Ukuqina kwe-Ataxia? Izimpawu, Izimbangela, Nokwelashwa

I-Ataxia yisimo esithinta ukuxhumanisa kwakho nokuqina, okwenza ukuhamba kwansuku zonke kuzwakale kungaqinile noma kunzima. Cabanga ngakho njengengqondo yakho enenkinga yokuthumela izimpawu ezicacile emiphini yakho mayelana nendlela yokunyakaza ngokulinganayo nangokuqondile.

Lokhu akuyona nje into yokuba nezingozi noma ukuba "usuku olubi" ngokuxhumanisa kwakho. I-Ataxia ihilela izinguquko ezithile ekulawuleni kokunyakaza kwezinzwa zakho, futhi ingathinta konke kusukela ekuhambeni kuya ekukhulumeni kuya emakhono amancane okuhamba njengokubhala.

Iyini i-Ataxia?

I-Ataxia isho ukuthi "ngenaphuzu" ngesiGriki, futhi lokho kuchaza ngqo ukuthi kwenzekani ngalesi simo. Ubuchopho bakho, i-cerebellum (ingxenye elawula ukuqina), nomgogodla wakho basebenzisana ndawonye ukuze baqondane ukunyakaza, kodwa i-ataxia iphazamisa lo msebenzi wobuqembu.

Uma une-ataxia, imiyalezo phakathi kobuchopho bakho nemiphini yakho ihlangene noma ilibale. Lokhu kudala ukunyakaza okungaqinile, okungaxhunyanisiwe okuchaza lesi simo. Kufana nokuzama ukuqondisa iqembu lezingoma lapho abaculi abanye bengenakuzwa umculo ngokucacile.

I-Ataxia ingathuthuka kancane kancane ngezinyanga noma iminyaka, noma ingabonakala ngokuzumayo. Abanye abantu bazalwa nayo, kuyilapho abanye beyithuthukisa kamuva ekuphileni ngenxa yezimo zezempilo ezahlukene noma ukulimala.

Ziyini Izimpawu ze-Ataxia?

Izimpawu ze-ataxia ikakhulukazi zithinta indlela ohambayo ngayo nokuqina. Ungase uqaphele lezi zinguquko kancane kancane, noma zingase zivele ngokuzumayo kuye ngalokho okubangela i-ataxia yakho.

Nazi izimpawu ezivamile ongazihlangabezana nazo:

• Ukuhamba okungaqinile: Ungase uzwe sengathi uhamba ebhodini noma unezinkinga zokuhamba ngqo
• Ukuxhumanisa okubi: Imisebenzi elula njengokubopha izingubo noma ukuqoqa izinto iba nzima
• Izinkinga zokuqina: Ungase uzwe ukhukhumele noma unezinkinga zokuhlala ukhulu ukuma ngaphandle kokuthambeka
• Inkulumo ephazamisekile: Amazwi angase aphume angacaci noma ngesivinini esingavamile
• Ubunzima bokuginya: Ungase uphenduke noma ukhwehle ngenkathi udle noma uphuza
• Ukuzamazama: Izandla zakho noma ezinye izingxenye zomzimba zingase zithambekele, ikakhulukazi ngesikhathi sokuhamba
• Izinkinga zokuhamba kwamehlo: Ungase ube nezinkinga zokulandela izinto noma ube nokubona okubili

Izimpawu ezingavamile zingafaka ubuthakathaka bemisipha, ukukhathala, nokuqina kwengqondo njengobunzima bokuhlala ugxile. Ukubaluleka kwalezi zimpawu kuyahluka kakhulu kumuntu ngamunye, futhi abanye abantu bahlangabezana nezinkinga ezincane zokuxhumanisa kuyilapho abanye behlangabezana nezinselele ezinkulu.

Ziyini Izinhlobo ze-Ataxia?

I-Ataxia iqoshwe ngezinhlobo ezahlukene kuye ngalokho okusebenza kahle kwezinzwa zakho okusebenza kahle futhi okubangela. Ukuqonda lezi zigaba kungakusiza wena nodokotela wakho ukuthi nicabange ngendlela engcono kakhulu yesimo sakho.

I-ataxia ye-cerebellar uhlobo oluvamile kakhulu futhi luthinta i-cerebellum, isikhungo sokuqondana kobuchopho bakho. Lo mbono ngokuvamile ubangela izinkinga zokuqina, ukuhamba, namakhono amancane okuhamba. Ungase uqaphele ukuhamba okubanzi, okungaqinile nobunzima ngokunyakaza okuqondile.

I-ataxia ye-sensory kwenzeka lapho izinzwa ezithwala ulwazi mayelana nesimo somzimba nokuhamba zilimale. Ngale ndlela, ungase uzwe ungaqinile kakhulu ebumnyameni noma lapho amehlo akho evalwe ngoba ucindezela kakhulu ukubona ukuze ugcine ukuqina.

I-ataxia ye-vestibular ihilela izinkinga ngendlebe yakho yangaphakathi, esiza ekulawuleni ukuqina. Lo mbono ngokuvamile uza nokukhathazeka, ukugula, nokubukeka sengathi igumbi liphenduka, ikakhulukazi lapho uhambisa ikhanda lakho.

Yini ebangela i-Ataxia?

I-Ataxia ingathuthuka ngenxa yezizathu eziningi ezahlukene, kusukela ezimweni zezakhiwo ezikhona kusukela ekuzalweni kuya ezinkingeni ezitholakala ezithuthuka kamuva ekuphileni. Ukuqonda imbangela kusiza ekuqondiseni izinqumo zokwelapha.

Izimbangela ezitholakala ezivamile zifaka:

• Isifo sobuchopho: Lapho ukugeleza kwegazi kuya e-cerebellum noma i-brainstem kuphazanyiswa
• I-multiple sclerosis: Isimo sokuzimela komzimba esilimaza imicu yezinzwa
• Iziphumuzo zobuchopho: Ukukhula okucindezela noma okonakalisa izikhungo zokuxhumanisa
• Ukutheleleka: Izimo ezifana ne-meningitis noma i-encephalitis ezithinta ubuchopho
• Ukusebenzisa kabi utshwala: Ukupuza utshwala okuningi isikhathi eside kungalimaza i-cerebellum
• Ukwehluleka kwevithamini: Ikakhulukazi ukushoda kwe-B12, i-thiamine, noma i-vitamin E
• Imithi: Eminye imithi yokubamba, imithi yokulala, noma imithi ye-chemotherapy

Izinhlobo ze-ataxia ezifuywe zibangelwa ukuguqulwa kwezakhiwo ezidluliselwa emindenini. Lokhu kufaka izimo ezifana ne-Friedreich's ataxia, i-spinocerebellar ataxias, ne-ataxia-telangiectasia. Lezi zinhlobo zezakhiwo ngokuvamile zivele ebuntwaneni noma ebusheni.

Izimbangela ezingavamile zifaka izifo zokuzimela komzimba lapho isimiso sakho sokuzimela komzimba sihlasele ngokungalungile izinzwa zakho, ukudalulwa kwezinto eziyingozi ezinkulu noma amakhemikhali, nezinye izifo zokuguqulwa kwemvelo ezithinta indlela umzimba wakho uqapha ngayo izondlo.

Nini Okufanele Ubone Udokotela Nge-Ataxia?

Kufanele ubheke udokotela uma uqaphela izinkinga eziqhubekayo zokuxhumanisa noma izinkinga zokuqina eziphazamisa imisebenzi yakho yansuku zonke. Ukubheka kwasekuqaleni kubalulekile ngoba ezinye izimbangela ze-ataxia zingaphathwa kahle uma zitholakala kwasekuqaleni.

Funani ukunakekelwa kwezokwelapha ngokushesha uma uhlangabezana nokuqala ngokuzumayo kwezinkinga zokuxhumanisa, ikakhulu uma kuhambisana nobuhlungu obukhulu ekhanda, ukudideka, noma ubunzima bokukhuluma. Lokhu kungase kubonise isifo sobuchopho noma enye isimo esinzima esidinga ukwelashwa ngokushesha.

Xhumana nodokotela wakho uma unezinkinga eziqhubekayo zokuqina, ukuwa okuvamile, noma uma izinkinga zokuxhumanisa zithinta ikhono lakho lokusebenza, ukuqhuba, noma ukwenza imisebenzi yansuku zonke ngokuphephile. Ngisho nezimpawu ezincane kufanele zitholakale ngoba ukuxilongwa okuqondile kungakhokelela ekwelapheni okuwusizo.

Ziyini Izici Zengozi ze-Ataxia?

Izici eziningi zingandisa amathuba akho okukhula kwe-ataxia, yize ukuba nezici zengozi akusho ukuthi uzokhula ngokuqinisekile lesi simo. Ukuqaphela lezi zici kungakusiza wena nodokotela wakho ukuthi nihlale niqaphile izimpawu zokuqala.

Izici eziyinhloko zengozi zifaka:

• Umlando womndeni: Ukuba nezihlobo ezine-ataxia yefa kukhulisa ingozi yakho yezinhlobo zezakhiwo
• Iminyaka: Ezinye izinhlobo ze-ataxia ziyaqala ukuba khona ngokwanda kweminyaka
• Ukusetshenziswa utshwala oluqhubekayo: Ukupuza utshwala okuningi isikhathi eside kungalimaza i-cerebellum
• Izimo zokuzimela komzimba: Ukuba nezimo ezifana nesifo se-celiac noma izifo zesitho sokuqina
• Isifo sobuchopho esidlule noma ukulimala ekhanda: Ukonakala kwezikhungo zokuxhumanisa kukhulisa ingozi
• Eminye imithi: Ukusetshenziswa isikhathi eside kwemithi ethile yokubamba noma i-chemotherapy
• Ukwehluleka kwezondlo: Ukungaphathwa kahle kwevithamini, ikakhulukazi ama-B vitamins

Izici zengozi ezingavamile zifaka ukudalulwa kwezinto eziyingozi, ukuba uthole ukwelashwa nge-radiation ekhanda noma entanyeni, nezinye izifo ezingathinta izinzwa.

Ziyini Izingozi Ezingase Zivele ze-Ataxia?

I-Ataxia ingabangela izinkinga ezahlukene ezithinta ikhwalithi yakho yokuphila nokulondeka, kodwa eziningi zalezi zingaphathwa ngenakekelwa efanele nesekeli. Ukuqonda izingozi ezingase zivele kukusiza ukuba ulungiselele futhi uthathe izinyathelo zokuvikela.

Izingozi ezivamile zifaka:

• Ukuwa nokulimala: Izinkinga zokuqina zikhuphula ingozi yakho yokuwa, okungabangela ukweqa noma ukulimala ekhanda
• Ubunzima bokuginya: Lokhu kungabangela ukuphenduka, ukushoda kokudla, noma i-pneumonia yokufunxa
• Izinkinga zokukhuluma: Ubunzima bokuqondana bungathinta ubuhlobo nomsebenzi
• Ukulinganiselwa kokunyakaza: Ungase udinga amadivayisi okusiza noma ube yilowo ohlala esihlalweni sabakhuba
• Usizi nokukhathazeka: Ukubhekana nezinkinga zokuxhumanisa kungathinta impilo yengqondo
• Ukuhlukaniswa komphakathi: Ubunzima ngemisebenzi bungakhokelela ekuhoxeni ezimweni zomphakathi

Izingozi ezingavamile kodwa ezinzima zingafaka izinkinga ezinkulu zokuphefumula uma imisipha elawula ukuphefumula ithinteka, ukungalingani komjikelezo wenhliziyo ezinhlotsheni ezithile ze-ataxia, nokukhubazeka okuqhubekayo okuthinta kakhulu ukuzimela.

Izindaba ezinhle ukuthi izingozi eziningi zingavikeleka noma ziphathwe ngokunakekelwa kwezokwelapha okufanele, ukuqeqeshwa komzimba, ukuguqulwa kokuphepha ekhaya lakho, nesekeli evela kubachwepheshe bezempilo namalungu omndeni.

I-Ataxia Ingavikeleka Kanjani?

Nakuba ungakwazi ukuvimbela izinhlobo ze-ataxia ezifuywe, ungathatha izinyathelo zokunciphisa ingozi yakho yokukhula kwe-ataxia etholakala nokuhambisa ukukhula kwayo uma usuvele unayo. Ukuvimbela kugxile ekuvikeleni izinzwa zakho nokugcina impilo yonke.

Amasu ayinhloko okuvimbela afaka ukulinganisela ukusetshenziswa kotshwala, njengoba ukupuza utshwala okuningi kungalimaza i-cerebellum isikhathi eside. Uma uphuza utshwala, yenza kanjalo ngokulinganisela futhi ucele usizo uma ulwa nokuqina kotshwala.

Gcina ukudla okuhle ngamavithamini e-B anele, ikakhulukazi i-B12, i-thiamine, ne-vitamin E. Uma unezimo ezithinta ukufunxa kwezondlo ezifana nesifo se-celiac, sebenzisana nodokotela wakho ukuze uqinisekise ukunikezwa okufanele.

Zivikele ekulimaleni ekhanda ngokugqoka izinto zokuphepha ezifanele ngesikhathi semidlalo, ukusebenzisa izibopho zezihlalo ezinqweni, nokwenza ikhaya lakho libe liphephile ngokususa izingozi zokuwa nokwenza ukukhanya kube ngcono.

Phathani kahle ezinye izimo zezempilo, ikakhulukazi isifo sikashukela, igazi eliphezulu, nezifo zokuzimela komzimba. Ukunakekelwa okuvamile kwezokwelapha nokulandela izinhlelo zokwelapha kungasiza ekuvinjeni izingozi ezingase zithinte ukuxhumanisa kwakho.

I-Ataxia Ixilongwa Kanjani?

Ukuxilongwa kwe-ataxia kuhilela ukubheka okuphelele ukuze kunqunywe kokubili ukuba khona kwezinkinga zokuxhumanisa nesizathu sazo. Udokotela wakho uzoqala ngomlando wezokwelapha ophelele nokubheka komzimba.

Inqubo yokuxilongwa ngokuvamile ihlanganisa ukubheka kwezinzwa lapho udokotela wakho ekuhlola ukuxhumanisa kwakho, ukuqina, imiphumela, nokuhamba kwamehlo. Bangase bakucela ukuthi uhambe ngqo, uthinte ikhanda lakho ngomunwe wakho, noma wenze eminye imisebenzi yokuxhumanisa.

Izivivinyo zegazi zingahlola ukushoda kwevithamini, izinkinga zesitho sokuqina, amamaki okuzimela komzimba, nokuguqulwa kwezakhiwo. Lezi zivivinyo zisiza ekutholeni izimbangela ezilaphekayo nokuqeda ezinye izimo ezingase zilinganise i-ataxia.

Izifundo zokuthola izithombe ezifana ne-MRI noma i-CT scans zingaveza izinkinga zokwakheka ebuchophweni bakho, ezifana neziphumuzo, iziphumuzo, noma ukuncipha kobuchopho. Lezi zithombe zinikeza izithombe eziningiliziwe zezikhungo zokuxhumanisa zobuchopho bakho.

Izivivinyo ezikhethekile zingafaka izifundo zokuphatha izinzwa ukuze uhlole ukuthi izinzwa zakho zithumela imiyalezo kangcono kangakanani, ukuhlolwa kwezakhiwo zezinhlobo ze-ataxia ezifuywe, futhi ngezinye izikhathi ukugoqa i-lumbar ukuhlola i-spinal fluid ngokutheleleka noma ezinye izinto ezingavamile.

Iyini Ukwelashwa kwe-Ataxia?

Ukuphathwa kwe-ataxia kugxile ekuqondeni imbangela uma kungenzeka futhi ekulawuleni izimpawu ukuze kuthuthukiswe ikhwalithi yakho yokuphila. Nakuba ayikho indlela yokwelapha izinhlobo eziningi ze-ataxia, izindlela eziningi zokwelapha zingakusiza ukuba ugcine umsebenzi nokuzimela.

Uma i-ataxia yakho ibangelwa yisimo esilaphekayo, ukubhekana naleso simo kuyinto yokuqala. Lokhu kungafaka ukunikezwa kwevithamini ngenxa yokushoda, ukuyeka imithi ebangela i-ataxia, ukwelapha ukutheleleka, noma ukuphatha izimo zokuzimela komzimba.

Ukuqeqeshwa komzimba kudlala indima ebalulekile ekwelapheni kwe-ataxia ngokukusiza ukuba ugcine ukuqina, ukuxhumanisa, namandla. Umphengululi wakho uzokufundisa imisebenzi yokuthuthukisa ukuzinza nezinqubo zokuhamba ngokuphephile.

Ukuqeqeshwa kwe-Occupational kukusiza ukuba ulungise imisebenzi yansuku zonke futhi ufunde ukusebenzisa amadivayisi okusiza ngokuphumelelayo. Lokhu kungafaka izincomo ze-grab bars, amadivayisi okuhamba, noma izinto ezikhethekile ezenza ukudla kube lula.

Ukuqeqeshwa kokukhuluma kungasiza uma i-ataxia ithinta ukukhuluma kwakho noma ukuginya. Umphengululi wakho uzosebenza nawe ngezinqubo zokukhuluma ngokucacile nokuginya ngokuphephile.

Imithi ingasiza ngezimpawu ezithile ezifana nokuzamazama, ubunzima bemisipha, noma usizi. Nakuba ayikho imithi ewelapha ngokuqondile i-ataxia, ukuphathwa kwezimpawu kungathuthukisa kakhulu ukusebenza kwakho kwansuku zonke.

Indlela Yokuphatha I-Ataxia Ekhaya?

Ukuphatha i-ataxia ekhaya kuhilela ukwenza indawo yakho ibe yiphephile nokulungisa izindlela zakho zansuku zonke ukuze usebenze nezinselele zakho zokuxhumanisa. Izinqubo ezincane zingenza umehluko omkhulu ekulondekeni kwakho nasekuzimeleni kwakho.

Qala ngokwenza ikhaya lakho libe liphephile ngokususa ama-throw rugs, ukuthuthukisa ukukhanya kulo lonke ikhaya lakho, nokufaka ama-grab bars ezihlanzini. Cabanga ngokwengeza ama-railings ezitebhini nokugcina izinto ezisetshenziswa njalo zifinyeleleka kalula.

Thuthukisa uhlelo olujwayelekile lokuzivocavoca oluqondene nokuqina nokuxhumanisa. Imisebenzi elula njenge-tai chi, i-yoga, noma ukuhamba ingasiza ekuqondeni amakhono akho. Njalo uzivocavoce endaweni ephephile futhi cabanga ngokuba nomuntu oseduze.

Hlela imisebenzi yakho yansuku zonke ngezikhathi lapho uzizwa uqine kakhulu futhi une-energi. Abantu abaningi abane-ataxia bathola ukuthi basebenza kangcono ngezikhathi ezithile zosuku, ngakho hlela imisebenzi ebalulekile ngokufanele.

Sebenzisa amadivayisi okusiza njengoba kunconywe yiqembu lakho lezokunakekelwa kwezempilo. Lokhu kungafaka amadivayisi okuhamba, izinto ezikhethekile, noma amadivayisi aqondiswa ngezwi okuthinta isidingo sokulawula okuhle.

Hlala uxhumene namaqembu asekelayo nabanye abantu abaqonda ukuthi uhamba kanjani. Lesi sikhuthazo somzwelo sibaluleke kakhulu njengokulungiswa komzimba.

Kufanele Uzilungiselele Kanjani Ukuya Kulo Dokotela?

Ukulungiselela ukuya kwakho kudokotela kusiza ukuqinisekisa ukuthi uthola okuningi kakhulu ekuhambeni kwakho futhi kunikeza iqembu lakho lezokunakekelwa kwezempilo ngolwazi olukhulu mayelana nesimo sakho. Ukulungiselela okuhle kuholela ekunakekelweni okuhle.

Gcina idayari yezimpawu okungenani isonto ngaphambi kokutholakala kwakho, uqaphele ukuthi izimpawu ziyabiwa noma zibe ngcono nini, yimiphi imisebenzi ebangela izinkinga, nokuthi izimpawu zithinta kanjani impilo yakho yansuku zonke. Lolu lwazi lusiza udokotela wakho ukuthi aqonde kahle isimo sakho.

Butha amarekhodi akho ezempilo, kufaka phakathi noma yimiphi imiphumela yezivivinyo ezidlule, izifundo zokuthola izithombe, nezimpahla zemithi. Uma ubona udokotela omusha, ukuba nalolu lwazi kufanele kulondoloze isikhathi futhi kuvimbele ukuhlolwa okubili.

Lungiselela uhlu lwemibuzo mayelana nesimo sakho, izinketho zokwelapha, nokuqagela. Zibhale phansi ukuze ungakhohlwa ukubuza ngesikhathi sokutholakala. Imibuzo evamile ihlanganisa ukubuza ngesizathu se-ataxia yakho, izinketho zokwelapha, nokuthi yini okulindelekile kuqhubeke.

Cabanga ngokuletha ilungu lomndeni noma umngani ekutholakaleni. Bangakusiza ukuba ukhumbule ulwazi oluxoxisiwe futhi banikeze ukubuka okuqhubekayo mayelana nezimpawu zakho ongazengaqapheli.

Yini Eyinhloko Mayelana ne-Ataxia?

I-Ataxia yisifo sokuqondana esithinta ukuqina nokuhamba, kodwa akuyona isimo okufanele usibhekane nalo wedwa noma ngaphandle kwethemba. Nakuba kungaba inselele, abantu abaningi abane-ataxia baqhubeka bephila impilo ezele ngokuphathwa okuqondile nesekeli.

Into ebaluleke kakhulu okumele uyikhumbule ukuthi ukuxilongwa kwasekuqaleni nokuphathwa kungenza umehluko omkhulu esiphumeleni sakho. Izimbangela eziningi ze-ataxia zilapheka, futhi ngisho nalapho imbangela engaphansi ingelapheki, ukuphathwa kwezimpawu kungathuthukisa kakhulu ikhwalithi yakho yokuphila.

Ukusebenza neqembu lezokunakekelwa kwezempilo elihlanganisa ochwepheshe bezinzwa, abaphathi bomzimba, nabanye ochwepheshe kukunika ithuba elihle kakhulu lokuqondisa ukuzimela kwakho nokwenza ngempumelelo noma yiziphi izinguquko ekuqondeni kwakho.

Khumbula ukuthi i-ataxia ithonya wonke umuntu ngokwahlukene, ngakho-ke okuhlangenwe nakho kwakho kungase kuhluke kakhulu kwabanye abane-simo esifanayo. Gxila kulokho okusebenza kuwe futhi ungangabazi ukucela usizo uma usikudinga.

Imibuzo Evamile Mayelana ne-Ataxia

Ingabe i-ataxia ihlala iqhubeka futhi iyoba yimbi ngokuhamba kwesikhathi?

Akuzona zonke izinhlobo ze-ataxia eziqhubekayo. Ezinye izinhlobo ezingelapheka ezifana nokwehluleka kwevithamini noma imiphumela emibi yemithi zingathuthuka ngokwelashwa okufanele. Kodwa-ke, izinhlobo eziningi ze-ataxia ezifuywe ziyaqhubeka ngokuhamba kwesikhathi, yize izinga liyahluka kakhulu phakathi kwabantu.

Ngisho nezinhlangothi eziqhubekayo, isikhathi eside singase sihlale amashumi eminyaka, futhi abantu abaningi bagcina umsebenzi omuhle iminyaka eminingi. Ukusebenza neqembu lakho lezokunakekelwa kwezempilo ukuze ulawule izimpawu nokugcina ukufaneleka kungasiza ekuhambiseni ukukhula nokugcina amakhono akho isikhathi eside.

Ngingaqhuba yini uma ngine-ataxia?

Ukuthi ungaqhuba yini kuncike ekuqinisweni kwe-ataxia yakho nokuthi ithonya kanjani ukuxhumanisa kwakho nezikhathi zokusebenza. Abantu abaningi abane-ataxia ephansi baqhubeka beqhuba ngokuphephile, kuyilapho abanye bengase badinge ukulinganisela ukuqhuba ezindleleni ezijwayelekile noma ekugcineni bayeke ukuqhuba.

Ukuqonda okuqondile nodokotela wakho kanye nokuhlolwa kokushayela ochwepheshe abafanelekile kuyisihluthulelo. Ukuphepha kwakho nokulondeka kwabanye abantu emigwaqweni kufanele kuqondise lesi sinqumo, futhi ayikho ihlazo ekusebenziseni ezinye izindlela zokuthutha uma kudingeka.

Ingabe abantwana bami bazokwazi i-ataxia uma nginayo?

Lokhu kuncike ngokuphelele ohlotsheni lwe-ataxia onayo. Uma i-ataxia yakho itholakala (ibangelwa isifo sobuchopho, ukutheleleka, noma ezinye izici ezingelona ifa), abantwana bakho ngeke bayidlulisele. Kodwa-ke, uma une-ataxia yefa, kungase kube khona ingozi yokuyidlulisela kubantwana bakho.

Ukubonisana ngezakhiwo kungakusiza ukuqonda isimo sakho esithile nezingozi ezihilelekile. Izinhlobo ezahlukene ze-ataxia ezifuywe zinezindlela ezahlukene zokudluliselwa, futhi ukuhlolwa kwezakhiwo kungakunikeza ulwazi oluqondile mayelana nezingozi ezizukulwaneni ezizayo.

Ingabe kukhona izindlela ezintsha zokwelapha noma ukwelapha okuthuthukiswayo kwe-ataxia?

Ucwaningo mayelana nezindlela zokwelapha i-ataxia luqhubeka, ngezindlela eziningi ezithembisayo ezifundwa. Lokhu kufaka i-gene therapy yezinye izinhlobo ezifuywe, ucwaningo lwamaseli estem, nemithi emisha engase ihambise ukukhula noma ithuthukise izimpawu.

Nakuba ayikho indlela yokwelapha izinhlobo eziningi ze-ataxia, izivivinyo zeklinikhi zivivinya izindlela ezahlukene zokwelapha. Udokotela wakho wezinzwa angakusiza ukuba ufunde mayelana nocwaningo olufanele nezifundo futhi ukuthi ungumuntu ofanele yini kunoma yiziphi izivivinyo zeklinikhi.

Ngingayiqonda kanjani umehluko phakathi kwe-ataxia nokuthi nje ungumuntu ongaqondi kahle noma unezinkinga zokuqina ezivela ekugugeni?

Ukuqina okuvamile kungabangela izinguquko ezithile ekuqinisweni nasekuqondeni, kodwa i-ataxia ihilela izinkinga ezithile nezibonakalayo. Nge-ataxia, ungase ube nobunzima ngokunyakaza okuqondile, inkulumo ephazamisekile, noma ukuhamba okungaqinile okuhlukile kunokuguquka okuvamile okuhlobene neminyaka.

Uma izinkinga zokuxhumanisa ziyaphazamisa imisebenzi yakho yansuku zonke, ziyaqhubeka zibe zimbi, noma zihambisana nezinye izimpawu zezinzwa, kufanele ubheke udokotela ukuze ahlolwe. Bangakwazi ukwahlukanisa phakathi kokuguquka okuvamile kokuguga ne-ataxia ngokuhlolwa okuqondile nokuhlolwa.