Narcolepsy ni iki? Ibimenyetso, Intandaro, n'Ubuvuzi

Narcolepsy ni indwara ikaze yo kubura ibitotsi ikubita ubushobozi bw'ubwonko bwo kugenzura imikorere yo gusinzira no kubyuka. Aho gusinzira neza nijoro no gukomeza kuba maso ku manywa, abantu barwaye narcolepsy bahura n'ubusinzire bwinshi bwo ku manywa n'ibitero byo gusinzira bitunguranye bishobora kuba igihe icyo ari cyo cyose, aho ari ho hose.

Iyi ndwara igera ku muntu umwe kuri 2000, nubwo abenshi batamenya ko barwaye imyaka myinshi. Nubwo narcolepsy ishobora kugaragara nk'ikintu kiremereye mu ntangiro, gusobanukirwa ibiri kuba mu mubiri wawe no kumenya uburyo bwo kuvura bishobora kugufasha gucunga ibimenyetso no kubaho ubuzima buhamye, buzuye ibikorwa.

Narcolepsy ni iki?

Narcolepsy ni indwara y'imikorere y'ubwonko aho ubwonko bugerageza kugenzura imiterere isanzwe yo gusinzira. Tekereza ko ari nk'aho guhindura kw'ubwonko gusinzira guhagaze cyangwa gukora nabi mu bihe bitateganijwe.

Ubusanzwe ubwonko bwawe butanga imisemburo yitwa hypocretin (izwi kandi nka orexin) ifasha kuguma maso ku manywa. Mu bantu benshi barwaye narcolepsy, uturemangingo tw'ubwonko dukora iyi misemburo ikomeye itera umuntu kuba maso tuba twangiritse cyangwa tubura. Utabonye hypocretin ihagije, ubwonko bwawe ntibushobora kugumana ubushobozi bwo kuba maso, bigatuma habaho ibitero byo gusinzira bitunguranye n'ibindi bimenyetso.

Iyi ndwara isanzwe itangira mu myaka y'ubwangavu cyangwa mu myaka ya mbere y'ubukure, nubwo ishobora kugaragara mu myaka yose. Narcolepsy imaze gutangira, iba indwara yo mu buzima bwose, ariko ukoresheje ubuvuzi bukwiye, abantu benshi bashobora gucunga ibimenyetso byayo neza.

Ni ibihe bimenyetso bya Narcolepsy?

Ibimenyetso bya Narcolepsy bishobora gutandukana cyane ukurikije umuntu, kandi si buri wese ubimenya byose. Ibimenyetso nyamukuru bikunze gutangira buhoro buhoro, ariyo mpamvu iyi ndwara ishobora kuba itoroshye kubona mu ntangiro.

Dore ibimenyetso by'ingenzi byo kwitondera:

• Uburwayi bwo gusinzira cyane mu manywa: Iyi mibabaro ikomeye yo gusinzira mu manywa ni bwo burwayi bwa mbere kandi bugaragara cyane. Ushobora kumva umeze nk’aho utasinziriye iminsi, nubwo waba warasinziriye ijoro ryose.
• Ibitero byo gusinzira: Ibi ni ibitero bitunguranye, udashobora kubigenzura, aho usinzira ibyuma bike kugeza ku minota myinshi, akenshi mu gihe ukora ibikorwa nko kurya, kuvugana, cyangwa ndetse no gutwara ikinyabiziga.
• Cataplexy: Ibi birimo intege nke z’imitsi cyangwa ubugufi butunguranye buterwa n’amarangamutima akomeye nko guseka, gutungurwa, cyangwa kurakara. Amaguru yawe ashobora kugwa, mu maso hawe hashobora kugwa, cyangwa ushobora kugwa hasi rwose mugihe ukiri maso.
• Ubugufi bwo gusinzira: Ushobora kubona ko udashobora kugenda cyangwa kuvuga igihe uri gusinzira cyangwa uri kubyuka, bikamara ibyuma bike kugeza ku minota myinshi.
• Hypnagogic hallucinations: Aya mafoto y’ibintu by’ibinyoma, akenshi atera ubwoba, abaho mu gihe uri gusinzira cyangwa uri kubyuka, kandi ashobora kumva ari ukuri cyane.
• Uburibwe bwo gusinzira nijoro: Igishimishije, abantu benshi barwaye narcolepsy bagira ikibazo cyo kubura ibitotsi nijoro, bakabyuka kenshi.

Nubwo uburwayi bwo gusinzira cyane mu manywa bugira ingaruka kuri buri wese urwaye narcolepsy, ibindi bimenyetso biba bike. Bamwe bashobora kugira kimwe cyangwa bibiri by’ibimenyetso byongeyeho, abandi bakagira byinshi.

Ni ubuhe bwoko bwa Narcolepsy?

Abaganga bagabanya narcolepsy muburyo bubiri bushingiye ku kuba ufite cataplexy n’ibipimo bya hypocretin. Gusobanukirwa ubwoko ufite bifasha mu gutanga imiti.

Narcolepsy yo mu bwoko bwa mbere (narcolepsy ifite cataplexy) irimo uburwayi bwo gusinzira cyane mu manywa n’ibitero bya cataplexy. Abantu bafite ubu bwoko bafite ibipimo bike cyangwa bitagaragara bya hypocretin mu mubiri wabo. Ubu bwoko busanzwe bufite ibimenyetso bikomeye kandi busaba ubuvuzi bukomeye.

Uburwayi bwa narcolepsy bwo mu bwoko bwa 2 (narcolepsy idafite cataplexy) burimo gusinzira cyane mu manywa ariko nta kimenyetso cya cataplexy. Urwego rwa hypocretin rusanzwe rugira ubuzima busanzwe cyangwa rugabanuka gato. Bamwe mu bantu bafite ubwoko bwa 2 bashobora kuza kwibasirwa na cataplexy nyuma yaho, ibyo bikaba byahindura uko barwaye mu bwoko bwa 1.

Ubu bwoko bombi bushobora kuba burimo uburibwe bwo gusinzira, inzozi, no kubura ibitotsi nijoro, nubwo ibyo bimenyetso bikunze kugaragara mu bwoko bwa 1. Muganga wawe azamenya ubwoko ufite binyuze mu bushakashatsi bwo gusinzira rimwe na rimwe no gupima amazi yo mu muhogo.

Ese Narcolepsy iterwa n’iki?

Intandaro nyakuri ya narcolepsy ijyanye n’imikorere ikomeye hagati ya gene, imikorere y’ubwirinzi bw’umubiri, n’ibintu by’ibidukikije. Benshi mu barwaye babiterwa no kubura uturemangingo tw’ubwonko dukora hypocretin, nubwo impamvu ibyo bibaho atari buri gihe bisobanutse.

Dore ibintu by’ingenzi bigira uruhare mu iterambere rya narcolepsy:

• Uburwayi bw’umubiri wikingira: Sisteme y’umubiri wawe ishinzwe kurinda ishobora kwibeshya ikagaba igitero ikangiza uturemangingo tw’ubwonko dukora hypocretin, kimwe n’uko ishobora kugaba igitero ku bindi bice by’umubiri wawe mu ndwara ziterwa n’umubiri wikingira.
• Ukwakira indwara mu mubyeyi: Gene zimwe na zimwe, cyane cyane HLA-DQB1*06:02, zikugira ibyago byinshi byo kurwara narcolepsy, nubwo kugira izi gene bitavuze ko uzayirwara.
• Amazi: Amazi amwe, harimo icyorezo cya H1N1, indwara y’umugongo, cyangwa izindi ndwara z’ubuhumekero, bishobora gutera uburwayi bw’umubiri wikingira butera narcolepsy mu bantu bafite ibyago byo kuyirwara.
• Inkingo: Gake cyane, inkingo zimwe na zimwe (cyane cyane inkingo za H1N1 zakoreshejwe i Burayi) zifitanye isano n’ibyago byiyongereye byo kurwara narcolepsy, nubwo iyi sano ikomeje gukorwaho ubushakashatsi.
• Impinduka z’imisemburo: Gukura, gucura, cyangwa izindi mpinduka zikomeye z’imisemburo bishobora gutera ibimenyetso bya narcolepsy muri bamwe.
• Umujinya wo mu mutwe: Ibintu bikomeye byabaye mu buzima cyangwa trauma rimwe na rimwe biba mbere y’uko narcolepsy itangira, nubwo umujinya wenyine utayiteza.

Mu bihe bitoroshye, narcolepsy ishobora guterwa n’ibibyimba by’ubwonko, imvune z’umutwe, cyangwa izindi ndwara zangiza agace ka hypothalamus aho uturemangingo dukora hypocretin tuboneka. Ariko rero, umubare munini w’abantu barwara iyi ndwara ni narcolepsy isanzwe idafite ikibazo cyangiza ubwonko kizwi.

Ni ryari ukwiye kubona muganga kubera narcolepsy?

Ukwiye kubona muganga niba gusinzira cyane mu gihe cy’amanywa bigira ingaruka zikomeye ku buzima bwawe bwa buri munsi, akazi, cyangwa imibanire yawe. Ntugatege amatwi kugeza igihe ibimenyetso bikomeye, kuko kuvurwa hakiri kare bishobora gukumira ingaruka mbi no kunoza ubuzima bwawe.

Shaka ubufasha bw’abaganga niba ufite umunaniro ukabije udashira nubwo ubonye ijoro ryiza ryo kuryama. Ibi ni ingenzi cyane niba utinda utonze mu biganiro, mu gihe cyo kurya, cyangwa mu bindi bikorwa bisanzwe bikurangaza.

Tegura gahunda yo kubonana n’umuganga byihuse niba ugira ibitotsi by’amahoro mu gihe utwaye imodoka, ukoresha imashini, cyangwa mu bindi bihe bishobora kuba bibi. Ubuzima bwawe n’ubw’abandi bagomba kuba aribyo bya mbere.

Kandi ujye ubana n’umuganga niba ufite intege nke z’imitsi zitunguranye ziterwa n’amarangamutima akomeye, kudoda mu gihe ugiye kuryama, cyangwa inzozi z’ibintu bidasanzwe mu gihe ugiye kuryama cyangwa ukanguka. Ibi bimenyetso, bifatanije n’umunaniro ukabije, bigaragaza neza narcolepsy.

Ni ibihe bintu byongera ibyago byo kurwara Narcolepsy?

Hari ibintu byinshi bishobora kongera ibyago byo kurwara narcolepsy, nubwo kuba ufite ibyago ntibisobanura ko uzayirwara. Gusobanukirwa ibi bintu bishobora kugufasha kumenya ibimenyetso hakiri kare.

Ibintu byongera ibyago byinshi birimo:

• Imyaka: Uburwayi bwa narcolepsy busanzwe butangira hagati yimyaka 10-30, aho bugaragara cyane mu myaka y’ubwangavu n’imyaka ya mbere y’ubukure.
• Uburanga: Kugira umuntu wo mu muryango ufite narcolepsy byongera ibyago, nubwo iyi ndwara idakunda guhererekanywa mu muryango.
• Indwara zifata umubiri: Kugira izindi ndwara zifata umubiri nka diyabete yo mu bwoko bwa mbere, sclerosis nyinshi, cyangwa rhumatoïde arthritis bishobora kongera ibyago gato.
• Amazi yanduye: Amazi yanduye yo mu myanya y’ubuhumekero, cyane cyane grippe ya H1N1, umunwa w’ibicurane, cyangwa izindi ndwara ziterwa na bagiteri, bishobora gutera narcolepsy ku bantu bafite ubushobozi bwo kuyirwara.
• Imvune mu mutwe: Gake cyane, imvune zikomeye mu mutwe zigira ingaruka ku gice cy’ubwonko cya hypothalamus zishobora gutera narcolepsy.
• Uburwayi bwa kanseri mu bwonko: Gake cyane, uburwayi bwa kanseri mu gice cy’ubwonko cya hypothalamus bishobora gutera ibimenyetso bya narcolepsy.

Abantu benshi barwaye narcolepsy nta mateka y’iyi ndwara mu muryango wabo, kandi abenshi mu bantu bafite ibyago by’uburanga ntibagira narcolepsy. Iyi ndwara isa n’ikenera guhuza ubushobozi bwo kuyirwara n’ibintu byayiteye.

Ni iki gishobora kuba ingaruka za narcolepsy?

Narcolepsy ishobora gutera ingaruka zitandukanye zigira ingaruka ku buzima bwawe, ariko uburyo bwinshi bushobora kuvurwa neza ukoresheje ubuvuzi bukwiye n’impinduka mu mibereho. Gusobanukirwa izi ngaruka bishobora kugufasha gufata ingamba zo kubikumira.

Ingaruka zikomeye cyane harimo:

• Impanuka n’imvune: Gusinzira kudasobanutse mu gihe utwaye, uteka, cyangwa ukoresha imashini bishobora gutera impanuka zikomeye. Iyi kamere itera impungenge ituma ari ngombwa gukorana n’umuganga wawe ku buryo bwo kuvura neza no kumenya igihe ari cyo gihe gikwiriye gutwara ikinyabiziga.
• Ibibazo byo mu kazi no mu mashuri: Gusinzira mu nama, mu masomo, cyangwa mu gihe ukora imirimo yawe bishobora kugira ingaruka ku mikorere yawe n’amahirwe yawe mu kazi.
• Kwikura mu bandi: Abandi bashobora gutandukanya ibimenyetso byawe nk’ubushotoranyi cyangwa kubura ubushake, bigatuma umubano wawe ugorana kandi ukaba ukura mu bandi.
• Ihangayika n’agahinda: Ingorane zo kubana na narcolepsy zishobora gutera ibibazo byo mu mutwe, cyane cyane ihangayika n’indwara zo mu mutwe.
• Kubyibuha: Abantu benshi barwaye narcolepsy bagira ikibazo cyo kubyibuha bitateganijwe, bishobora guterwa n’impinduka mu mikorere y’umubiri cyangwa ingaruka z’imiti.
• Ibibazo byo kwibuka: Imiterere yo gusinzira idahwitse ishobora kugira ingaruka ku bushobozi bwawe bwo kwibuka no kubika ibintu, bigatera ingaruka ku kwiga no gukora ibintu bya buri munsi.

Ingaruka nke ariko zikomeye zishobora kuba harimo imvune zikomeye ziterwa n’ibibazo bya cataplexy, cyane cyane iyo bibaho mu gihe ugenda ku ndunduro cyangwa hafi y’ahantu haterwa akaga. Bamwe mu bantu barwara indwara zo kurya mu gihe barara cyangwa ibindi bibazo byo mu myitwarire mu gihe barara.

Inkuru nziza ni uko, hakoreshejwe uburyo bukwiye bwo kuvura, abantu benshi barwaye narcolepsy bashobora kugabanya cyane ibyago byo kugira ingaruka mbi kandi bagakomeza kubaho ubuzima buhamye kandi buzuye.

Narcolepsy ishobora kwirindwa gute?

Ikibabaje ni uko nta buryo bwemewe bwo kwirinda narcolepsy kuko ahanini iterwa n’imiterere y’umubiri n’ibibazo by’umubiri bitari mu bubasha bwawe. Ariko rero, ushobora gufata ingamba zo kugabanya ibyago byo gutera iyi ndwara niba ufite imiterere y’umubiri ishobora kuyitera.

Nubwo kwirinda atari byo byizera, ibi bintu bishobora kugufasha:

• Komeza kugira isuku nziza yo kuryama: Kuryama bihagije kandi buri gihe bishobora kugufasha kurinda sisitemu yawe yo kuryama no kubyuka n’ubuzima bw’ubwonko muri rusange.
• Genzura umunaniro neza: Kubera ko umunaniro ukomeye rimwe na rimwe ubanziriza igihe narcolepsy itangira, kwiga uburyo bwo guhangana n’umunaniro neza bishobora kugufasha.
• Vura indwara z’ubwandu vuba: Kubona ubuvuzi bukwiye bw’indwara z’ubuhumekero, umutwe, n’izindi ndwara bishobora kugabanya ibyago byo gutera indwara zifata umubiri.
• Komeza uhabwe inkingo: Nubwo hari inkingo zimwe na zimwe zifitanye isano n’ibyago bya narcolepsy, inyungu rusange zo gukingira zisanzwe zirusha ibyago bike ku bantu benshi.
• Kwirinda imvune mu mutwe: Kwambara ibikoresho by’umutekano bikwiye mu mikino n’ibindi bikorwa bishobora gufasha kwirinda imvune zikomeye z’ubwonko ziterwa n’impanuka, zikunze gutera narcolepsy y’uburyo bwa kabiri.

Niba ufite amateka y’umuryango wa narcolepsy cyangwa izindi ndwara zifata umubiri, banira ibyago byawe na muganga wawe. Bashobora kugufasha kumva ibimenyetso byo kwirinda no kugutegurira ubugenzuzi bukwiye.

Narcolepsy imenyeshwa gute?

Kumenya narcolepsy bikubiyemo ibizamini n’isuzuma bitandukanye, kuko nta kizami kimwe gishobora kwemeza neza iyi ndwara. Muganga wawe azatangira asuzumye amateka yawe y’ubuzima n’isuzuma rusange.

Uburyo bwo gupima busanzwe burimo kwandika ibitabo byo kuryama mu gihe cy’icyumweru kimwe cyangwa bibiri, wandike igihe uryama, ukorora, kandi ugira ibimenyetso. Ibi bifasha muganga wawe kumva imiterere yo kuryama yawe n’ubwinshi bw’ibimenyetso.

Muganga wawe ashobora kukugenera ibizamini bya polysomnogram (ubushakashatsi bwo kuryama bukorwa nijoro) bikorwa mu bitaro byo kuryama. Iki kizami gikurikirana imikorere y’ubwonko bwawe, umuvuduko w’umutima, guhumeka, n’imikorere y’imitsi yawe mu ijoro ryose kugira ngo habeho gukuraho izindi ndwara zo kuryama nka sleep apnea.

Bukeye, uzasanzwe ukorerwa ikizamini cyo gusinzira kenshi (MSLT), gipima uburyo bwihuse usinzira mu gihe cyateganijwe cyo kuryama. Abantu barwaye narcolepsy bakunda gusinzira mu minota 8 kandi bakinjira mu buriri bwa REM vuba cyane.

Mu bimwe mu bihe, muganga wawe ashobora kugusaba gukorerwa igikorwa cyo kubaga mu mugongo (lumbar puncture) kugira ngo apime urwego rwa hypocretin mu mazi asanzwe ari mu bwonko. Urwego ruke cyane rugaragaza cyane narcolepsy yo mu bwoko bwa mbere, nubwo iki kizamini atari ngombwa buri gihe kugira ngo hamenyekane indwara.

Ibizamini by’amaraso bishobora kugenzura ibimenyetso by’indwara byo mu muryango bifitanye isano na narcolepsy, cyane cyane gene HLA-DQB1 * 06: 02. Ariko, kugira iyi gene ntibemerera narcolepsy, kandi kutayigira ntibiyikuraho.

Ni iki kivura narcolepsy?

Nubwo nta muti uravura narcolepsy, imiti itandukanye ishobora gufasha gucunga ibimenyetso kandi ikagufasha kugumana ubuzima busanzwe. Ubuvuzi busanzwe buhuza imiti hamwe no guhindura imibereho hakurikijwe ibimenyetso byawe n’ibyo ukeneye.

Imiti igira uruhare runini mu kuvura narcolepsy:

• Imiti ikanguza: Imiti nka modafinil, armodafinil, cyangwa methylphenidate ifasha guteza imbere kuba maso no kugabanya uburwayi bwo gusinzira mu manywa.
• Sodium oxybate: Iyi miti iteza imbere ibitotsi byiza nijoro kandi ishobora kugabanya cataplexy, uburwayi bwo gusinzira mu manywa, no guhagarara gusinzira.
• Imiti yo kuvura ihungabana: Imiti imwe yo kuvura ihungabana, cyane cyane iyibasira serotonin na norepinephrine, ishobora gufasha kugenzura cataplexy, guhagarara gusinzira, no kubona ibintu bitariho.
• Imiti mishya: Pitolisant na solriamfetol ni imiti mishya ishobora gufasha mu burwayi bwo gusinzira mu manywa binyuze mu buryo butandukanye.

Muganga wawe azakorana nawe kugira ngo abone imiti ikwiye n’umwanya wayo. Uyu muhora ukunda gufata igihe n’ubwitonzi, kuko buri wese asubiza mu buryo butandukanye ku miti ya narcolepsy.

Ubuvuzi budakoresha imiti bungana kandi bukaba burimo igihe cyo kuryama, gisanzwe kiba iminota 15-20, gifatwa mu bihe bisanzwe umunsi wose kugira ngo bifashe gucunga uburwayi.

Uko wakwitaho mu rugo igihe ufite indwara ya Narcolepsy?

Kwita ku ndwara ya narcolepsy mu rugo bisobanura gushyiraho gahunda n’ibidukikije bifasha gusinzira neza no kuba maso ku manywa. Izi ngamba zikora neza iyo zifatanije n’ubuvuzi.

Shyiraho gahunda yo gusinzira buri gihe ukajya kuryama no kubyuka igihe kimwe buri munsi, ndetse no mu mpera z’icyumweru. Ibi bifasha kugenzura isaha y’umubiri wawe kandi bishobora kunoza gusinzira nijoro no kuba maso ku manywa.

Shyiraho ahantu heza ho gusinzira ugatuma ibitanda byawe bikonje, byijimye kandi bituje. Tekereza gukoresha idirishya ridafite umucyo, imashini z’umuzika cyangwa ibintu byo mu matwi kugira ngo ugabanye ibibangamira bishobora kubangamira ibitotsi byawe bimaze guhangayika.

Plana igihe cyo kuryama iminota 15-20 mu bihe bisanzwe ku manywa, akenshi nyuma ya saa sita. Kuryama igihe kirekire bishobora gutuma wumva unaniwe, mu gihe igihe gito gishobora kutaguha imbaraga.

Hindura imirire yawe ugatangaza ibiryo byinshi hafi yo kuryama kandi ugabanye ibinyobwa birimo kafe, cyane cyane nyuma ya saa sita nimugoroba. Bamwe basanga kurya ibiryo bike, bikunze kuba byiza mu gufata ingufu zihoraho.

Kora imyitozo ngororamubiri buri gihe, ariko wirinda gukora imyitozo ikomeye hafi yo kuryama. Immyitozo ishobora kunoza ibitotsi kandi igatuma ugenzura uburemere bwinshi busanzwe muri narcolepsy.

Genzura umunaniro binyuze mu buryo bwo kuruhuka nko guhumeka neza, gukora imyitozo yo mu bwenge, cyangwa yoga yoroheje. Umunaniro mwinshi ushobora kurushaho kuba mubi ku ndwara ya narcolepsy kandi ukabangamira ibitotsi.

Wategura gute uruzinduko kwa muganga?

Gutegura neza uruzinduko kwa muganga bishobora gufasha kugira ngo ubone ubuvuzi bwiza kandi bujyanye n’uburwayi bwawe. Tangira ukoresheje igipapuro cy’imyitozo yo kuryama igihe cy’ibyumweru byibuze kimwe cyangwa bibiri mbere y’uruzinduko rwawe.

Andika imyitozo yawe yo kuryama, harimo igihe ujya kuryama, igihe umara kugira ngo uryama, kenshi uba wibutse mu ijoro, n’igihe ukangukira mu gitondo. Andika kandi igihe cyose uryama, igihe cyacyo, n’uko wumva umaze kuruhuka.

Kora urutonde rwuzuye rw’ibimenyetso byawe byose, harimo igihe byatangiye, kenshi biba, n’icyo bishobora gutera. Andika igihe cyose uba ufite intege nke z’imitsi, kudoda, cyangwa inzozi zikomeye, kuko ibyo bintu byose ni ingenzi mu kuvura.

Kora ubushakashatsi ku mateka yawe y’ubuzima, harimo ibizamini byo kuryama byabanje, imiti warikoresha, n’izindi ndwara. Zana urutonde rw’imiti yose ukoresha, imiti y’inyongera, n’imiti y’ibanze ukoresha.

Tegura ibibazo uzazaza kubabaza muganga wawe, nko kumenya ibizamini ukeneye, uburyo bwo kuvura buhari, n’uko narcolepsy ishobora kugira ingaruka ku kazi kawe cyangwa ubushobozi bwo gutwara ibinyabiziga. Ntugatinye kubabaza icyo udasobanukiwe.

Tegereza kuzana umuntu wo mu muryango wawe cyangwa inshuti ya hafi yabonye ibimenyetso byawe. Bashobora gutanga amakuru y’inyongera akomeye ku myitozo yawe yo kuryama n’imyitwarire yawe y’umunsi, ushobora kuba utazi.

Ni iki cy’ingenzi cyo kumenya kuri Narcolepsy?

Narcolepsy ni indwara y’imitsi ishobora kuvurwa, igira ingaruka ku bushobozi bw’ubwonko bwo kugenzura imyitozo yo kuryama no kubyuka, bigatuma umuntu arara cyane mu gihe cy’umunsi kandi bishobora gutera izindi ndwara nka cataplexy cyangwa kudoda. Nubwo ari indwara yo mu buzima bwose, abantu benshi bashobora kubaho ubuzima buhamye kandi buhamye bafite ubuvuzi bukwiye.

Ikintu cy’ingenzi cyo kwibuka ni uko narcolepsy ari indwara nyakuri, atari ikosa ry’umuntu cyangwa ikimenyetso cy’ubushotoranyi. Niba ufite umunaniro ukabije w’amaso ku manywa ubangamira ibikorwa byawe bya buri munsi, ntutinye gushaka ubuvuzi.

Kumenya hakiri kare no kuvurwa birashobora kunoza cyane ubuzima bwawe no gukumira ingaruka nk’impanuka cyangwa kwikura mu bandi. Hamwe n’imiti ikwiye, guhindura imibereho, n’ubufasha, ushobora gucunga neza ibimenyetso byawe no gukurikira intego zawe.

Ibuka ko kubona uburyo bwiza bwo kuvura bikunda gufata igihe n’ubwitonzi. Korana n’itsinda ryawe ry’ubuvuzi, ube ufunguye ku bimenyetso byawe n’impungenge, kandi ntucike intege niba uburyo bwa mbere bwo kuvura budakora neza. Abantu benshi barwaye narcolepsy basanga ibimenyetso byabo biba byoroshye cyane iyo babonye gahunda ikwiye yo kuvura.

Ibibazo Bikunze Kubahwa Bijyanye na Narcolepsy

Ese narcolepsy irashobora gukira?

Kuri ubu, nta muti wa narcolepsy, ariko iyi ndwara ishobora gucungwa neza hakoreshejwe uburyo bukwiye bwo kuvura. Abantu benshi barwaye narcolepsy bashobora kunoza cyane ibimenyetso byabo n’ubuzima bwabo hakoreshejwe imiti n’impinduka mu mibereho. Nubwo ushobora gukenera kuvurwa buri gihe, abantu benshi barwaye narcolepsy babayeho ubuzima busanzwe, butanga umusaruro, hakoreshejwe uburyo bukwiye bwo kuyicunga.

Ese narcolepsy ni ikintu cy’akaga?

Narcolepsy ubwayo si ikintu cy’akaga, ariko ishobora guteza ibibazo by’akaga niba idacungwa neza. Ibyago by’ingenzi bituruka ku gutinda gusinzira mu bikorwa nk’ugutwara ibinyabiziga, guteka, cyangwa gukoresha imashini. Hamwe n’ubuvuzi bukwiye n’ingamba z’umutekano, abantu benshi barwaye narcolepsy bashobora kugabanya ibyo bibazo. Muganga wawe ashobora kugufasha kumenya igihe ari cyo gikwiye gutwara ibinyabiziga n’ingamba zo gukurikiza mu bihe bitandukanye.

Ese nzashobora gutwara ibinyabiziga niba mfite narcolepsy?

Abantu benshi barwaye narcolepsy bashobora gutwara imodoka mu mutekano iyo ibimenyetso byabo byagenzurwa neza n’ubuvuzi. Ariko rero, ntugomba gutwara imodoka niba ufite ibitero byo gusinzira kenshi cyangwa ibimenyetso bidafite uburyo bwo kubigenzura. Muganga wawe azakenera gusuzuma uko ibimenyetso byawe bigenzura kandi ashobora kuguha uruhushya rwo gutwara imodoka. Bimwe mu bice by’igihugu bifite ibisabwa byihariye ku bantu barwaye narcolepsy bashaka gukomeza uburenganzira bwabo bwo gutwara imodoka.

Ese narcolepsy irushaho kuba mbi uko iminsi igenda?

Ibimenyetso bya narcolepsy bisanzwe bikomeza kuba kimwe uko iminsi igenda aho gukomeza kuba bibi. Mu by’ukuri, bamwe basanga ibimenyetso byabo bigenda bigabanyuka uko bakura, cyane cyane ibimenyetso bya cataplexy. Ariko rero, ibimenyetso bishobora guhinduka bitewe n’ibintu nka stress, uburwayi, cyangwa impinduka mu myitwarire yo kuryama. Ubuvuzi buhoraho n’isuku nziza yo kuryama bifasha kugumishaho uburyo bwo kugenzura ibimenyetso mu buzima bwose.

Ese abana bashobora kugira narcolepsy?

Yego, narcolepsy ishobora kugaragara mu bana, nubwo bikunze kuba bigoye kubimenya kuko gusinzira cyane bishobora kwitiranywa no kunanirwa bisanzwe cyangwa ibibazo by’imyitwarire. Abana barwaye narcolepsy bashobora kugaragaza ibimenyetso nko kugira ikibazo cyo gukomeza kuba maso mu ishuri, impinduka z’amarangamutima zitunguranye, cyangwa ibibazo by’amashuri. Niba ukeka ko umwana wawe arwaye narcolepsy, gira inama umuganga w’inzobere mu kuryama kw’abana kugira ngo asuzume neza kandi amuvure.