira ubwo burwayi bwa Ebstein ntibigena ubuzima bwawe. Ufite ubuvuzi bukwiye n'ubwitonzi ku buzima bwawe, ushobora gukurikirana intego zawe no kwishimira ibikorwa byawe by'ingenzi.

Komeza guhuza n'itsinda ryawe ry'abaganga, fata imiti yawe nk'uko yagutegetswe, kandi ntutinye kuvugana nabo niba ufite ibibazo cyangwa impungenge. Uburyo bwawe bwo kwita ku buzima bwawe bugira uruhare nyakuri mu byavuye mu buzima bwawe.

Ibibazo byakunze kubaho ku bijyanye n'uburwayi bwa Ebstein

Abantu bafite ubwo burwayi bwa Ebstein bashobora gukora imyitozo ngororamubiri?

Abantu benshi bafite ubwo burwayi bwa Ebstein bashobora gukora imyitozo ngororamubiri, ariko ubwoko n'uburemere biterwa n'uburemere bw'uburwayi bwawe. Umuganga wawe wita ku mutima ashobora kugufasha kumenya icyo gikubereye. Abantu benshi bashobora gukora ibikorwa bisanzwe nko kugenda, koga, cyangwa kugendera kuri velo, abandi bashobora kuba bakeneye kwirinda imikino ikomeye cyane.

Abagore bafite ubwo burwayi bwa Ebstein bashobora kubyara?

Yego, abagore benshi bafite ubwo burwayi bwa Ebstein bashobora gutwita neza. Ariko kandi, gutwita bisaba imbaraga nyinshi ku mutima wawe, bityo uzakenera gukurikiranwa n'umuganga wita ku mutima na muganga wita ku gutwita bikomeye. Ikintu cy'ingenzi ni gutegura mbere no gukorana n'itsinda ryawe ry'abaganga.

Eseme ry'uburwayi bwa Ebstein rizakomeza kuba ribi uko igihe gihita?

Eseme ry'uburwayi bwa Ebstein rishobora guhinduka uko igihe gihita, ariko ibi ntibihora bivuze ko ribi. Bamwe mu bantu baguma bakomeye imyaka cyangwa imyaka myinshi. Gusuzuma buri gihe bifasha muganga wawe gukurikirana impinduka zose no guhindura ubuvuzi bwawe niba bikenewe. Kumenya hakiri kare impinduka kenshi bikumira ingaruka zikomeye.

Ese ubwo burwayi bwa Ebstein burashobora kuvukana?

Nubwo ibyinshi mu bihe by'ubwo burwayi bwa Ebstein bibaho ku bushake, hashobora kubaho ibintu by'umutungo w'umuntu. Niba ufite ubwo burwayi bwa Ebstein, hari amahirwe make yuko abana bawe bashobora kugira ubwoko bumwe bw'uburwayi bwo mu mutima. Ubuvuzi bw'umutungo w'umuntu bushobora kugufasha gusobanukirwa ibyago byawe byihariye.

Abantu bafite ubwo burwayi bwa Ebstein babaho igihe kingana gute?

Ibyerekeye abantu bafite ubwo burwayi bwa Ebstein byarushijeho kuba byiza cyane kubera ubuvuzi bugezweho. Abantu benshi bafite ubwoko buke cyangwa buciriritse babaho igihe kirekire. Nubwo abafite ubwoko bukomeye bakunze kumera neza bafite ubuvuzi bukwiye. Ibyerekeye ubuzima bwawe biterwa n'uburemere bw'uburwayi bwawe n'uko uhangana n'ubuvuzi.