Chii Chinonzi Pulmonary Atresia ine Ventricular Septal Defect? Zviratidzo, Zvinokonzera, & Kurapa

Pulmonary atresia ine ventricular septal defect chirwere chakakomba chemwoyo chevana vanoberekwa nacho, apo valve yepulmonary haiuke zvakanaka uye pane gomba pakati pekamuri huru yekupomba kwemwoyo. Izvi zvinoreva kuti ropa risina oksijeni harigone kuyerera zvakanaka kubva mumwoyo kuenda kumapapu kuti riwane oksijeni.

Fungidzira mwoyo wako seune makamuri mana ane magedhi pakati pavo. Muchirwere ichi, rimwe remagedhi iwayo (pulmonary valve) rakavharwa zvachose, uye pane kuvhurika pakati pemakoma maviri asina kuifanira kuvapo. Izvi zvinoita mamiriro akaoma apo mwoyo wemwana wako unofanira kushanda zvakanyanya kuti uwane oksijeni kumuviri.

Chii Chinonzi Pulmonary Atresia ine Ventricular Septal Defect?

Pulmonary atresia ine ventricular septal defect (PA-VSD) inoitika kana zvirwere zviviri zvemoyo zvikaitika pamwe chete kubva pakuberekwa. Pulmonary valve, iyo inofanira kuvhura kuti irege ropa kuyerera kubva mumwoyo kuenda kumapapu, yakavharwa zvachose kana kuti hainapo.

Panguva imwe chete, pane gomba pakati (septum) rinoparadzanisa makamuri maviri epasi emwoyo (ventricles). Musanganiswa uyu unoita kuti zviome kwazvo kuti ropa risvike kumapapu kuti riwane oksijeni.

Muviri wemwana wako unoedza kudzora nekugadzira ropa rutsva runonzi collateral circulation. Nzira idzi dzakawedzerwa dzinobatsira ropa kuti risvike kumapapu, asi hadzisi dzakanaka senge nzira yakajairwa.

Chirwere ichi chinotapura vana vanenge 1 pane vane 10,000 vanoberekwa. Kunyangwe zvichinzwa zvakanyanya, kufambira mberi mukuvhiya kwemwoyo wevana kwakaita kuti kurapwa kuve kwakabudirira zvikuru kupfuura kare.

Ndeapi Zviratidzo zvePulmonary Atresia ine Ventricular Septal Defect?

Zviratidzo zvePA-VSD zvinowanzooneka mukati memazuva mashoma ekutanga kana mavhiki ehupenyu hwemwana wako. Ungacherechedza ganda remwana wako, miromo, kana misumari ichichinja ruvara kuita bhuruu, kunyanya panguva yekuchema kana kudya.

Heano zviratidzo zvikuru zvekucherechedza:

• Ruvara rwebhuruu paganda, miromo, kana misumari (cyanosis)
• Kunetseka kufema kana kufema nekukurumidza
• Kudya zvishoma kana kuneta nekukurumidza panguva yekudya
• Kukundikana kuwedzera uremu zvakanaka
• Kuwedzera kushatirwa kana kuchema
• Clubbing yeminwe nemaoko (minwe inorova uye inokura)
• Kuora mwoyo kana zviitiko apo mwana wako anova asina simba

Vamwe vana vanogonawo kuve nekuoma kwakanyanya senge kukundikana kwemwoyo, apo mwoyo unotadza kupomba ropa zvakanaka. Muzviitiko zvisingawanzoitika, vana vanogona kuve nehutachiona hwepfungwa kana kurohwa nekuda kwema clots eropa.

Kukomba kwezviratidzo kunogona kusiyana zvikuru zvichienderana nekuti ropa ringani rinokwanisa kusvika kumapapu kuburikidza nenhambo dzakasiyana dzataurwa kare.

Ndeapi Marudzi ePulmonary Atresia ine Ventricular Septal Defect?

Vanachiremba vanowanzoisa PA-VSD maererano nekuti ropa rinokwanisa sei kusvika kumapapu uye anatomy chaiyo yemwoyo wemwana mumwe nemumwe. Kupokana kukuru ndekwekuti mwana wako ane ropa rakakwana rinoyerera kuenda kumapapu kana kuti kwete.

Rudzi 1 rinosanganisira vana vane ropa rakanaka re collateral rinogadzirwa zvakasikwa kuti ripe mapapu. Nzira idzi dzakasiyana dzinogona kupa ropa rakanaka, kunyangwe risina kukwana semwoyo wakajairwa.

Rudzi 2 rinosanganisira vana vane collateral circulation isina kunaka kana isina kukwana. Vana ava vanowanzotoda kurapwa nekukurumidza nekuti mapapu avo haana kuwana ropa rakakwana.

Panewo kusiyana maererano nekuti mapapu makuru emapapu (midziyo mikuru inotakura ropa kuenda kumupapu mumwe nemumwe) akakura zvakanaka kana kuti madiki. Vana vane mapapu makuru, akagadzirwa zvakanaka vanowanzova nezvibereko zvakanaka.

Cardiologist yemwana wako ichaona kuti rudzi rupi rwuripo kuburikidza nekuongorora kwakakwana, izvo zvinobatsira kutungamira chirongwa chekurapa.

Chii Chinokonzera Pulmonary Atresia ine Ventricular Septal Defect?

PA-VSD inokura mukati memavhiki masere ekutanga ekuhwana apo mwoyo wemwana wako uri kugadzirwa. Chikonzero chaicho hachizivikanwi zvizere, asi zvinoita sekunge chiri musanganiswa wezvinhu zvemagariro neezvakatipoteredza.

Kazhinji kazhinji zvinoitika pasina chikonzero chakajeka. Zvikamu zvemoyo wemwana wako hazvigadzirwe zvakanaka mukati memavhiki iwayo ekutanga apo nhengo dziri kugadzirwa.

Heano mamwe mamiriro anogona kuwedzera njodzi:

• Zvirwere zvemagariro senge DiGeorge syndrome kana CHARGE syndrome
• Nhoroondo yemhuri yezvirwere zvemoyo zvevana
• Chirwere cheshuga cheamai panguva yekuzvitakura
• Mishonga yakatorwa panguva yekuzvitakura kwekutanga
• Zvirwere zveamai senge rubella panguva yekuzvitakura
• Kushandisa doro neamai panguva yekuzvitakura
• Zera raamai rakakura (kupfuura 35)

Muzviitiko zvisingawanzoitika, PA-VSD inogona kuva chikamu chechirwere chikuru chemagariro chinotapura masisitimu akawanda emuviri. Nekudaro, vana vazhinji vane chirwere ichi vane chirema chemwoyo chete.

Zvakakosha kuziva kuti hapana chawakaita kana kusaita panguva yekuzvitakura chakakonzera chirwere ichi. Zvirwere zvemoyo senge PA-VSD zvinoitika panguva yekuzvitakura kwekutanga, kazhinji usati watoziva kuti uri kutarisira.

Rini Unofanira Kuona Chiremba wePulmonary Atresia ine Ventricular Septal Defect?

PA-VSD inowanzoonekwa panguva yekuzvitakura kuburikidza nekuongororwa kwe ultrasound, kazhinji pakati pevhiki 18-22. Kana zvikafungidzirwa, chiremba wako achaodha ultrasound chaiyo inonzi fetal echocardiogram kuti awane mifananidzo yakakwana yemwoyo wemwana wako.

Mushure mekuberekwa, kuongororwa kunosanganisira bvunzo dzakawanda kunzwisisa anatomy chaiyo yemwoyo wemwana wako. Ruvara rweganda remwana wako, maitiro ekufemera, uye zvinetso zvekuyamwisa zvinowanzopa mazano ekutanga kuti chimwe chinhu chinoda kutarisirwa.

Maitiro ekuongorora anowanzo sanganisira:

1. Kuongororwa kwemuviri uye kuteerera mwoyo
2. Chest X-ray kuona saizi yemwoyo uye ropa rinoyerera kumapapu
3. Echocardiogram (ultrasound yemwoyo) yezvakakwana zvemoyo
4. Electrocardiogram (EKG) kuongorora rhythm yemwoyo
5. Pulse oximetry kuyera mazinga eoksijeni
6. Cardiac catheterization kune zviyero zvakakwana
7. MRI kana CT scan kune mifananidzo yakakwana

Cardiac catheterization inokosha zvikuru nekuti inobvumira vanachiremba kuona chaizvo kuti ropa rinoyerera sei mumwoyo wemwana wako uye kuyera kumanikidza mumakamuri akasiyana. Ruzivo urwu runokosha pakuronga kurapa.

Cardiologist yemwana wako ichaongororawo chero mamiriro ezvemagariro kana zvimwe zvirwere zvemoyo zvingavepo. Kuongororwa uku kwakakwana kunobatsira kugadzira chirongwa chekurapa chakakodzera mamiriro chaiwo emwana wako.

Chii Chinonzi Kurapa kwePulmonary Atresia ine Ventricular Septal Defect?

Kurapa kwePA-VSD kunowanzo sanganisira kuvhiya, asi nguva uye nzira zvinoenderana nemamiriro chaiwo emwana wako nezviratidzo. Chinangwa ndechekubatsira ropa rakawanda kusvika kumapapu uye kuderedza basa remwoyo wemwana wako.

Vana vazhinji vanoda kuvhiya kwavo kwekutanga mukati memavhiki mashoma ekutanga ehupenyu. Iyi nzira yekutanga, inowanzotaurwa seBlalock-Taussig shunt, inogadzira nzira itsva yeropa kuti risvike kumapapu uchishandisa chubhu duku.

Chirongwa chekurapa chakazara chinowanzo sanganisira kuvhiya kakawanda kwemakore akati wandei:

1. Kuvhiya kwekutanga kwe shunt (kazhinji mumavhiki ekutanga ehupenyu)
2. Kuvhiya pakati kuti kuvandudze ropa rinoyerera kuenda kumapapu (anenge 4-6 mwedzi)
3. Kuvhiya kwakakwana (kazhinji pakati pemwedzi 6 kusvika ku2)
4. Kuvhiya kwakawedzerwa sezvo mwana wako achikura

Pakati pekuvhiya, mwana wako achafanira mishonga kubatsira mwoyo kushanda zvakanaka uye kudzivirira matambudziko. Izvi zvinogona kusanganisira diuretics kuderedza kuunganidzwa kwemvura uye mishonga yekusimbisa kuita kwemwoyo.

Vamwe vana vanogona kuda mamwe maitiro senge balloon angioplasty kuvhura midziyo yeropa yakamanikana kana kuisa chishandiso kuvhara kusangana kwakasiyana pakati pemidziyo yeropa.

Timu yekuvhiya ichaita basa rakanaka newe kuti iite nguva yekuvhiya zvakanaka, ichifunga kukura kwemwana wako, zviratidzo, uye hutano hwese. Kuvhiya kwemwoyo wevana kwazvino kwakabudirira kwazvo pakugadzirisa PA-VSD.

Nzira Yekupa Kutarisa Kumba Panguva yePulmonary Atresia ine Ventricular Septal Defect?

Kutarisira mwana ane PA-VSD kumba kunoda kutarisirwa kwakakosha, asi mhuri dzakawanda dzinogona kugadzirisa zvakanaka nekurudziro yakakodzera. Chinangwa chako chikuru chichava kucherechedza zviratidzo zvemwana wako uye kuve nechokwadi chekuti anowana chikafu chakakwana nezororo.

Kudya kunogona kuva dambudziko nekuti vana vane PA-VSD vanowanzo neta nekukurumidza. Papei zviduku, zvakawanda zvekudya uye funga nezvemafomula ane macalorie akawanda kana chiremba wako akakurudzira kuti akubatsire kuwedzera uremu.

Heano zvinhu zvikuru zvekuchengetedza kumba:

• Cherechedza ruvara rweganda, kunyanya pamativi e miromo nemisumari
• Tarisa shanduko mumaitiro ekufemera
• Tevera kuwedzera uremu nemaitiro ekudya
• Papei mishonga sezvakanyorwa
• Dzivisa hutachiona nekuchena kwakanaka
• Deredza kuonana nevanhu vane chirwere kana zvichibvira
• Chengetera maitiro ekurara akajairika
• Tevera miganho yekufamba sezvakarayirwa

Chengeta rekodhi yezuva nezuva yezviratidzo zvemwana wako, huwandu hwekudya, uye chero shanduko dzinoshamisa. Ruzivo urwu runobatsira timu yako yekurapa kuita sarudzo dzakakodzera pamusoro penguva yekurapa uye kugadzirisa.

Gadzira nharaunda yakadzikama, inotsigira kumba. Vana vane zvirwere zvemoyo vanowanzoita zvakanaka nemaitiro akajairika uye kushushikana kushoma. Usanetseka kukumbira mhuri neshamwari rubatsiro mumabasa ezuva nezuva kuitira kuti ugone kuisa pfungwa pakutarisira kwemwana wako.

Ungagadzirira Sei Kune Chiremba Wako?

Kuagadzirira misangano yekardiyology kunobatsira kuve nechokwadi chekuti unowana zvakanyanya kubva kumusangano mumwe nemumwe uye usakanganwa mibvunzo yakakosha kana zvinetso. Chengeta rondedzero yekuona nezvemamiriro emwana wako pakati pemisangano.

Uyai nerekodhi yakazara yekurapa kwemwana wako, kusanganisira chero bvunzo dzichangobva kuitwa kana maitiro kubva kune vamwe vanachiremba. Kana wanga uchichengeta dhayari yezviratidzo, uyai nayo sezvo ich kupa ruzivo rwakakosha nezvemaitiro uye shanduko.

Heano zvaunofanira kugadzirira usati wasangana:

• Rondedzero yemishonga iripo uye huwandu
• Mibvunzo nezvemamiriro emwana wako nekurapa
• Zvinetso nezviratidzo kana shanduko dzemafambiro
• Ruzivo nezvekudya, kukura, uye kukura
• Makadhi einishuwarenzi uye mapepa anodiwa
• Ruzivo rwekukurumidzira
• Zvinhu zvinonyaradza zvemwana wako

Nyora mibvunzo yakakosha usati watanga, senge kubvunza nezvemiganho yekufamba, kana kuvhiya kunotevera kungadiwa, kana kuti zviratidzo zvipi zvinoda kutarisirwa nekukurumidza. Usanetseka kubvunza mibvunzo yakawanda - timu yako yekurapa inoda kuti uve neruzivo.

Funga kuuya nemhuri kana shamwari kuti ikutsigire, kunyanya panguva yemisangano apo zvisarudzo zvikuru zvichakurukurwa. Kuve nemunhu mumwe chete aripo kunogona kukubatsira kuyeuka ruzivo rwakakosha uye kupa rutsigiro rwemanzwiro.

Chii Chinonyanya Kukosha Nezve Pulmonary Atresia ine Ventricular Septal Defect?

PA-VSD chirwere chakakomba chemwoyo chinoda kutarisirwa kwakakosha kwemishonga uye kuvhiya kakawanda panguva. Kunyangwe kuongororwa kuchinzwa kwakanyanya, kufambira mberi mukuvhiya kwemwoyo wevana kwakavandudza zvikuru zvibereko zvevana vane chirwere ichi.

Vana vazhinji vane PA-VSD vanogona kurarama hupenyu hwazvo hwese, hwakanangana ne kurapwa kwakakodzera nekutarisirwa kwenguva refu. Chinhu chikuru ndechekubata basa ne timu yako yekardiyology ye vana uye kutevera mazano avo ekurapa uye kutarisirwa kwenguva refu.

Rwendo rwemwana wako ruchave rwakasiyana, uye marongero ekurapa anogadzirirwa mamiriro emumwe nemumwe. Vamwe vana vanogona kuda mamwe maitiro kupfuura vamwe, asi chinangwa nguva dzose ndechekubatsira mwana wako kuwana hupenyu hwakanaka zvikuru.

Yeuka kuti hausi wega murwendo urwu. Timu yako yekurapa, mhuri, uye mapoka ekutsigira anogona kupa rubatsiro rwakakosha nekukurudzira. Mhuri dzakawanda dzinowana kubatsirwa nekubatanidza nevamwe vakafamba nzira iyi kare.

Mibvunzo Inowanzo Bvunzwa Nezve Pulmonary Atresia ine Ventricular Septal Defect

Mwana wangu ane PA-VSD anogona kurarama hupenyu hunowanzoitika here?

Vana vazhinji vane PA-VSD vanogona kurarama hupenyu hwazvo hwese, hwakanangana ne kurapwa kwakabudirira. Kunyangwe vachida kutarisirwa kwenguva refu kwemwoyo uye vangave nemiganho yekufamba, vazhinji vanogona kubatanidzwa muchikoro, mitambo, uye mamwe maitiro evana. Chinhu chikuru ndechekubata basa ne timu yako yekurapa kuti utarise mamiriro acho zvakanaka uye uongorore chero shanduko panguva.

Mangani kuvhiya mwana wangu achafanira kuita?

Vana vazhinji vane PA-VSD vanoda kuvhiya 2-3 kukuru mukati memakore avo ekutanga ehupenyu, nemukana wemamwe maitiro sezvo vakura. Nhamba chaiyo inotsamira pane anatomy chaiyo yemwana wako uye kuti vanopindura sei kurapwa. Chiremba wako wekuvhiya achakukurukura nzira yekuvhiya yakarongwa uye kukubatsira kunzwisisa zvaunofanira kutarisira pane imwe neimwe nhanho.

Ndeapi maitiro ekureba kwePA-VSD?

Nekurapwa kwakabudirira, vana vazhinji vane PA-VSD vanogona kutarisira zvibereko zvakanaka zvekureba. Nekudaro, vacharamba vachida kutarisirwa kwenguva refu kwemwoyo kuti vaongorore basa remwoyo uye vatarisire matambudziko anogona kuitika. Vamwe vanogona kuve nemiganho yekufamba kana kuda mamwe maitiro gare gare muhupenyu, asi vazhinji vanotungamira hupenyu hunowanzoitika nekutarisirwa kwakakodzera.

PA-VSD inogona kudzivirirwa here?

Parizvino, hapana nzira yekudzivirira PA-VSD sezvo inokura panguva yekuzvitakura kwekutanga nekuda kwezvinhu zvakanyanya kunze kwekudzora kwemunhu. Nekudaro, kuchengetedza kutarisirwa kwakanaka kwekuzvitakura, kutonga chirwere cheshuga kana chiripo, kudzivirira doro nekutsivira panguva yekuzvitakura, uye kutora zvinowedzerwa zvefolic acid zvinogona kutsigira kukura kwakanaka kwemwana.

PA-VSD ichaita sei pamusoro pekukura kwemwana wangu nekukura?

Usati wava kuvhiya, vana vane PA-VSD vanowanzova nekuwedzera uremu kwakaderera uye vanogona kusvika kuma milestones ekukura gare gare kupfuura zvakajairwa. Mushure mekurapwa kwakabudirira, vana vazhinji vanokurumidza kukura mukukura nekukura. Timu yako yekurapa ichaongorora nzvimbo idzi pedyo uye ichapa rubatsiro kana zvichidiwa kubatsira mwana wako kusvika pakukura kwake kwazvo.