Chii chinonzi Craniopharyngioma? Zviratidzo, Zvinokonzera, & Kurapa

Craniopharyngioma chirwere chisina kujairika, chisingaiti kanza, chinowanikwa muuropi pedyo nemiriri ye pituitary, iri pasi peuropi. Kunyange zvazvo aya matumour asingaparari kuzvimwe zvikamu zvemuviri senge kanza, anogona kukonzera matambudziko makuru nekuda kwekuti anokura kupi.

Fungidzira gland ye pituitary se“nzvimbo huru yekutonga” yemihormone mumuviri wako. Kana craniopharyngioma ikakura pedyo, inogona kudzvanya pane iyi gland nemapazi eupenzi, ichivhiringidza mabasa akakosha senge kukura, metabolism, uye kuona. Aya matumour kazhinji anoita vana vane makore 5-14 uye vakuru vane makore 50-74.

Zviratidzo zve craniopharyngioma ndeapi?

Zviratidzo zve craniopharyngioma zvinoonekwa zvishoma nezvishoma sezvo tumor ikakura ichidzvanya mapazi eupenzi. Ungasazvioni pakutanga, asi zviratidzo zvinowanzoonekwa zvakajeka panguva.

Sezvo aya matumour kazhinji anoita gland ye pituitary ne optic nerves, zviratidzo zvakawanda zvine chekuita nekushomeka kwehomone uye kuchinja kwekuona. Aya ndiwo maratidzo anowanzoitika ekutarisa:

• Matambudziko ekuona: Kuona kusapfava, kurasikirwa nekuona kwepedyo (kune rumwe rutivi), kana kuona kaviri
• Kurwadziwa kwemusoro: Kazhinji kunoramba kuripo uye kunogona kuipa panguva
• Matambudziko ekukura muvana: Kukura kuri nheyo pane zvakajairwa kana kusakurumidza kukura
• Kuneta nekushaya simba: Kunzwa kuneta zvisina kujairika kana kushaya simba
• Kuchinja kweuremu: Kuwedzera uremu kusina kujairika kana kuoma kuderedza uremu
• Nyota yakawanda nekuenda kuchimbuzi kazhinji: Kuda kunwa nemvura yakawanda kupfuura zvakajairwa
• Kuchinja kwemanzwiro: Kuora mwoyo, kushatirwa, kana kuchinja kwepfungwa
• Matambudziko ekurangarira: Kuomerwa kuisa pfungwa kana kurangarira zvinhu

Muimwe nguva, ungave uine zviratidzo zvisingawanzoitika senge kurutsa, kurutsa, kana matambudziko ekurongedza. Izvi zvinowanzoitika kana tumor ikakura zvakakwana kuwedzera kumanikidza mukati memusoro wako.

Marudzi e craniopharyngioma ndeapi?

Vanachiremba vanokamura craniopharyngiomas kuva marudzi maviri makuru zvichienderana nemaziso avo pasi pemikroskopu uye vanoita ani. Kunzwisisa aya marudzi kunobatsira timu yako yekurapa kuronga nzira yakanakisa yekurapa.

Adamantinomatous type inowanzoitika kuvana nevakuru vaduku. Aya matumour kazhinji ane calcium deposits uye cysts dzakazara nemvura. Anowanzoomerera kumatishu eupenzi, izvo zvinogona kuita kuti kubviswa kwemishonga kuve kwakaoma.

Papillary type inowanzoita vakuru, kunyanya avo vane makore anopfuura 40. Aya matumour kazhinji ane simba uye haana cysts. Kazhinji iri nyore kuaparadzanisa nematishu eupenzi panguva yekuvhiya, izvo zvinogona kutungamira kumigumisiro iri nani.

Marudzi ese ari maviri haasi kanza, asi nzvimbo yavo uye nzira yekukura zvinoenderana nekuti anokanganisa sei hutano hwako uye kuti ndeapi marapirwo anokodzera mamiriro ako.

Chii chinokonzera craniopharyngioma?

Craniopharyngiomas inokura kubva kumasero asara aifanira kupera panguva yekukura kwako mudumbu. Aya masero kazhinji anobatsira kuumba chikamu chegland yako ye pituitary pakutanga kwekumisikidzwa, asi dzimwe nguva haasi kuenda sezvaifanira.

Makore kana kunyange makumi emakore gare gare, aya masero asara anogona kutanga kukura uye kuumba tumor. Iyi nzira haina kukonzerwa nechinhu chawakaita kana kusaita. Haisi yakabatana nehupenyu hwako, kudya, kana zvinhu zvakatipoteredza.

Kutsvagisa kwazvino kwakaona kuti mazhinji e craniopharyngiomas ane kuchinja kwemajini mukati memasero etumour. Zvisinei, aya kuchinja kunoitika zvisina kujairika uye haana kuwanikwa kubva kuvabereki vako. Izvi zvinoreva kuti craniopharyngiomas haina kufamba mumhuri, uye haugone kuipasa kuvana vako.

Chinhu chaicho chinokonzera aya masero ekurara kutanga kukura hachizivikanwi. Vanyori vanoramba vachidzidza iyi chirwere chisina kujairika kunzwisisa kuti nei vamwe vanhu vanowana aya matumour nepo vamwe vasingaiti.

Rini unofanira kuona chiremba nekuda kwe craniopharyngioma?

Unofanira kubata chiremba wako kana uine zviratidzo zvinoramba zviripo zvisingavandudzeki panguva, kunyanya kuchinja kwekuona kana kurwadziwa kwemusoro kunoramba kuripo. Sezvo zviratidzo zve craniopharyngioma zvinoonekwa zvishoma nezvishoma, zviri nyore kuzvidzima sekumanikidzwa kana kukwegura kwakajairwa.

Rongedza musangano nekukurumidza kana ukaona matambudziko ekuona senge kurasikirwa nekuona kwako kwepedyo kana kuona kaviri. Aya maratidzo anogona kukanganisa zvakanyanya mabasa ako ezuva nezuva uye kuchengetedzeka, kunyanya kana uchityaira kana kufamba nematanho.

Kune vabereki, tarisa zviratidzo zvekuti mwana wako haasi kukura sezvakatarisirwa kana achionekwa kuti ari kukura zvishoma pane shamwari dzake. Kana mwana wako akagumbuka nekukuvadzwa kwemusoro kazhinji kana aine dambudziko rekuona bhodhi kuchikoro, izvi zvinoda kurapwa kwechiremba.

Tsvaga kurapwa kwechiremba nekukurumidza kana uine kurwadziwa kwemusoro kwakasimba nekurutsa, kurasikirwa kwekuona kamwe kamwe, kana kuchinja kukuru kwekuziva. Kunyange zvisingawanzoitika, aya maratidzo anogona kuratidza kuwedzera kumanikidza muuropi rwako runoda kurapwa nekukurumidza.

Zvinokonzera njodzi zve craniopharyngioma ndeapi?

Kusiyana nezvimwe zvirwere zvakawanda, craniopharyngioma haina zvinokonzera njodzi zvaunogona kudzora kana kuchinja. Chinhu chikuru chinokonzera njodzi ingori zera, nemakore maviri ekukura apo aya matumour anowanzoitika.

Vana vane makore 5-14 vane njodzi yakakura, kunyanya kune adamantinomatous type. Zera rechipiri rinowanikwa muvakuru vane makore 50-74, avo vanowanzoita papillary type.

Hapana humbowo hwekuti nhoroondo yemhuri, sarudzo dzehupenyu, zvinhu zvakatipoteredza, kana kurapwa kwakapfuura kunowedzera njodzi yako yekuwana craniopharyngioma. Izvi zvinogona kuva zvinonyaradza, asi zvinorevawo kuti hapana nzira yekufanotaura kana kudzivirira aya matumour kubva pakukura.

Zvakataurwa izvozvo, varume nevakadzi vanokanganiswa zvakafanana, uye chirwere ichi chinoitika mumapoka ese emarudzi uye nzvimbo dze geographical. Kushayikwa kwe aya matumour kunoreva kuti njodzi yako pachako inoramba iri shoma pasinei nezera rako.

Matambudziko anogona kuitika e craniopharyngioma ndeapi?

Craniopharyngiomas inogona kukonzera matambudziko akasiyana zvichienderana nehukuru hwayo, nzvimbo, uye kuti inokanganisa sei mapazi eupenzi. Matambudziko mazhinji aya ane chekuita nekuita kwetumour pane gland yako ye pituitary nenzvimbo dziri pedyo.

Kunzwisisa aya matambudziko anogona kukubatsira kuziva kana uchifanira kutsvaga kurapwa kwechiremba uye kuti chii chaunofanira kutarisira panguva yekurapa:

• Kushomeka kwehomone: Gland yako ye pituitary ingasagadzire homone yakakwana yekukura, homone ye thyroid, kana dzimwe homone dzakakosha
• Diabetes insipidus: Kusakwanisa kuisa mvura muviri zvakanaka, zvichikonzera nyota yakawanda nekuenda kuchimbuzi kazhinji
• Kurasikirwa kwekuona: Kurasikirwa kwekuona kwese kana kwese, kunyanya kuona kwepedyo
• Kuchinja kwepfungwa: Matambudziko ekurangarira, kuomerwa kuisa pfungwa, kana kuchinja kwepfungwa
• Kuonda: Kuwedzera uremu kukuru nekuda kwekuvadza kumatunhu ekudzora kudya muuropi rwako
• Matambudziko ekurara: Matambudziko ekurara kana kurara kwenguva yakareba masikati
• Hydrocephalus: Kuunganidzwa kwemvura muuropi kana tumor ikavhara mvura inoyerera

Mamwe matambudziko anogonawo kubva pakurapa pachawo. Kuita kuvhiya pedyo negland ye pituitary neuropi kune njodzi, uye radiation therapy inogona kukonzera migumisiro yakareba pane kugadzirwa kwehomone. Timu yako yekurapa ichakurukura aya njodzi uye ichaita kuti kuderedza matambudziko nepo uchirapa tumor yako zvakakwana.

Craniopharyngioma inozwivikanwa sei?

Kuziva craniopharyngioma kazhinji kunotanga nekuti chiremba wako akubvunza nezvezviratidzo zvako uye achiita bvunzo yemuviri. Vachapa hanya yakanyanya pakuona kwako, reflexes, uye zviratidzo zvematambudziko ehormone.

Chishandiso chakakosha chekuziva ndicho magnetic resonance imaging (MRI) yeuropi rwako. Iyi scan yakadzama inogona kuratidza zvakajeka saizi yetumour, nzvimbo, uye hukama nemapazi eupenzi. Chiremba wako anogonawo kuraira CT scan kuti aone zviri nani calcium deposits mu tumor.

Kuongororwa kweropa kunobatsira kuziva kushomeka kwehomone kunoratidza matambudziko egland ye pituitary. Chiremba wako achaongorora mazinga ehormone dzakasiyana kusanganisira homone yekukura, homone ye thyroid, uye cortisol. Aya maonero anobatsira kuona kuti tumor inokanganisa sei basa re pituitary yako.

Kuongororwa kwakakwana kwemaziso kwakakosha sezvo vanhu vazhinji vane craniopharyngioma vane matambudziko ekuona. Ophthalmologist achaedza maonero ako kuti aone kuti ndeapi maonero ari kukanganiswa. Iyi ruzivo inobatsira kutungamira sarudzo dzekurapa uye kutarisa kufambira mberi kwako.

Kurapa kwe craniopharyngioma ndekupi?

Kurapa kwe craniopharyngioma kazhinji kunosanganisira kuvhiya senzira huru, kazhinji yakabatana nemamwe marapirwo. Chinangwa ndechekubvisa tumor yakawanda sezvinobvira nepo uchichengeta mabasa eupenzi eupenzi.

Neurosurgeon wako acharonga nzira yakanakisa yekuvhiya zvichienderana nehukuru hwematumour ako nenzvimbo. Vanogona kuita kuvhiya kuburikidza nemuromo wako (transsphenoidal approach) kune matumour madiki kana kuburikidza nekuvhura duku mumusoro wako (craniotomy) kune makuru. Kubviswa kwakakwana hakusi kugara kuchikwanisika pasina njodzi yekukuvadza nzvimbo dzakakosha dzeuropi.

Radiation therapy kazhinji inotevera kuvhiya, kunyanya kana paine tumor yakasara. Matekinoroji azvino senge stereotactic radiosurgery anogona kunangisa masero etumour asara nepo achideredza kukuvara kumatishu ane hutano. Iyi kurapa inogona kupiwa nekukurumidza mushure mekuvhiya kana kuchengetedzwa gare gare kana tumor ikakurira zvakare.

Hormone replacement therapy inowanzodiwa usati watanga kurapwa uye mushure mekurapwa. Ungada mishonga yekutsiva homone ye thyroid, homone yekukura, cortisol, kana dzimwe homone dzisingachagadzirwi negland yako ye pituitary zvakakwana. Aya mishonga inobatsira kudzorera mabasa emuviri akajairika uye kuvandudza hupenyu hwako.

Nzira yekutonga sei zviratidzo pamba panguva yekurapa kwe craniopharyngioma?

Kutonga zviratidzo zve craniopharyngioma pamba kunosanganisira kushanda pedyo nechikwata chako chekurapa nepo uchichinja zvinhu zvezuva nezuva. Kutora mishonga yako yakanyorwa nguva dzose ndiyo nhanho yakakosha yaunogona kutora.

Kana uri kurwara nekuchinja kwekuona, ita kuti imba yako ive yakachengeteka nekugadzirisa chiedza, kubvisa zvinhu zvinogona kukonzera kudonha, uye kushandisa mavara akasiyana kuti uone zvinhu. Funga kushandisa magnifying glasses yekuverenga uye kukumbira nhengo dzemhuri kuti dzizivisa kana dzichiuya mukamuri.

Kune zviratidzo zvine chekuita nehomone senge kuneta, gadzira maitiro ekurara nguva dzose uye ita zvinhu zvako zuva rese. Kana uri kunetseka nekuchinja kweuremu, shanda nenutritionist kugadzira chirongwa chekudya chinotsigira zvinangwa zvako zvehutsanana nepo uchichengeta chero kuchinja kwechido chekudya.

Chengeta bhuku rezviratidzo kuti uteedzere kuchinja mukurwadziwa kwemusoro wako, kuona, mazinga esimba, uye manzwiro. Iyi ruzivo inobatsira timu yako yekurapa kugadzirisa kurapwa uye kubata chero kuchinja kunotyisa pakutanga. Usanetseka kubata chiremba wako kana zviratidzo zvikaipisisa kana zvimwe zvichangobva kuoneka.

Ungagadzirira sei musangano wako nechikwata chekurapa?

Usati wasangana nechikwata chekurapa, nyora zviratidzo zvako zvese, kusanganisira apo zvakatanga uye kuti zvakachinja sei panguva. Iva chaiwo nezvematambudziko ekuona, maitiro ekurwadziwa kwemusoro, uye chero kuchinja mune simba rako, manzwiro, kana uremu.

Uya ne rondedzero yakazara yemishonga yako yazvino, kusanganisira zviyero uye kuti unoidya kangani. Unganidzawo chero rekodhi yekurapa yapfuura, migumisiro yekuongorora, kana kudzidza kwemaitiro ane chekuita nechirwere chako. Kana wakamboona vamwe vanachiremba nezvezviratidzo izvi, uya nemarekodhi iwayowo.

Gadzira rondedzero yemibvunzo yaunoda kubvunza chiremba wako. Funga kubvunza nezvemarapirwo, migumisiro inogona kuitika, tarisiro yenguva refu, uye kuti chirwere ichi chinogona kukanganisa sei mabasa ako ezuva nezuva. Usanetseka kubvunza mibvunzo yakawanda - timu yako yekurapa inoda kuti unzwisise chirwere chako zvizere.

Funga kuuya nemhuri kana shamwari kumusangano wako. Vanogona kukubatsira kurangarira ruzivo rwakakosha uye kupa rutsigiro rwemanzwiro. Kuva nemunhu aripo kunogonawo kubatsira kana uchikurukura zvisarudzo zvakaoma zvekurapa kana kurangarira mirairo mushure mekusangana.

Chii chinonyanya kukosha nezve craniopharyngioma?

Craniopharyngioma chirwere chisina kujairika asi chinorapika cheuropi chinoda kurapwa kwakakosha kwechiremba uye kazhinji kutarisirwa kwenguva refu. Kunyange zvazvo kuziva kunogona kunzwa kuchinetesa, vanhu vazhinji vane chirwere ichi vanoramba vachirarama hupenyu hunofadza nekurapwa kwakakodzera uye rutsigiro.

Chinhu chakakosha chekurangarira ndechekuti kuziva pakutanga nekurapa kazhinji kunotungamira kumigumisiro iri nani. Kana uri kurwara nezviratidzo zvinoramba zviripo senge kuchinja kwekuona, kurwadziwa kwemusoro, kana matambudziko ehormone, usazeza kutsvaga kurapwa kwechiremba.

Kurapa kazhinji kunosanganisira nzira yekubatana ne neurosurgeons, endocrinologists, ophthalmologists, uye vamwe nyanzvi vanoshanda pamwe chete. Kunyange zvazvo ungada kurapwa kwenguva refu kwehomone uye kutarisa nguva dzose, aya marapirwo anogona kutonga zviratidzo zvakawanda nematambudziko.

Rambai makabatana nechikwata chenyu chekurapa, tevedzerai chirongwa chenyu chekurapa nguva dzose, uye usazeza kubvunza mibvunzo kana kutaura zvinokunetsa. Nekurapwa kwakakodzera kwechiremba uye rutsigiro, unogona kubata chirwere ichi zvakakwana uye kuchengetedza hupenyu hwakanaka.

Mibvunzo inowanzo bvunzwa nezve craniopharyngioma

Q1: Craniopharyngioma ndicho chirwere chekanza here?

Kwete, craniopharyngioma haisi kanza. Aya matumour akanaka (asingaiti kanza) asingaparari kuzvimwe zvikamu zvemuviri wako. Zvisinei, anogona kukonzera matambudziko akakomba nekuda kwenzvimbo yavo pedyo nemapazi eupenzi eupenzi senge gland ye pituitary ne optic nerves.

Q2: Craniopharyngioma inogona kurapika zvachose here?

Vanhu vazhinji vanowana kutonga kwakanaka kwenguva refu kwe craniopharyngioma yavo nekurapwa, kunyange zvazvo kurapika kwakazara kunotsamira pazvinhu zvakasiyana. Kana tumor yese ichigona kubviswa zvakachengeteka nekuvhiya, mukana wekurapika unokwira. Zvisinei, vamwe vanhu vangada kurapwa kwenguva refu uye kutarisa kunyange mushure mekurapwa kwakabudirira pakutanga.

Q3: Ndichada kurapwa kwehomone kwenguva refu here?

Vanhu vazhinji vane craniopharyngioma vanoda kurapwa kwehomone kwenguva refu, kunyanya kana gland ye pituitary yavo yakakanganiswa zvakanyanya. Homone dzakakosha dzauchada dzinoenderana nemabasa e pituitary akaoma. Endocrinologist wako acharamba achitarisa mazinga ako ehormone uye achigadzirisa mishonga sezvinodiwa.

Q4: Ndichada kusangana nechikwata chekurapa uye kuongororwa kazhinji sei?

Zvirongwa zvekusangana nechikwata chekurapa zvinosiyana zvichienderana nekurapa kwako nemamiriro ako pachako. Pakutanga, ungada MRI scans mazuva ese 3-6, nekuwanda kazhinji kuchideredzwa panguva kana mamiriro ako akaramba ari nani. Chikwata chako chekurapa chichatarisawo mazinga ako ehormone uye hutano hwako zvakakwana nguva dzose.

Q5: Craniopharyngioma inogona kukanganisa kugona kwangu kushanda kana kutyaaira here?

Kuchinja kwekuona kubva ku craniopharyngioma kunogona kukanganisa kugona kwako kutyaaira zvakachengeteka, kunyanya kana uine kurasikirwa kwekuona kwepedyo. Chiremba wako wemaziso achaona kana kuona kwako kunosangana nezvinodiwa pakutyaira. Vanhu vazhinji vanogona kuramba vachishanda nekurapwa kwakakodzera uye kugadziriswa kwemibato yebasa kana zvichidiwa.