Ubuthakathaka Bokukhula Baka-Still? Izimpawu, Izimbangela, Nokwelapha

Ubuthakathaka Bokukhula Baka-Still buyisimo esingavamile sokuvuvukala esibangela ubushushu obukhulu bomzimba, ubuhlungu bezingqondo, kanye nokukhishwa okubomvu okufana nesalmon. Empeleni yinguqulo yabantu abadala yesimo sobuntwana esibizwa ngokuthi i-arthritis systemic juvenile idiopathic, nakuba singabonakala okokuqala kubantu abadala abangobani nawo wonke ubudala.

Lesi simo sithinta isimo sakho sokuvikela umzimba, sibangela ukuba sisebenze kakhulu futhi sihlasela izicubu eziphilile emzimbeni wakho. Nakuba kuzwakala kukhathaza, abantu abaningi abane-Adult Still's disease bangalawula izimpawu zabo ngokuphumelelayo ngokwelashwa okuqondile futhi baphile impilo egcwele, esebenzayo.

Ziyini izimpawu zobuthakathaka Bokukhula Baka-Still?

Izimpawu zobuthakathaka Bokukhula Baka-Still zivame ukuza ngamaza, ngezikhathi zokugula okuqhubekayo okulandelelwa izikhathi lapho uzizwa ukhulu kangcono. Izibonakaliso ezivamile zihlanganisa ubuhlungu bomzimba obukhulu, ubuhlungu bezingqondo, kanye nokukhishwa okubomvu okubomvu okuza nokuhamba.

Nawa izimpawu eziyinhloko ongazihlangabezana nazo, uqala ngezivamile kakhulu:

• Ubushushu bomzimba obukhulu obukhulu: Ubushushu bomzimba bemihla ngemihla obufinyelela ku-102°F (39°C) noma ngaphezulu, ngokuvamile buvela ntambama noma kusihlwa
• Ukukhishwa okubomvu okufana nesalmon: Ukukhishwa okubomvu okubomvu noma okufana nesalmon okuvela nokuhamba, ngokuvamile kubonakala kakhulu lapho ubushushu bomzimba bakho bukhulu
• Ubuhlungu bezingqondo nokukhulu: Ngokukhethekile kuqeda izingqondo zakho, amadolo, nezinyawo, nakuba noma iyiphi ingqondo ingabandakanyeka
• Ubuhlungu bomphimbo: Ubuhlungu bomphimbo obuqhubekayo, obukhulu obungaphenduli ekwelapheni okuvamile
• Ubuhlungu bemisipha: Ubuhlungu bemisipha obukhulu nobuhlungu emzimbeni wakho wonke
• Ukukhathala: Ukukhathala okukhulu okungathuthuki ngokuphumula
• Ama-lymph nodes akhulu: Ama-lymph nodes akhulu, ikakhulukazi endaweni yomphimbo wakho

Abanye abantu nabo bahlangabezana nezimpawu ezingavamile njengobunhlungu besisu, ukwehla kwesisindo, noma ubuhlungu esifubeni. Izimpawu zingaba nzima kakhulu phakathi kokukhulu, kodwa khumbula ukuthi kukhona ukwelashwa okuphumelelayo okuzokusiza uzizwe kangcono.

Yini ebangela ubuthakathaka Bokukhula Baka-Still?

Imbangela eqondile yobuthakathaka Bokukhula Baka-Still ayaziwa, kodwa abacwaningi bakholelwa ukuthi buvela lapho isimo sakho sokuvikela umzimba sidideka futhi siqala ukuhlasela izicubu zakho eziphilile. Lokhu kudala ukuvuvukala okubangela zonke lezo zimpawu ezingathandeki ozibhekana nazo.

Izici eziningana zingase zibangele lokhu kudida kwesimo sokuvikela umzimba:

• Ukutheleleka: Ukutheleleka okuthile kwe-viral noma i-bacterial kungase kubangele lesi simo kubantu abasenesikhathi eside bekhona
• Izici ze-genetic: Abanye abantu abathile benza abanye abantu babe sengozini enkulu, nakuba kungadluliselwa ngqo
• Izici zezindawo eziqophi: Ukuqina, ezinye izifo, noma izici zezindawo eziqophi zingase zidlale indima kwezinye izimo

Kubalulekile ukuqonda ukuthi ubuthakathaka Bokukhula Baka-Still abuluthwali, futhi awenzanga lutho ukububangela. Ngezinye izikhathi lezi zimo zokuvuvukala komzimba nje zivela, ngisho nakubantu abaphilile ngaphambili.

Nini okufanele ubona udokotela ngenxa yobuthakathaka Bokukhula Baka-Still?

Kufanele ubona udokotela ngokushesha uma uthola ukuhlanganiswa kobushushu bomzimba obukhulu bemihla ngemihla, ubuhlungu bezingqondo, nokukhishwa okubomvu okuza nokuhamba. Lezi zimpawu ndawonye, ikakhulukazi uma ziqhubeka izinsuku ezimbalwa, zidinga ukunakekelwa kwezokwelapha.

Funani ukunakekelwa kwezokwelapha ngokushesha uma uhlangabezana nalokhu:

• Ubushushu bomzimba obungaphezulu ku-102°F (39°C) obuvela imihla ngemihla ngaphezulu kweviki
• Ubuhlungu bezingqondo obukhulu obuvimba ukunyakaza kwakho
• Ubunzima bokuqeda umoya noma ubuhlungu esifubeni
• Ubunhlungu besisu obukhulu
• Izibonakaliso zesifo esinzima njengokudideka noma ukubuthakathaka okukhulu

Ungalindi uma uzizwa ungaphilile kakhulu. Ukuxilongwa kokusenesikhathi nokwelashwa kungavimbela izinkinga futhi kukusize uzizwe kangcono ngokushesha.

Ziyini izinto ezingase zikubangele ubuthakathaka Bokukhula Baka-Still?

Ubuthakathaka Bokukhula Baka-Still bungathinta noma ubani, kodwa izici ezithile zingase zikhulise amathuba akho okukhula kwalesi simo. Ukuqonda lezi zinto ezingase zikubangele kungakusiza uqaphele izimpawu ngokushesha uma zivela.

Izinto eziyinhloko ezingase zikubangele zihlanganisa:

• Iminyaka: Ngokuvamile ithonya abantu abaneminyaka engama-15-25 kanye nama-35-45, nakuba ingase ivela kunoma iyiphi iminyaka yobudala
• Ubulili: Abafazi banethuba elikhulu lokukhula kwalesi simo kunamadoda
• Ukutheleleka kwamuva: Abanye abantu bathuthukisa izimpawu ngemuva kokutheleleka kwe-viral noma i-bacterial
• Umlando womndeni: Nakuba kungavamile, ukuba nezihlobo ezinezimo zokuvuvukala komzimba kungase kukhulise ingozi kancane

Khumbula ukuthi ukuba nezinto ezingase zikubangele akusho ukuthi uzokuthuthukisa ngokuqinisekile ubuthakathaka Bokukhula Baka-Still. Abantu abaningi abanezi zinto ezingase zikubangele abazuthuthukisi lesi simo, kanti abanye abangenazo izinto ezingase zikubangele ezibonakalayo bayazithuthukisa.

Ziyini izinkinga ezingase zenzeke ngenxa yobuthakathaka Bokukhula Baka-Still?

Nakuba abantu abaningi abane-Adult Still's disease balawula kahle ngokwelashwa, kuyinto evamile ukubuza ngezinkinga ezingase zenzeke. Ukuqonda lezi zinto ezingase zenzeke kungakusiza usebenze nodokotela wakho ukuze uzivimbele.

Izinkinga ezivamile kakhulu zihlanganisa:

• I-arthritis eqhubekayo: Ukuvuvukala kwezingqondo okuqhubeka futhi kungase kubangele ukonakala kwezingqondo isikhathi eside uma kungelashwa kahle
• Izinkinga zenhliziyo: Ukuvuvukala kwemisipha yenhliziyo (myocarditis) noma isikhwama esizungezile inhliziyo (pericarditis)
• Izinkinga zephunga: Ukuvuvukala kwamaphaphu noma amanzi amaphaphu, angase abangele ubunzima bokuqeda umoya
• Izinkinga zesibindi: Ama-enzymes esibindi aphezulu noma ukuvuvukala kwesibindi, ngokuvamile kuhlobene nesifo noma imithi

Izinkinga ezingavamile kodwa ezinzima zingase zihlanganise:

• I-Macrophage activation syndrome: Isimo esiyingozi lokuphila lapho amaseli okuvikela umzimba eba asebenza kakhulu
• Ukutheleleka okunzima: Ingozi enkulu ngenxa yokucindezelwa kwesimo sokuvikela umzimba ngemithi
• Izifo zegazi: Izinkinga zokukhiqizwa kwamaseli egazi ezimweni ezingavamile

Izindaba ezinhle ukuthi ngokunakekelwa okuqondile nokwelashwa, izinkinga eziningi zingavikeleka noma ziphathwe kahle. Iqembu lakho lokukhathalela impilo lizobaqaphele lezi zinkinga futhi lilungise ukwelashwa kwakho njengoba kudingeka.

Ubuthakathaka Bokukhula Baka-Still buxilongwa kanjani?

Ukuxilongwa kobuthakathaka Bokukhula Baka-Still kungaba inselele ngoba ayikho i-test eyodwa eqinisekisa. Udokotela wakho uzodinga ukukhipha ezinye izimo ezibangela izimpawu ezifanayo, njengokutheleleka, ezinye izifo zokuvuvukala komzimba, kanye nezinye izinhlobo zomdlavuza.

Inkqubo yokuxilongwa ngokuvamile ihlanganisa:

• Ukuhlolwa komzimba: Udokotela wakho uzohlola ukukhishwa okubomvu, izingqondo ezikhulu, nama-lymph nodes akhulu
• Izivivinyo zegazi: Lezi zivivinyo ziqapha izibonakaliso zokuvuvukala, zikhiphe ukutheleleka, futhi zibheke izibonakaliso ezithile
• Izifundo zokuthwebula izithombe: Ama-X-rays, ama-CT scans, noma ama-MRI angase enziwe ukuhlola izingqondo zakho, isifuba, kanye nesisu
• Ukugcina irekhodi lezimpawu: Ukubhala phansi iphethini yobushushu bomzimba bakho, ukukhishwa okubomvu, nezinye izimpawu

Udokotela wakho uzosebenzisa izindinganiso ezimiswe kahle ezidinga ukuhlanganiswa okuthile kwezimpawu, imiphumela yezivivinyo zegazi, nokungabikho kwezinye izimo. Le nqubo ithatha isikhathi, kodwa kubalulekile ukuthola ukuxilongwa okuqondile ukuze uthole ukwelashwa okuphumelelayo.

Kuyini ukwelashwa kobuthakathaka Bokukhula Baka-Still?

Ukwelashwa kobuthakathaka Bokukhula Baka-Still kugxile ekulawuleni ukuvuvukala, ukulawula izimpawu, nokuvimbela izinkinga. Izindaba ezinhle ukuthi kukhona ukwelashwa okuphumelelayo okuningi okutholakala, futhi abantu abaningi babona ukuthuthuka okukhulu ngendlela efanele.

Uhlelo lwakho lokwelashwa luzofaka:

• Imithi yokulwa nokuvuvukala engalawulwa ngemithi (NSAIDs): Ibuprofen enkulu noma i-naproxen ukunciphisa ukuvuvukala nobuhlungu
• Ama-corticosteroids: I-Prednisone noma imithi efanayo yezimpawu ezinzima noma lapho ama-NSAIDs anganele
• Imithi yokuguqula isifo: I-Methotrexate noma ezinye imithi ukusiza ukulawula izinkinga zesimo sokuvikela umzimba
• Imithi ye-Biologic: Imithi emisha efana ne-anakinra noma i-tocilizumab yezimo ezinzima zokwelapha

Ngezinye izinkinga ezingavamile, ukwelashwa okwengeziwe kungase kuhlanganise:

• Ukuvinjelwa kokusebenza komzimba okunzima: Ngenxa yokuthinteka komzimba okunzima
• I-Plasmapheresis: Inkqubo yokusika izinto zokuvuvukala egazini lakho
• Ukungeniswa esibhedlela: Ngenxa yezinkinga ezinzima ezidinga ukunakekelwa okuqondile

Udokotela wakho uzoqala ngokwelashwa okulula futhi alungise ngokusekelwe endleleni ophendula ngayo. Abantu abaningi bathola impumuzo ngama-NSAIDs nama-steroids, kanti abanye badinga ukwelashwa okuthuthukile.

Ungalawula kanjani ubuthakathaka Bokukhula Baka-Still ekhaya?

Nakuba ukwelashwa kwezokwelapha kubalulekile, kunezinto eziningi ongazenza ekhaya ukusiza ukulawula izimpawu zakho nokuthuthukisa ikhwalithi yempilo yakho. Lezi zindlela zokunakekela ziphumelela kakhulu kanye nemithi yakho eyalwe.

Nawa amanyathelo awusizo ongawathatha:

• Phumula uma udinga: Lalela umzimba wakho futhi ungaphuli ukukhathala okukhulu phakathi kokukhulu
• Faka ubushushu noma ubuqandayo: Sebenzisa ama-heating pads ezingqondweni eziqine noma ama-ice packs ezindaweni ezikhulu, ezibuhlungu
• Hlala unamanzi: Phuza amanzi amaningi, ikakhulukazi phakathi kokukhulu
• Ukuzivocavoca okulula: Ukuqina okulula, ukubhukuda, noma ukuhamba kungasiza ekuqondeni ukuguquguquka kwezingqondo
• Ukulawula ukucindezeleka: Sebenzisa izindlela zokupumula, ukucamngca, noma ezinye izindlela zokunciphisa ukucindezeleka
• Gcina irekhodi lezimpawu zakho: Gcina idayari yobushushu bomzimba, ukubonakala kokukhishwa okubomvu, nobuhlungu bezingqondo ukusiza udokotela wakho

Khumbula ukuthatha imithi yakho ngokuqondile njengoba iyalwe, ngisho nalapho uzizwa kangcono. Ukumisa ukwelashwa ngokushesha kakhulu kungase kubangele ukukhulu kwezimpawu.

Kufanele ulungiselele kanjani i-appointment yakho nodokotela?

Ukulungiselela kahle izivivinyo zakho zodokotela kungakusiza uthole okuningi kakhulu ezivivinyweni zakho futhi kuqinisekise ukuthi iqembu lakho lokukhathalela impilo lineyonke imininingwane elidinga yona. Njengoba izimpawu zobuthakathaka Bokukhula Baka-Still zingaba yizinto eziyinkimbinkimbi futhi ezihlukahlukene, ukulungiselela okuhle kubalulekile kakhulu.

Ngaphambi kwe-appointment yakho:

• Bhala izimpawu zakho: Bhala phansi ukuthi ubushushu bomzimba buvela nini, bukhulu kangakanani, nokuthi yini ebusenza bube kangcono noma bube sibi
• Thatha izithombe zokukhishwa okubomvu kwakho: Njengoba ukukhishwa okubomvu kuza nokuhamba, izithombe zingasiza kakhulu ekuxilongweni
• Bhala yonke imithi: Faka imithi eyalwe, imithi yokuthengwa ngaphandle kwesikripthi, kanye nezinye izinto
• Lungiselela imibuzo: Bhala phansi lokho ofuna ukukwazi ngesimo sakho kanye nezinketho zokwelashwa
• Letha umuntu osekela: Ukuba nomuntu onaye kungakusiza ukukhumbula imininingwane nokukunikeza ukwesekwa ngokomzwelo

Unganqikazi ukubuza udokotela wakho ukucacisa noma yini ongayiqondi. Lokhu yimpilo yakho, futhi ufanele uthole imininingwane ecacile, ephelele ngesimo sakho kanye nezinketho zokwelashwa.

Yini okufanele uyikhumbule nge-Adult Still's Disease?

Ubuthakathaka Bokukhula Baka-Still buyisimo esingavamile kodwa esilawuleka sokuvuvukala esibangela ubushushu obukhulu bomzimba, ubuhlungu bezingqondo, nokukhishwa okubomvu okubomvu. Nakuba kungase kube ukwesaba lapho izimpawu zivela okokuqala, abantu abaningi abanesimo esinjalo baphila impilo egcwele, esebenzayo ngokwelashwa okuqondile.

Izinto ezibaluleke kakhulu okumele uzikhumbule ukuthi ukuxilongwa kokusenesikhathi nokwelashwa kwenza umehluko omkhulu emiphumeleni. Uma uhlangabezana nezibonakaliso ezivamile zobushushu bomzimba obukhulu bemihla ngemihla, ubuhlungu bezingqondo, nokukhishwa okubomvu okufana nesalmon, ungalindi ukufuna ukunakekelwa kwezokwelapha.

Ngezinketho zokwelashwa zanamuhla, kuhlanganise imithi yendabuko ne-biologic emisha, abantu abaningi bangafinyelela ekulawuleni okuhle kwezimpawu. Sebenzani eduze neqembu lakho lokukhathalela impilo, hlala uqine ngohlelo lwakho lokwelashwa, futhi unganqikazi ukufuna usizo uma udinga usizo noma unezinye izinkinga.

Imibuzo evamile ebuzwa nge-Adult Still's Disease

Ingabe ubuthakathaka Bokukhula Baka-Still bufana ne-arthritis yabantwana?

Ubuthakathaka Bokukhula Baka-Still kubhekwa njengenguqulo yabantu abadala ye-arthritis systemic juvenile idiopathic, kodwa akuyona ngempela isimo esifanayo. Nakuba bahlanganyela izimpawu ezifanayo nezinqubo zokuvuvukala, ubuthakathaka Bokukhula Baka-Still buvela kubantu abadala abangaphezu kweminyaka engu-16 futhi kungase kube nezici ezihlukile nezimpendulo zokwelashwa.

Ingabe ubuthakathaka Bokukhula Baka-Still bungangena ekuphumuleni ngokuphelele?

Yebo, abanye abantu abane-Adult Still's disease bayafinyelela ekuphumuleni isikhathi eside, ikakhulukazi ngokwelashwa kokusenesikhathi nokufanele. Noma kunjalo, abanye bangase bahlangabezane nenqubo eqhubekayo ngokukhulu okuphindaphindayo. Cishe ingxenye yesithathu yabantu inenkathi eyodwa ehlala iphela, kanti abanye banezimpawu eziphindaphindayo noma i-arthritis eqhubekayo.

Ingabe ngizokwazi ukusebenza nokugcina imisebenzi evamile?

Abantu abaningi abane-Adult Still's disease bangaqhubeka nokusebenza nokubamba iqhaza emisebenzini evamile, ikakhulukazi ngokwelashwa okuphumelelayo. Phakathi kokukhulu, kungase kudingeke ulungise imisebenzi yakho noma uthathe isikhathi sokuphumula, kodwa abantu abaningi babuyela emisebenzini yabo evamile phakathi kwezikhathi. Khuluma nodokotela wakho ngezinto ezingakusiza.

Ingabe kukhona ukudla okufanele ngikugweme ngenxa yobuthakathaka Bokukhula Baka-Still?

Ayikho indlela yokudla ethile edingekayo yobuthakathaka Bokukhula Baka-Still, kodwa ukudla ukudla okuqondile, okulwa nokuvuvukala kungakusiza uzizwe kangcono ngokujwayelekile. Abanye abantu bathola ukuthi ukunciphisa ukudla okuthuthukisiwe nokukhulisa ama-omega-3 fatty acids kusiza ekuvuvukaleni. Noma kunjalo, gxila ikakhulu ekuthatheni imithi yakho eyalwe kunokuthembela ezinguqukweni zokudla kuphela.

Ingabe ubuthakathaka Bokukhula Baka-Still bungathinta ukukhulelwa?

Ukukhulelwa nge-Adult Still's disease kudinga ukuhlela okucophelelayo nokugcinwa, kodwa abesifazane abaningi banokukhulelwa okuphumelelayo. Imithi ethile esetshenziswa ekwelapheni lesi simo ingase idinge ukulungiswa noma ukushintshwa phakathi kokukhulelwa. Uma uhlela ukukhulelwa noma usekhulelwe, sebenzani eduze nodokotela wakho we-rheumatologist nodokotela wakho we-obstetrician ukuze niqinisekise imiphumela emihle kuwe nengane yakho.