Indwara ya Legg-Calve-Perthes ni iki? Ibimenyetso, Impamvu, n'Ubuvuzi

Indwara ya Legg-Calve-Perthes ni indwara y’ikibero iboneka mu bana aho amaraso ajya mu gice cy’umutwe w’ikibero ahagarika gukora by’agateganyo. Ibi bituma umubiri w’igitugu (umutwe w’igitugu cy’umwana) wongera gusenyuka hanyuma ukagenda wiyubaka buhoro buhoro.

Nubwo ibi bishobora kuba bibi, abana benshi bafite iyi ndwara bashobora kugira ubuzima busanzwe, bukora neza bafite ubufasha bukwiye. Iyi ndwara isanzwe iboneka mu bana bari hagati y’imyaka 4 na 10, kandi bagira kwihangana n’ubuvuzi bukwiye, umutwe w’ikibero ukunda gukira neza.

Ibimenyetso by’indwara ya Legg-Calve-Perthes ni ibihe?

Ikimenyetso cya mbere gikunze kugaragara ni ugukama kw’ikirenge kugaragara rimwe na rimwe, akenshi nta gukomeretsa cyangwa kugwa byagaragaye. Umwana wawe ashobora gutangira gukama ikirenge nyuma yo gukora imyitozo ngororamubiri cyangwa mu mpera z’umunsi muremure, ariko akaba asa neza mu gitondo.

Dore ibimenyetso ushobora kubona uko iyi ndwara ikomeza gutera imbere:

• Gukama kw’ikirenge bigenda bigaragara uko bwije n’uko bukeye
• Kubabara mu kirenge, mu kibuno, cyangwa mu gice cy’umutwe w’ikibero bishobora kuba bito mu ntangiriro
• Kubabara mu ivi (bishobora gutera urujijo kuko ikibazo kiri mu kirenge)
• Ubugufi cyangwa kugabanuka kw’ubushobozi bwo kugenda mu kirenge
• Kubabara bikomeza iyo umwana akora imyitozo kandi bikagabanuka iyo aruhuka
• Ikirenge kimwe kigaragara kigufi kurusha ikindi
• Intege nke cyangwa kugabanuka kw’imitsi mu gice cy’umutwe w’ikibero

Ikintu kigoye kuri iyi ndwara ni uko ibimenyetso bikunze kugaragara buhoro buhoro. Umwana wawe ashobora kutakunda kugaragaza ububabare mu ntangiriro, ariyo mpamvu gukama kw’ikirenge ari bwo kimenyetso cya mbere cy’uko hari ikintu gikenewe kwitabwaho.

Ni iki giterwa n’indwara ya Legg-Calve-Perthes?

Impamvu nyamukuru y’indwara ya Legg-Calve-Perthes ntiziramenyekana, ariko tuzi ko ibaho iyo amaraso ajya mu mutwe w’igitugu ahagarika gukora. Tekereza ko ari nk’aho hari ikibazo cy’amashanyarazi muri ako gace k’igitugu.

Ibintu byinshi bishobora gutera iki kibazo cy’amaraso:

• Uburwayi bw’amaraso butuma amaraso adakora neza mu mitsi mito mito
• Gukomeretsa imitsi y’amaraso kubera imvune nto zikunze kubaho
• Ibintu by’umurage bigira ingaruka ku iterambere ry’imitsi y’amaraso
• Urukererwe rwibasira imitsi y’amaraso mu kirenge
• Ingaruka z’imisemburo mu gihe cy’ubukure

Mu bihe bitoroshye, uburwayi bumwe na bumwe bushobora kongera ibyago. Ibi birimo indwara z’amaraso nka sickle cell, ikoreshwa ry’imiti ya steroide, cyangwa izindi ndwara zigira ingaruka ku mitemberere y’amaraso. Ariko kandi, abana benshi barwara Legg-Calve-Perthes ni abana bafite ubuzima bwiza.

Icy’ingenzi ni uko ibi atari ikintu wowe cyangwa umwana wawe mwakosheje. Ntabwo biterwa no gukora imyitozo myinshi, gukomeretsa runaka, cyangwa ikintu cyose cyarindwaga mu bihe byinshi.

Ni ryari ukwiye kujya kwa muganga kubera indwara ya Legg-Calve-Perthes?

Wagomba kuvugana na muganga w’umwana wawe niba ubona gukama kw’ikirenge bidashira iminsi mike, cyane cyane niba nta gukomeretsa byagaragaye. Nubwo umwana wawe adafite ububabare, gukama kw’ikirenge bidakomoka ku kintu bigomba gusuzuma muganga.

Shaka ubufasha bwa muganga vuba niba umwana wawe afite:

• Gukama kw’ikirenge bigenda bikomeza
• Kubabara mu kirenge, mu kibuno, cyangwa mu ivi bibangamira ibikorwa bya buri munsi
• Kugorana gushyira umurego ku kirenge kimwe
• Kugorana mu bikorwa nko kuzamuka intambwe cyangwa kuva mu buriri
• Ubugufi bugaragara mu kirenge

Kumenya hakiri kare no kuvura birashobora kugira uruhare rukomeye mu mibereho y’umwana wawe mu gihe kirekire. Ntukabe umuntu uhangayitse cyane. Buri gihe ni byiza ko ibyo bimenyetso bisuzumwa vuba kurusha igihe kirekire.

Ni ibihe bintu bishobora kongera ibyago by’indwara ya Legg-Calve-Perthes?

Ibintu bimwe na bimwe bituma abana bamwe bafite ibyago byinshi byo kurwara iyi ndwara, nubwo kuba ufite ibyago ntibisobanura ko umwana wawe azayirwara. Kubyumva birashobora kugufasha kumenya icyo ugomba kwitondera.

Ibintu bikunze kongera ibyago birimo:

• Imyaka: Ikunda kugaragara hagati y’imyaka 4 na 10, ikaba igaragara cyane ku myaka 6
• Igitsina: Abahungu bafite ibyago byinshi kurusha abakobwa (inshuro 4-5)
• Uruhererekane: Ikunda kugaragara cyane mu bana b’abazungu
• Amateka y’umuryango: Kuba ufite abavandimwe barwaye iyi ndwara byongera ibyago gato
• Kuba muto ugereranyije n’imyaka
• Gutinda gukura kw’amagufa ugereranyije n’imyaka
• Kuba waravutse ufite ibiro bike

Ibintu bimwe na bimwe by’ibidukikije n’ubuzima bishobora kugira uruhare, nubwo ibi bidahagaragara cyane. Ibi birimo kwibasirwa n’umwotsi w’itabi, imiti imwe na imwe, cyangwa indwara z’amaraso.

Wibuke ko abana benshi bafite ibyago ntibarwara iyi ndwara. Ibi bintu bifasha abaganga gusa kumenya abashobora kuba bafite ibyago byinshi.

Ni ibihe bintu bishobora kuba ingaruka z’indwara ya Legg-Calve-Perthes?

Nubwo abana benshi bakira neza bafite ubuvuzi bukwiye, ni byiza kwibaza ku ngaruka zishobora kubaho mu gihe kirekire. Inkuru nziza ni uko ingaruka zikomeye zidahagaragara cyane, cyane cyane iyo hamenyekanye hakiri kare kandi hakabaho ubuvuzi bukwiye.

Ingaruka zishobora kubaho harimo:

• Uburwayi bw’ikibero mu myaka y’ubukure (nubwo ibi bishobora kuba nyuma y’imyaka myinshi)
• Impinduka z’umutwe w’ikibero ziramba
• Itandukaniro ry’uburebure bw’amaguru riramba
• Kugabanuka kw’ubushobozi bwo kugenda mu kirenge kibangamiwe
• Kuba ukeneye kubagwa kugira ngo bashimure ikibero mu myaka y’ubukure (mu bihe bikomeye)

Ibyago by’ingaruka bigendana cyane n’imyaka y’umwana iyo arwaye iyi ndwara n’ingano y’umutwe w’ikibero ubangamiwe. Abana bakiri bato iyo babimenye bafite ibyiza byinshi kuko amagufa yabo afite igihe kinini n’ubushobozi bwo gusana no gukira.

Inzobere yawe mu kuvura amagufa izakurikirana umwana wawe neza mu gihe cy’ubuvuzi kugira ngo igabanye ibyago by’izi ngaruka. Abana benshi barwaye Legg-Calve-Perthes bakura bakaba abantu bakora cyane bafite ibibazo bike cyangwa nta bibazo mu gihe kirekire.

Indwara ya Legg-Calve-Perthes imenyekanwa gute?

Kumenya indwara ya Legg-Calve-Perthes bitangira muganga yumvise impungenge zawe kandi asuzumye uburyo umwana wawe agenda n’uburyo agenda. Azareba niba hari ububabare, ubugufi, n’itandukaniro ry’uburebure bw’amaguru.

Uburyo bwo kuvura busanzwe burimo ibizamini byinshi by’amashusho:

1. X-rays y’ibirenge byombi kugira ngo ugereranye uruhande rwabayeho n’urundi ruzima
2. MRI scan kugira ngo ubone amashusho arambuye y’imiterere yoroheje n’imiterere y’amaraso
3. Isuzuma ry’amagufa (bike cyane bikenewe) kugira ngo usuzume amaraso ajya mu gufa
4. X-rays nyuma y’igihe kugira ngo ukure amaso ku iterambere ry’iyi ndwara

Muganga wawe ashobora kandi gutegeka ibizamini by’amaraso kugira ngo akureho izindi ndwara zishobora gutera ibimenyetso nk’ibi. Iyi ndwara imenyekana cyane binyuze mu mpinduka za X-ray, nubwo mu ntangiriro z’iyi ndwara, X-rays ishobora kugaragara nk’izima.

Kumenya neza iyi ndwara bishobora gutwara igihe kuko ikomeza gutera imbere mu byiciro bitandukanye. Muganga wawe azashaka kubona umwana wawe mu buvuzi bwo gukurikirana uko iyi ndwara ikomeza gutera imbere.

Ubuvuzi bw’indwara ya Legg-Calve-Perthes ni buhe?

Ubuvuzi bw’indwara ya Legg-Calve-Perthes bugamije kurinda umutwe w’ikibero mu gihe igitugu gikira kandi gikomeza kwiyubaka. Intego ni ugutuma umutwe w’ikibero usigara umeze neza kandi uhagaze neza mu kibuno muri uwo mugongo wo gukira.

Uburyo bwo kuvura butandukanye bitewe n’imyaka y’umwana wawe n’uburemere bw’iyi ndwara:

• Kureba no gukurikirana buri gihe mu gihe cy’uburwayi buke
• Guhindura ibikorwa kugira ngo ugabanye umuvuduko ku kirenge
• Ubuvuzi bw’umubiri kugira ngo ugume ufite ubushobozi bwo kugenda n’imbaraga
• Ibisate cyangwa ibindi bikoresho kugira ngo ugume ufite umwanya mwiza
• Imiti igabanya ububabare kugira ngo ugabanye ububabare
• Kubagwa mu bihe bikomeye kugira ngo wongere umwanya mwiza

Uburyo bwo gukira burambuye, bisanzwe bitwara imyaka 2-4 kugira ngo igitugu gikire neza. Muri icyo gihe, umwana wawe azakenera gusuzuma buri gihe hamwe na X-rays kugira ngo akurikirane iterambere.

Inzobere yawe mu kuvura amagufa izakora gahunda y’ubuvuzi ihuye n’ibyo umwana wawe akeneye. Uburyo bwo kuvura bushobora guhinduka uko iyi ndwara ikomeza gutera imbere mu byiciro byayo bitandukanye byo gukira.

Uko watanga ubufasha mu rugo mu gihe cy’indwara ya Legg-Calve-Perthes

Guha umwana wawe ubufasha mu rugo bigira uruhare rukomeye mu gukira kwe no mu mibereho ye muri rusange. Uburyo bwawe bugomba guhuza kurinda igitugu gikira mu gihe uha umwana wawe ubuzima busanzwe bw’abana uko bishoboka kose.

Dore ibintu by’ingenzi byo kwitaho mu rugo:

• Tegura ibikorwa bitagira ingaruka nko koga, ari byiza cyane mu kugumana ubuzima bwiza
• Fasha umwana wawe gukurikiza amabwiriza yo kugabanya ibikorwa atamuhagaritse cyane
• Komeza umenye ko afata imiti yatanzwe nk’uko byategetswe
• Shigikira imyitozo ngororamubiri mu rugo
• Komeza urebe ibimenyetso by’ububabare bwiyongereye cyangwa kugorana kugenda
• Komeza ubiganirize ku byiyumvo bye by’umubiri n’iby’amarangamutima

Ibikorwa byo kugabanya mu gihe cy’ubuvuzi busanzwe birimo kwiruka, gusimbuka, imikino ikomeye, n’ibikorwa bisaba imbaraga nyinshi ku kirenge. Ariko kandi, umwana wawe ashobora kwitabira ibikorwa byinshi hamwe na bimwe mu bintu byahinduwe.

Ubufasha bwo mu mutwe ni ingenzi nk’ubuvuzi bw’umubiri. Iyi ndwara ishobora kuba ikomeye ku bana bakora cyane bagomba kugabanya ibikorwa byabo. Reba ko umwana wawe azi ko ibi ari by’agateganyo kandi ko azasubira mu bikorwa bye akunda iyo akize.

Uko wakwitegura ku bw’isura ya muganga

Kuba witeguye neza ku bw’isura ya muganga bifasha guha umwana wawe ubufasha burambuye. Zana urutonde rw’ibibazo n’impungenge kugira ngo utibagiwe ikintu icyo ari cyo cyose gikomeye mu gihe cy’isura.

Mbere y’isura yawe, kora ibi bikurikira:

• Igihe wabonye ibimenyetso bwa mbere n’uko byahindutse
• Imiti ukoresha ubu n’ubuvuzi bwakozwe mbere
• Amateka y’umuryango w’ibibazo by’ikibero cyangwa amagufa
• Uburyo umwana wawe akora n’ibintu byose yabuze
• Ibibazo ku buryo bwo kuvura, amabwiriza yo kugabanya ibikorwa, n’imiterere y’igihe kirekire

Ntukabe umuntu uhangayitse cyane kubyerekeye ikintu icyo ari cyo cyose gikubangamiye, kuva ku bibazo bya buri munsi kugeza ku mibereho y’igihe kirekire. Gusobanukirwa neza uburwayi bw’umwana wawe bigufasha guha ubufasha bwiza mu rugo.

Ni byiza kandi gutegura umwana wawe ku bw’isura ya muganga ubisobanurira mu buryo bumwumvikana. Ibi bishobora kugabanya impungenge ze ku bw’isura ya muganga.

Icy’ingenzi ku bijyanye n’indwara ya Legg-Calve-Perthes

Indwara ya Legg-Calve-Perthes, nubwo ihangayikisha, ni indwara abana benshi bakira neza bafite ubufasha bukwiye n’ubwihangane. Ikintu cy’ingenzi ni ukumenya hakiri kare no gukurikiza gahunda y’ubuvuzi buri gihe, nubwo iterambere risa naryo ryoroheje.

Wibuke ko gukira bisaba igihe, bisanzwe bitwara imyaka 2-4, ariko abana benshi bakomeza kugira ubuzima busanzwe, bukora neza. Uko umwana wawe ari muto iyo amenye iyi ndwara, ni ko afite amahirwe menshi yo gukira neza nta ngaruka mu gihe kirekire.

Komeza ube hafi y’itsinda ryawe ry’abaganga, kurikiza amabwiriza yo kugabanya ibikorwa, kandi uhe umwana wawe inkunga yo mu mutwe muri iki gihe gikomeye. Hamwe n’ubuvuzi bukwiye n’urukundo rwawe, umwana wawe ashobora guca muri iyi ndwara agasubira mu bikorwa byose akunda.

Ibibazo bikunze kubaho ku bijyanye n’indwara ya Legg-Calve-Perthes

Ese umwana wanjye azasubira gukina imikino?

Abana benshi bashobora gusubira gukina imikino no gukora ibikorwa byose iyo igitugu cyabo gikize neza, bisanzwe bitwara imyaka 2-4. Muganga wawe azakumenyesha igihe ari byiza gusubira gukora ibikorwa bikomeye. Abantu benshi bahoze barwaye iyi ndwara bakomeza gukina imikino ikomeye kandi bagira ubuzima bukora cyane.

Ese iyi ndwara irazimukira?

Nubwo hashobora kuba hari ibintu by’umurage, indwara ya Legg-Calve-Perthes ntiyimukira kuva ku babyeyi ku bana. Kuba ufite umuntu wo mu muryango ufite iyi ndwara byongera ibyago gato, ariko abana benshi bayirwara nta mateka y’iyi ndwara mu muryango wabo.

Ese ibirenge byombi bishobora kwibasirwa icyarimwe?

Yego, nubwo ibi bibaho mu kigero cya 10-15% gusa. Iyo ibirenge byombi bibasirwa, ntabwo bikunze kuba icyarimwe. Akenshi, niba ikindi kirenge kibasirwa, bibaho nyuma y’amezi cyangwa imyaka nyuma y’ikindi kirenge.

Ese umwana wanjye azamara igihe kingana iki agabanya ibikorwa bye?

Amabwiriza yo kugabanya ibikorwa asanzwe aramba mu gihe cyo gukira, gishobora kuba imyaka 2-4 bitewe n’imyaka y’umwana wawe n’uburemere bw’uburwayi bwe. Muganga wawe azagenda agabanya amabwiriza uko gukira kagenda gutera imbere, atangira ku bikorwa bitagira ingaruka hanyuma akemera ko yitabira imikino yose.

Ese bibaho iki niba iyi ndwara itivuwe?

Utuvuye neza, umutwe w’ikibero ushobora kutakora neza, ibyo bishobora gutera ibibazo by’ikibero mu myaka y’ubukure harimo uburwayi bw’ikibero no kuba ukeneye kubagwa kugira ngo bashimure ikibero. Hamwe n’ubuvuzi bukwiye, abana benshi birinda izi ngaruka z’igihe kirekire kandi bagumana ubuzima bwiza bw’ikibero mu mibereho yabo.