Chii Chinonzi Pulmonary Atresia ine Intact Ventricular Septum? Zviratidzo, Zvinokonzera, & Kurapa

Pulmonary atresia ine intact ventricular septum chirwere chisingawanzoitika chemwoyo chevana vanoberekwa nacho, umo valve yepulmonary haiuke zvakanaka uye inodzivirira ropa kubuda kumapfupa. Funga nezvazvo segedhi risina kuvhurwa pakati pemwoyo nemapfupa, zvichiita kuti zviomere ropa remwana wako kuti awane oksijeni yaanoda.

Ichi chirwere chinotapura vana vangangosvika 1 pa10,000 uye chinodiwa kurapwa nekukurumidza mushure mekuberekwa. Kunyange zvazvo zvinonzwa zvichitya, nyanzvi dzemoyo dzevana dzakagadza kurapwa kunoshanda kunogona kubatsira mwana wako kurarama hupenyu hwakazara, hunoshanda.

Chii Chinonzi Pulmonary Atresia ine Intact Ventricular Septum?

Muchirwere ichi, valve yepulmonary yakavharwa zvachose kana kuti hainapo, ichidzivirira ropa kubva pakubuda kubva ku ventricle yekurudyi kuenda kumapfupa. Madziro ari pakati pekamuri dzepasi pemwoyo (ventricular septum) anoramba akasimba, izvo zvakasiyana nemamwe mamiriro emwoyo akafanana.

Mwoyo wemwana wako unoedza kudzora nekutumira ropa kuburikidza nezvimwe nzira, asi izvi hazvina kukwana kupa oksijeni yakakwana kumusoro. Ventricle yekurudyi, iyo kazhinji inotuma ropa kumapfupa, kazhinji inenge iri diki uye yakakora nekuti haigone kupomba ropa kunze zvakanaka.

Izvi zvinoita mamiriro akaoma umo ropa remwana wako rinotenderera zvinoenderana nekuyambuka kunoita kuti zvive nyore kumapfupa. Aya makwara ekuyambuka anova hupenyu kusvika pakurapwa kwegirazi kuchigona kuitwa.

Ndeapi Zviratidzo zvePulmonary Atresia ine Intact Ventricular Septum?

Vana vazhinji vane chirwere ichi vanoratidza zviratidzo mukati memaawa mashoma ekutanga kana mazuva ehupenyu, sezvo miviri yavo ichirwira kuwana ropa rakakwana rakaguta oksijeni. Ungacherechedza kuti mwana wako ari kutaridzika bhuruu kana grey, kunyanya kutenderera miromo, minwe, uye minwe yemunwe.

Aya ndiwo zviratidzo zvikuru zvaunogona kuona:

• Ruvara rweganda bhuruu kana grey (cyanosis), kunyanya kutenderera muromo neminwe yeminwe
• Kufema kukurumidza kana kuoma, kunyange kana mwana wako ari zororo
• Kudya kushoma kana kuneta nekukurumidza panguva yekudya
• Kurara kwakanyanya kana kutaridzika kushoma kupfuura zvaitarisirwa
• Makoto akatonyanya uye tsoka, kunyange kana kamuri iri inodziya
• Pulse yakasimba kana heart murmur yakawanikwa nachiremba wako

Vamwe vana vangaratidzawo zviratidzo zvekutadza kwemwoyo, kusanganisira kuzvimba mumitsipa, mudumbu, kana kutenderera maziso. Aya zviratidzo zvinoitika nekuti mwoyo uri kushanda zvakanyanya kupomba ropa, asi haugone kupa oksijeni yakakwana kusangana nezvinodiwa nemuviri.

Mukadiki, vamwe vana vangave vakataridzika vakadzikama pakutanga asi vozotanga zviratidzo sezvo zvinobatanidza zvakasikwa zvinobatsira ropa kuenda kumapfupa zvichivhara. Ndosaka kuongororwa nguva dzose muchipatara kwakakosha mumazuva ekutanga aya akakosha.

Chii Chinokonzera Pulmonary Atresia ine Intact Ventricular Septum?

Ichi chirwere chinoitika mukati memavhiki mashoma ekutanga ekuhwana kana mwoyo wemwana wako uri kuumbwa. Chikonzero chaicho hachizivikanwi zvizere, asi zvinoita sekunge chiitiko chisina kurongwa chinoitika panguva yekukura kwemwoyo.

Kazhinji zviitiko zvinoitika pasina chikonzero chakajeka kana chikonzero chakavanzika. Haisi chinhu chawakaita kana kuti hauna kuita panguva yekuzvitakura, uye hachina kukonzerwa nechinhu chawakadya, wakanywa, kana kuti wakatarisana nacho.

Kusiyana nemamwe mamiriro emwoyo, pulmonary atresia ine intact ventricular septum haina kuwanda mumhuri. Kazhinji kazhinji zviitiko zvinoitika mumhuri dzisina nhoroondo yematambudziko emwoyo.

Vatsvakurudzi vanofunga kuti zvinobva pakukanganiswa mumaitiro ekugadzira valve yemwoyo. Panguva yekuzvitakura kwekutanga, zvikamu zvemoyo zvichava valve yepulmonary hazvibude zvakanaka, zvichikonzera kuvhara.

Rini Kuona Chiremba wePulmonary Atresia ine Intact Ventricular Septum?

Ichi chirwere kazhinji chinoonekwa muchipatara mushure mekuberekwa, kazhinji mukati memaawa makumi maviri nemana ekutanga. Kana mwana wako akaratidza chero zviratidzo zvekuvaraidza bhuruu, kuoma kufema, kana matambudziko ekudya, kurapwa kwemishonga kunodiwa nekukurumidza.

Kurapwa kwekukurumidza kunodiwa kana ukaona mwana wako achitanga kuva bhuruu, ane dambudziko rekufema, kana kutaridzika akarara zvisina kujairika kana kuti asingapindure. Aya maratidzo anoratidza kuti mwana wako haana kuwana oksijeni yakakwana uye anoda kurapwa kwemishonga nekukurumidza.

Kana mwana wako akaonekwa aine chirwere ichi, nguva dzose kuongororwa ne cardiologist yevana kunokosha. Aya nyanzvi dzechiremba dzichaongorora basa remwoyo wemwana wako uye dzichatarisa nguva yakanaka yekuita chero maitiro anodiwa.

Kunyangwe mushure mekurapwa kwakabudirira, kuchengetedzwa nguva dzose kunokosha muhupenyu hwemwana wako. Cardiologist yako ichaita kuongororwa nguva dzose kuve nechokwadi chekuti mwoyo unoramba uchishanda zvakanaka uye kugadzirisa chero matambudziko matsva anogona kuitika.

Ndeapi Ngozi Dzinokonzera Pulmonary Atresia ine Intact Ventricular Septum?

Sezvo chirwere ichi chinoitika zvisina kurongwa panguva yekukura kwemwoyo, hapana ngozi dzakakosha dzaunogona kudzora kana kufanotaura. Vana vazhinji vanoberekwa nechirwere ichi havafaniri kuva nenhoroondo yemhuri yematambudziko emwoyo.

Zvimwe zvinhu zvinogona kuwedzera mukana zvishoma zvinosanganisira:

• Kuve nevamwe nhengo dzemhuri vane zvikanganiso zvemoyo (kunyange zvazvo izvi zvisingawanzoitika)
• Zvimwe zvirwere zvemajini, kunyange zvazvo izvi zvisingawanzoitika
• Diabetes yemubereki panguva yekuzvitakura
• Mishonga yakatorwa panguva yekuzvitakura kwekutanga

Zvakakosha kuyeuka kuti kunyangwe chero rimwe remamiriro aya aripo, kazhinji kazhinji vana vachine kukura kwemwoyo kwakajairika. Ichi chirwere chisingawanzoitika, uye kuva nengozi hazvirevi kuti mwana wako achabatwa nechokwadi.

Zera guru reamai uye zvimwe zvinhu zvakapoteredza zvakadzidzwa, asi hapana hukama hwakajeka hwakagadzirwa. Kusina kurongwa kwechirwere ichi kunoreva kuti kazhinji zviitiko zvinoitika pasina chero ngozi dzinozivikanwa.

Ndeapi Matambudziko Anogona Kuitika ePulmonary Atresia ine Intact Ventricular Septum?

Pasina kurapwa, chirwere ichi chinogona kukonzera matambudziko akakomba sezvo muviri wemwana wako uchirwira kuwana oksijeni yakakwana. Kunetseka kukuru ndekwekuti nhengo dzakakosha, kusanganisira uropi neitsvo, dzisingagamuchire ropa rakakwana rakaguta oksijeni.

Matambudziko makuru acho anotarwa nachiremba anosanganisira:

• Kuora kwemwoyo, umo mwoyo usingakwanisi kupomba zvakakwana kusangana nezvinodiwa nemuviri
• Zvirwere zvisina kujairika zvemoyo (arrhythmias) nekuda kwemwoyo unoshanda pasi pekumanikidzwa
• Ropa rinogwamba mumwoyo, izvo zvingafamba kuenda kune dzimwe nhengo
• Kukura kwakaremara uye kukura nekuda kwekutumira oksijeni kushoma
• Matambudziko etsvo kana chiropa kubva pakushomeka kweropa
• Stroke kana kukuvara kweuropi mumamiriro ezvinhu akakomba

Kunyangwe ne kurapwa, vamwe vana vangatarisana nematambudziko ekureba. Izvi zvingasanganisira kuderedzwa kwekuita zvemitambo, kudiwa kwemishonga inoramba ichitorwa, kana mamwe maitiro sezvo vakakura.

Nekudaro, nekurapwa kwakakodzera kwemishonga uye kuita nekukurumidza, akawanda ematambudziko aya anogona kudzivirirwa kana kutungamirwa zvakanaka. Kiyi ndeyekushanda pedyo nechikwata chako chekardiologi chevana kuti uongorore mamiriro emwana wako uye kugadzirisa chero matambudziko ekutanga.

Pulmonary Atresia ine Intact Ventricular Septum Inoratidzwa Sei?

Kuongororwa kunowanzo tanga kana vanachiremba vakaona zviratidzo zvematambudziko emwoyo panguva yekuongororwa kwevana vachangoberekwa kana vabereki vakaona zviratidzo zvinotyisa. Chiremba wemwana wako achazoteerera mwoyo uye anganzwa kurira kusina kujairika kana kuona ruvara rweganda bhuruu.

Kuongororwa kukuru kunoshandiswa kusimbisa kuongororwa ndeye echocardiogram, iyo inoshandisa mafungu ekuita mifananidzo yakadzama yemwoyo wemwana wako. Iyi bvunzo isina kurwadza inoratidza chimiro chemwoyo uye kuti ropa rinoyerera sei kuburikidza naro.

Kuongororwa kuwedzerwa kunogona kuitwa kunosanganisira:

• Chest X-ray kuona saizi nechimiro chemwoyo
• Electrocardiogram (ECG) kuongorora basa remagetsi remwoyo
• Pulse oximetry kuyera mazinga eoksijeni muropa
• Cardiac catheterization kuti uwane ruzivo rwakadzama nezvekunetseka kwemwoyo uye ropa rinoyerera

Dzimwe nguva chirwere ichi chinoonekwa usati waberekwa panguva yekuongororwa kwe ultrasound. Kana chakaonekwa usati waberekwa, chiremba wako achaita magadzirirwo ekurapwa kwakasarudzika kuti avepo nekukurumidza mushure mekuberekwa.

Maitiro ekuongorora anobatsira vanachiremba kunzwisisa zvinhu zvakakosha zvemamiriro emwana wako, kusanganisira saizi nebasa re ventricle yekurudyi, izvo zvakakosha pakuronga kurapwa.

Kurapa kwePulmonary Atresia ine Intact Ventricular Septum Chii?

Kurapwa kunotanga nekukurumidza mushure mekuongororwa nemishonga yekuchengetedza midziyero yeropa yakakosha yakavhurwa kusvika pakurapwa kwegirazi kuchigona kuitwa. Mishonga inonzi prostaglandin E1 inobatsira kuchengetedza ropa rinoyerera kumapfupa kuburikidza nekuyambuka kwakasikwa kwaizovhara mushure mekuberekwa.

Nzira huru yekurapa inosanganisira imwe kana dzakawanda nzira dzekurapa, zvichienderana ne anatomy chaiyo yemwana wako. Chinangwa ndechekugadzira nzira yeropa kuti risvike kumapfupa uye kuvandudza kuendesa oksijeni kumusoro.

Sarudzo dzekurapa dzakajairika dzinosanganisira:

• Balloon valvuloplasty, umo bharuni diki inovhura valve yepulmonary yakavharwa
• Blalock-Taussig shunt, iyo inogadzira hukama pakati pe arteries kuvandudza ropa rinoyerera kumapfupa
• Pulmonary valve replacement kana valve yakasikwa isingagone kugadziriswa
• Fontan procedure yezviitiko umo kugadziriswa kweventricle mbiri hazvibviri

Mwana wako angada maitiro akawanda kwemakore akawanda sezvo vakakura. Kuronga kwegirazi kunogadzirirwa zvakanyatsonaka kune anatomy chaiyo yemwoyo wemwana wako uye kuti ventricle yekurudyi inoshanda zvakanaka sei.

Pakati pemaitiro, mwana wako achafanirwa kuongororwa nguva dzose uye angada mishonga yekubatsira mwoyo kushanda zvakanaka. Vana vazhinji vanogona kubatanidzwa mumabasa akajairika, kunyange vamwe vangave vane miganho yekurovedza muviri.

Nzira Yekupa Kuchengetedza Kumba Panguva Yekurapwa?

Kutarisa mwana ane chirwere ichi kunoda kutarisisa kune zvinodiwa zvavo zvakasiyana, asi zvikamu zvakawanda zvekuchengetedza zuva nezuva zvinoramba zvakafanana nechemwana chero upi zvawo. Chikwata chako chekurapa chichapa mirairo chaiyo yekudya, basa, uye rini kutsvaka rubatsiro.

Zvinhu zvakakosha zvekuchengetedza kumba zvinosanganisira:

• Kupa mishonga chaizvo sezvakanyorwa, kunyange kana mwana wako achitaridzika kunge ari kuita zvakanaka
• Kuongorora kuchinja muvara reganda, kufema, kana maitiro ekudya
• Kuve nechokwadi chekuti mwana wako anowana chikafu chakakwana, izvo zvingada kudya kakawanda kadiki
• Kudzivirira hutachiona kuburikidza nekuchena kwakanaka uye kudzivirira vanhu vanorwara
• Kuchengetedza nguva dzose kuongororwa nechikwata chako chekardiologi

Vabereki vazhinji vanoona zvichibatsira kudzidza CPR yevana uye rubatsiro rwekutanga. Chipatara chako chingapa makirasi chaiwo evabereki vevana vane zvirwere zvemoyo.

Usanetseka kubata nechikwata chako chekurapa kana ukaona chero kuchinja mumamiriro emwana wako kana uine zvinotyisa. Vanoda kunzwa kubva kwauri nezvechinhu chidiki pane kusapotsa kuchinja kukuru.

Ungagadzirira Sei Kune Chiremba Wako?

Kugadzirira kuongororwa kwe cardiologist kunogona kukubatsira kuti uite zvakanyanya panguva yako nechikwata chekurapa uye kuve nechokwadi chekuti zvinotyisa zvako zvose zvakagadziriswa. Nyora mibvunzo yako usati watanga, sezviri nyore kukanganwa nyaya dzakakosha panguva yekuongororwa.

Usati wasvika,unganidza ruzivo nezve:

• Chero kuchinja mune zviratidzo zvemwana wako, kudya, kana mazinga ebasa
• Mishonga iripo uye kuti mwana wako anoiita sei
• Mibvunzo nezve kukura kwemwana wako uye mabasa ramangwana
• Zvinotyisa nezve maitiro anouya kana kurapwa

Uya ne rondedzero yemishonga yose, kusanganisira mazai ne nguva. Kana mwana wako akatora mishonga yakawanda, funga kuuya nemabhodhoro chaiwo kuti udzivise kusanzwisisana.

Usanetseka kubvunza mibvunzo yakawanda. Chikwata chako chekardiologi chinotarisira uye chinogamuchira mibvunzo kubva kuvabereki, uye kunzwisisa mamiriro emwana wako kunokubatsira kupa kuchengetedzwa kwakanaka kumba.

Chii Chinonyanya Kukosha Nezve Pulmonary Atresia ine Intact Ventricular Septum?

Kunyangwe kugamuchira kuongororwa kwe pulmonary atresia ine intact ventricular septum kunogona kunzwa kuchinetsa, zvakakosha kuziva kuti chirwere ichi chinorapwa nekurapwa kwemoyo kwazvino. Vana vazhinji vane chirwere ichi vanoramba vachirarama hupenyu hunoshanda, hunogutsa.

Kiyi yemigumisiro yakanaka ndeye kuongororwa nekukurumidza uye kurapwa ne nyanzvi dzemoyo dzevana dzine ruzivo. Chikwata chako chekurapa chichaita basa newe kugadzira chirongwa chekurapwa chakakodzera kune zvinodiwa nemwana wako.

Yeuka kuti hausi wega mu rwendo urwu. Chikwata chako chekardiologi, vanamukoti, nedzimwe nhengo dzekupa rubatsiro dziripo kukutungamira mune imwe nhanho yekuchengetedzwa kwemwana wako uye kupindura chero mibvunzo yaunogona kuva nayo.

Nekurapwa kwakakodzera kwemishonga, kuongororwa nguva dzose, uye rutsigiro rwako rwerudo, vana vane chirwere ichi vanogona kukura uye kubatanidzwa mumabasa akawanda ehudiki hwakaenzana. Rwendo rwemwana mumwe nemumwe rwakasiyana, asi tarisiro inoramba ichivandudzika nekufambira mberi mukuchengetedzwa kwemoyo kwevana.

Mibvunzo Inowanzo Bvunzwa Nezve Pulmonary Atresia ine Intact Ventricular Septum

Q1: Mwana wangu achazoita zvemitambo nemabasa emuviri here?

Vana vazhinji vane pulmonary atresia yakarapwa zvakanaka vanogona kubatanidzwa mumabasa emuviri, kunyange vamwe vangave vane miganho. Cardiologist yako ichaongorora basa remwoyo wemwana wako uye ichapa mirairo chaiyo nezvemazinga ebasa rakachengeteka. Vamwe vana vanogona kubatanidzwa mune zvemitambo yekukwikwidzana, nepo vamwe vangave vakarayirwa kudzivirira mabasa ane simba rakakura. Kiyi ndeyekuongororwa nguva dzose uye kutaurirana kwakavhurika nechikwata chako chekurapa nezve zvido zvemwana wako nezvikwanisiro.

Q2: Mwana wangu achazoita sei kuongororwa nguva dzose?

Magadzirirwo ekuongororwa anochinja zvichienderana nemamiriro chaiwo emwana wako uye nhanho yekurapwa. Pakutanga, kuongororwa kunogona kuva kazhinji (mavhiki mashoma kana mwedzi), asi sezvo mwana wako achizadzika, kushanya kazhinji kunenge kushoma. Vana vazhinji vachada kuongororwa kwe cardiologist kwenguva refu, kunyange zvazvo kuongororwa kunogona kupangwa gore rega rega kana makore mashoma. Cardiologist yako ichaona magadzirirwo akakodzera zvichienderana nezvinodiwa nemwana wako uye kuti vari kuita sei.

Q3: Vana vangu vekumangwana vangave nechirwere chimwe chete here?

Ngozi yekuve nemwana mumwe ane pulmonary atresia ine intact ventricular septum kazhinji yakaderera kwazvo, sezvo kazhinji zviitiko zvinoitika zvisina kurongwa pasina chikonzero chemajini. Nekudaro, mhuri dzine mwana mumwe ane chirwere chemwoyo dzine ngozi yakakwira zvishoma yekuve nemwana mumwe ane rudzi rwechirwere chemwoyo. Chiremba wako anogona kukurukura mamiriro ako chaiwo uye angakurudzira genetic counseling kana paine zvinotyisa nezve zvinhu zvinogona kuwira.

Q4: Ndinofanira kutarisa chii chingaratidza dambudziko?

Zviratidzo zvinokosha zvinosanganisira kuwedzera kweruvara rweganda bhuruu, miromo, kana minwe yeminwe, kuoma kufema kana kufema kukurumidza kupfuura zvakajairika, kudya kushoma kana kuderedzwa kwechido chekudya, kusagadzikana kwakasiyana kana kurara, uye kuzvimba kumeso, maoko, kana tsoka. Chero kuchinja kukuru mumaitiro akajairika emwana wako kunoda kufona kune chikwata chako chekardiologi. Tenda pfungwa dzako sevabereki - kana chimwe chinhu chichiita sekasiyana kana chinotyisa, zviri nani nguva dzose kubvunza chikwata chako chekurapa.

Q5: Mwana wangu achafanirwa kutora mishonga kwenguva refu here?

Zvinodiwa nemishonga zvinosiyana zvikuru zvichienderana nemamiriro chaiwo emwana wako uye kuti mwoyo wavo unoshanda zvakanaka sei mushure mekurapwa. Vamwe vana vangada mishonga kwemakore akawanda, nepo vamwe vangangoda chete kwenguva pfupi. Mishonga yakajairika ingasanganisira iyo inobatsira mwoyo kupomba zvakanyanya, kudzivirira ropa rinogwamba, kana kudzora heart rhythm. Cardiologist yako ichaongorora mishonga yemwana wako nguva dzose uye ichaigadzirisa sezvinodiwa zvichienderana nekukura kwavo nebasa remwoyo.