Ukuqina Kwe-Bladder Exstrophy? Izimpawu, Izimbangela, & Ukwelashwa

I-Bladder exstrophy yiphutha lokudalwa eliqabukile lapho i-bladder yengane yakho iqala khona ngaphandle komzimba wayo kunokuba ibe ngaphakathi. Lokhu kwenzeka lapho udonga oluphansi lwesisu lungavalwa kahle ngesikhathi sokukhulelwa kwasekuqaleni, lishiya i-bladder ivezwe ngaphandle kwesisu.

Lesi simo sihlupha cishe 1 kuwo wonke ama-30,000 kuya ku-50,000 ezalwa, okwenza kube yinto engavamile. Nakuba kuzwakala kukhulu, amasu okucathulwa kwamanje enze kwaba lula kakhulu ukwelapha, futhi izingane ezine-bladder exstrophy zingaphila impilo egcwele, enempilo ngokunakekelwa komtholampilo okufanele.

Iyini i-bladder exstrophy?

I-Bladder exstrophy ivela lapho i-bladder yengane yakho ithuthukiswa ngaphandle komzimba wayo kunokuba ibe ngaphakathi kwephevis. I-bladder ibonakala njengalunga elibomvu, elivulekile ngaphansi kwesisu sengane, ngokuvamile ibukeka njengepleyiti encane, ephangayo.

Lesi simo singxenye yeqembu elibizwa nge-exstrophy-epispadias complex. I-bladder akuyona into kuphela ehlushwa - imisipha yesisu, amathambo e-pelvic, kanye ne-genitals azithuthuki ngendlela yazo evamile. Amathambo e-pubic, avamile ukuhlangana phambili, ahlala ehlukene.

Kubafana, ukuvula kwe-penis (urethra) ngokuvamile kusephelweni kunokuba kube yi-tip. Esikhathini esiningi, i-clitoris ingaba yisiqeshana, futhi ukuvula kwe-vagina kungaba mncintisana kunokuvamile. Lezi zinto ezihlukile zihlangene nendlela umzimba ophansi uthuthuka ngayo ngesikhathi sokukhulelwa.

Ziyini izimpawu ze-bladder exstrophy?

Uphawu olukhulu lwe-bladder exstrophy lubonakala ngqo lapho kuzalwa - ungabona i-bladder ngaphandle kwesisu sengane yakho. Le bladder evezwe ibonakala ibomvu futhi emanzi, ifana ngaphakathi komlomo wakho, ngoba yenziwe ngohlobo olufanayo lwe-tissue.

Nazi izimpawu eziyinhloko odokotela abazibheka:

• I-bladder evezwe esiswini esiphansi ebonakala ibomvu futhi emanzi
• Isikhala phakathi kwamathambo e-pubic ongakuzwa
• I-belly button emfushane, ebanzi ehlala phansi kunokuvamile
• Ukuvuza okuqhubekayo kwe-urine njengoba i-bladder ingakwazi ukugcina i-urine kahle
• I-penis encane kunokuvamile kubafana, ngokuvamile enebonakala igobekile
• Esikhathini esiningi, i-clitoris ehlukene kanye nokuvula kwe-vagina okuncane
• I-Inguinal hernias (izinto ezibonakala endaweni ye-groin) ezenzeka kaningi kulezi zingane

Ukuthambile okuqhubekayo kwe-urine kungabangela ukuvuvukala kwesikhumba endaweni ye-bladder evezwe. Kungakho odokotela begxila ekuvikeleni i-bladder kanye nesikhumba esizungezile ngokushesha ngemva kokuzalwa.

Ziyini izinhlobo ze-bladder exstrophy?

I-Bladder exstrophy iza ngezindlela ezahlukene, ngayinye ihlupha ingane yakho ngezindlela ezihlukene kancane. Uhlobo oluvamile kakhulu lubizwa nge-classic bladder exstrophy, esikubekhulume ngayo kuze kube manje.

I-Classic bladder exstrophy yenza cishe u-60% wazo zonke izimo. Kulolu hlobo, i-bladder ivezwe kodwa ezinye izitho ezifana namaphaphu zihlala ngaphakathi komzimba. Isikhala phakathi kwamathambo e-pubic ngokuvamile singama-sentimitha angu-2-4 ububanzi.

Uhlobo oluyinkimbinkimbi kakhulu oluthi i-cloacal exstrophy luhlupha i-bladder, amaphaphu, kanye nomgogodla ngesikhathi esisodwa. Lokhu kwenzeka cishe ku-1 kuwo wonke ama-200,000 ezalwa futhi kudinga ukuhlinzwa okubanzi kakhulu. Kulolu hlobo, ingxenye yomlomo omkhulu nayo ivezwe, futhi kungaba nezingqinamba nomgogodla.

Uhlobo oluthambile kakhulu yi-epispadias ngaphandle kwe-exstrophy. Lapha, i-bladder ihlala ngaphakathi komzimba, kodwa ukuvula kwe-urethra kusekhona endaweni engafanele. Lokhu kuhlupha i-genitals futhi ngezinye izikhathi kwenza kube nzima ukulawula i-urine, kodwa kulula kakhulu ukuwelapha kunokuba yi-bladder exstrophy ephelele.

Yini ebangela i-bladder exstrophy?

I-Bladder exstrophy iyenzeka ezinsukwini zokuqala zokukhulelwa lapho umzimba wengane yakho uqala khona. Phakathi kwamasonto angu-4 no-10, okuthile kuphazamisa ukuthuthuka okuvamile kodonga oluphansi lwesisu kanye ne-bladder.

Imbangela eqondile ayiqondakali ngokuphelele, kodwa odokotela bakholelwa ukuthi cishe kuyindlela yokuxuba izinto zofuzo nezimo zangaphandle. Akubangelwa yilutho owalwenza noma awungenzanga ngesikhathi sokukhulelwa - kubalulekile ukuqonda lokhu ngoba abazali abaningi bazisola ngokungadingekile.

Nansi into ucwaningo oluyisikisela engase ihlanganyele kulesi simo:

• Ukushintsha okungahleliwe kwe-genetic okunethela ukuthi udonga lwesisu luqala kanjani
• Izingqinamba ngokuhamba kwamaselula ngesikhathi sokuthuthuka kwasekuqaleni
• Ukugeleza kwegazi okuyeka endaweni yesisu ethuthukayo
• Izinto zangaphandle ezingase zibe khona, nakuba ezingaqondakali

Izimo eziningi zenzeka ngokungazelelwe, okusho ukuthi zenzeka ngokungahleliwe ngaphandle komlando womndeni. Amathuba okuthola ingane enye ene-bladder exstrophy aphansi kakhulu, ngokuvamile angaphansi kuka-1 kuya ku-100.

Nini okufanele ubheke udokotela nge-bladder exstrophy?

I-Bladder exstrophy ngokuvamile ihlonishwa ngokushesha ngemva kokuzalwa ngoba ibonakala ngokushesha. Uma ingane yakho izalwa nalesi simo, iqembu lakho lezokwelapha lizobe selihilelekile futhi liqondisa ukunakekelwa ngaphambi kokuba ushiye ihospital.

Kodwa-ke, uma ukhulelwe futhi i-ultrasounds evamile ayizange ithole lesi simo, nazi izimpawu ezidinga ukunakekelwa komtholampilo ngokushesha ngemva kokuzalwa. Ngezinye izikhathi isimo asibonakali kahle ekuskenweni kwangaphambi kokuzalwa, ikakhulu uma lithambile.

Kufanele uxhumane nodokotela wakho wezingane ngokushesha uma ubona ukubonakala okungavamile kwendawo ye-genital yengane yakho entsha noma esiswini esiphansi. Themba izinzwa zakho - uma kukhona okuhlukile kunalokho obekulindele, kuhlale kungcono ukubuza.

Ezinganeni eziye zahlinzwa i-bladder exstrophy, kufanele ubizela udokotela wakho uma ubona izimpawu zokutheleleka njengoba ubona ubushushu, ukukhuluphala okukhulu ezindaweni zokuhlinzwa, noma ukukhishwa okungavamile. Ukushintsha emaphethini okuthambisa noma ubuhlungu obusha kufanele futhi kukhuthaze ukubiza iqembu lakho lezokunakekelwa kwezempilo.

Ziyini izinto ezingase zikhulise amathuba e-bladder exstrophy?

Izimo eziningi ze-bladder exstrophy zenzeka ngokungazelelwe, kodwa abacwaningi baye bathola izinto ezimbalwa ezingase zikhulise amathuba kancane. Kubalulekile ukukhumbula ukuthi lezi ziyizinto ezihambisana nje - ukuba nezinto ezingase zikhulise amathuba akusho ukuthi ingane yakho ngokuqinisekile izoba nalesi simo.

Lesi simo sivame kakhulu kubafana kunabesifazane, sihlupha cishe abafana abangu-2-3 ngamunye wesifazane. Izingane ezimhlophe zitholakala zine-bladder exstrophy kancane kunabantwana bezinye izizwe, nakuba lesi simo senzeka kuzo zonke izizwe nezizwe.

Ubudala obukhulu bomama (ngaphezulu kuka-35) buye bahlotshaniswa nokukhuphuka kancane kwengozi, kodwa lobu buhlobo abunamandla. Amanye ama-study ayisikisela ukuthi ukwelashwa okuthile kokuzala kungase kuhlangene nethuba elikhulu kancane le-bladder exstrophy, kodwa ubufakazi abunamandla.

Ukuba nomlando womndeni we-bladder exstrophy kukhuphula ingozi, kodwa kusaphansi kakhulu. Uma wena noma umlingani wakho wazalwa nalesi simo, amathuba akho okuthola ingane ehlushwayo cishe angu-1 kuya ku-70, okuphezulu kunabantu abavamile kodwa kusaphansi kakhulu.

Ziyini izingqinamba ezingase zenzeke nge-bladder exstrophy?

Nakuba i-bladder exstrophy iwelapheka kakhulu, ingabangela izingqinamba eziningi uma ingalawulwa kahle. Ukuqonda lezi zinto ezingase zenzeke kukusiza ukusebenza neqembu lakho lezokwelapha ukuvimbela noma ukulungisa ngokushesha.

Ukukhathazeka okukhulu kakhulu ukuvikela i-bladder evezwe ekuthelelekeni nasekulimala. I-bladder tissue ingavuvukala, ibe bukhulu, noma itheleleke ngoba ihlale ivezwe emoyeni nasebhaktheriya. Kungakho odokotela ngokuvamile becabanga ukuhlinzwa phakathi nezinsuku ezimbalwa zokuphila.

Nazi izingqinamba eziyinhloko ezingase zithuthuke:

• Ukulimala okuphindaphindayo kwe-urinary tract ngenxa yesakhiwo se-bladder esingavamile
• Ukulimala kwesibindi ngenxa ye-urine ebuyela emaphashini
• Ingozi yomdlavuza we-bladder, ophezulu kubantu abane-bladder exstrophy (nakuba kusaphansi kakhulu)
• Izingqinamba zokuzala kubantu besilisa nabesifazane ngenxa ye-genital ehlukile
• Izingqinamba ze-hip ezivela emathanjeni e-pubic ahlukene anethela ukuhamba
• Izingqinamba ezingokwengqondo ezihlobene nomfanekiso womzimba kanye nokuhlinzwa okuphindaphindayo
• Izingqinamba zokulawula ama-bowel uma i-rectum nayo ihlushwa

Izindaba ezinhle ukuthi ngokunakekelwa komtholampilo okufanele kanye nokulandelela okuvamile, izinto eziningi ezingase zenzeke zingavikelwa noma zilawulwe ngempumelelo. Abantu abaningi abane-bladder exstrophy bayaqhubeka beba nezingane zabo futhi baphile impilo evamile ngokuphelele.

Ungayivimba kanjani i-bladder exstrophy?

Ngeshwa, ayikho indlela eyaziwayo yokuvimba i-bladder exstrophy njengoba iyenzeka ngesikhathi sokuthuthuka kokukhulelwa kwasekuqaleni. Lesi simo senzeka ngokungazelelwe ezimweni eziningi, futhi akubangelwa yilutho abazali abalwenzayo noma abangalenzi.

Ukuthatha i-folic acid ngaphambi nangesikhathi sokukhulelwa kwasekuqaleni kuyelulekwa kubo bonke abesifazane, njengoba kusiza ukuvimbela ezinye izinto ezingase zenzeke ngesikhathi sokukhulelwa. Nakuba kungavimbeli ngokuqondile i-bladder exstrophy, kusekela ukuthuthuka okunempilo ngokujwayelekile.

Uma unomlando womndeni we-bladder exstrophy, ukwelulekwa kwe-genetic ngaphambi kokukhulelwa kungakusiza ukuqonda izingozi zakho nezinketho zakho. Umluleki angachaza amathuba okuthola ingane ehlushwayo futhi axoxe ngezinketho zokuhlola kwangaphambi kokuzalwa uma unesithakazelo.

Ukunakekelwa okuvamile kwangaphambi kokuzalwa nge-ultrasounds eningiliziwe ngezinye izikhathi kungathola i-bladder exstrophy ngaphambi kokuzalwa. Nakuba lokhu kungavimbeli lesi simo, ukutholakala kwasekuqaleni kuvumela iqembu lakho lezokwelapha ukuhlela ukulethwa kanye nokunakekelwa kwangokushesha, okungathuthukisa imiphumela yengane yakho.

I-bladder exstrophy ihlonishwa kanjani?

I-Bladder exstrophy ngokuvamile ihlonishwa ngezindlela ezimbili: ngaphambi kokuzalwa nge-ultrasound kwangaphambi kokuzalwa noma ngokushesha ngemva kokuzalwa lapho isimo sibonakala. Indlela ngayinye inenkathi yayo kanye nenqubo.

Ukuhlonishwa kwangaphambi kokuzalwa ngezinye izikhathi kwenzeka ngesikhathi se-ultrasounds evamile, ngokuvamile ngemva kwamasonto angu-15-20 okukhulelwa. Uchwepheshe we-ultrasound angase aphawule ukuthi i-bladder ayibonakali endaweni yayo evamile ngaphakathi kwe-pelvis, noma angase abone i-bladder evezwe esiswini sengane.

Kodwa-ke, ukutholakala kwangaphambi kokuzalwa akuvamile. Isimo singaphazanyiswa yi-ultrasounds, ikakhulu uma liyifomu elithambile noma uma isikhundla sengane kwenza kube nzima ukubona ngokucacile. Kungakho ezinye izimo zitholakala kuphela lapho kuzalwa.

Ngemva kokuzalwa, ukuhlonishwa kuyashesha futhi kubonakala. Iqembu lakho lezokwelapha lizohluza ingane yakho ngokuphelele futhi lingase li-order ezinye izivivinyo ezifana nezi:

• I-Kidney ultrasound ukuhlola noma yiziphi izingqinamba ze-kidney ezihlobene
• I-X-rays ukubona ukuhlukana kwamathambo e-pubic
• Izivivinyo zegazi ukuhlola umsebenzi we-kidney
• Ukuhlolwa kwe-genetic uma kukhona izimpawu zesimiso

Iqembu lakho lezokwelapha lizobuye lilinganise ubukhulu besimo ukuhlela indlela yokwelapha engcono kakhulu. Lolu hlolo lubasiza ukuqonda ukuthi yiziphi izakhiwo ezihlushwayo nokuthi ukuhlinzwa kuzoba yinkimbinkimbi kangakanani.

Ukuphathwa kwe-bladder exstrophy kuyini?

Ukuphathwa kwe-bladder exstrophy kuhilela ukuhlinzwa, kodwa isikhathi nendlela kuya ngesimo esithile sengane yakho. Umgomo oyinhloko ukususa i-bladder ngaphakathi komzimba, ukuvala udonga lwesisu, nokusiza ingane yakho ukufeza ukuthambisa okuvamile nokulawula.

Izingane eziningi zidinga ukuhlinzwa kwazo kokuqala phakathi kwamahora angu-48-72 ngemva kokuzalwa. Lolu hlelo lokuqala, oluthi yi-primary closure, luhilela ukufaka i-bladder ngaphakathi kwesisu nokuvala isikhala odongeni lwesisu. Udokotela ohlinzayo uletha amathambo e-pubic ahlukene eduze.

Ingane yakho cishe izodinga ukuhlinzwa okuqhubekayo njengoba ikhula. Ukuhlinzwa okukhulu kwesibili ngokuvamile kwenzeka phakathi kweminyaka engu-2-4 ukusiza ukufeza ukulawula kwe-urinary (ukukwazi ukugcina i-urine). Lokhu kungase kuhilele ukwenza i-bladder neck entsha noma ezinye izinguquko zokusiza ingane yakho ukulawula ukuthambisa.

Uhlelo lokwelapha ngokuvamile luhilela:

• Ukuhlinzwa kwe-primary closure ezinsukwini ezimbalwa zokuqala zokuphila
• Ukwakhiwa kabusha kwe-bladder neck phakathi kweminyaka engu-2-4
• Ukuhlinzwa kokwakhiwa kabusha kwe-genital ukuthuthukisa ukubonakala nomsebenzi
• Izinqubo ezengeziwe ezingase zibe khona zokulawula uma kudingeka
• Ukuvakasha okuvamile kokulandelela ukuhlola umsebenzi we-kidney nokuthuthuka

Ezinye izingane zingase zidinga i-clean intermittent catheterization (CIC) ukuze zikhulule i-bladder ngokuphelele. Lokhu kuhilela ukufaka i-tube encane e-bladder izikhathi eziningi ngosuku, futhi izingane eziningi zifunda ukwenza lokhu ngokwazo njengoba zikhula.

Indlela yokuphatha ukunakekelwa kwasekhaya ngesikhathi sokwelashwa kwe-bladder exstrophy?

Ukunakekela ingane ene-bladder exstrophy ekhaya kudinga ukunakekelwa okukhethekile, kodwa kuba yinto evamile ngokuzijwayeza. Iqembu lakho lezokwelapha lizokufundisa konke okudingayo ukukwazi, futhi uzothola usizo olukhulu endleleni.

Ngaphambi kokuhinzwa kokuqala, kuzodingeka uvikele i-bladder evezwe ngokuyimboza nge-plastic wrap ecacile futhi uyigcine emanzi nge-saline solution. Usihlengikazi wakho uzokubonisa indlela eqondile, futhi kulula kunokuzwakala.

Ngemva kokuhlinzwa, ukunakekelwa kwesilonda kuba kubalulekile. Uzofunda indlela yokugcina izindawo zokusika zicocekile futhi zomile, uqaphele izimpawu zokutheleleka, futhi unikeze imithi njengoba kuyalelwe. Izingane eziningi ziphulukana kahle futhi zijwayele ngokushesha nenqubo yazo yokunakekelwa.

Nansi into ukunakekelwa kwasekhaya okuvamile okuhilela:

• Ukupha ama-antibiotics njengoba kuyalelwe ukuvimbela ukutheleleka kwe-urinary tract
• Ukufunda amasu oku-catheterization uma ingane yakho iyadinga
• Ukuqapha izimpawu zokutheleleka njengoba ubona ubushushu, ukukhishwa okungavamile, noma ubuhlungu obukhulu
• Ukugcina izivivinyo zokulandelela zokuhlola izilonda kanye nokuqapha ukuthuthuka
• Ukugcina ukuhlanzeka okuhle ezindaweni ze-genital kanye nezohlinzwa
• Ukukhuthaza imisebenzi evamile ngenkathi ulandela noma yikuphi ukulinganiselwa kokunyakaza

Ingane yakho ingaba yingxenye yemisebenzi yabantwana evamile. Ukubhukuda ngokuvamile kulungile ngemva kokuba izindawo zohlinzwa ziphulukile, futhi imidlalo eminingi ingasebenza ngezinguquko ezithile. Iqembu lakho lezokwelapha lizokukhokhela noma yikuphi ukulinganiselwa okukhethekile.

Kufanele ulungiselele kanjani i-appointment yakho yodokotela?

Ukulungiselela izivivinyo kukusiza ukwenza kakhulu isikhathi sakho neqembu lezokwelapha futhi kuqinisekisa ukuthi uthola yonke imibuzo yakho iphendulwe. Lokhu kubaluleke kakhulu lapho uphatha isimo esiyinkimbinkimbi njenge-bladder exstrophy.

Bhala imibuzo yakho ngaphambi kokuvakasha ngakunye, njengoba kulula ukukhohlwa izinto ezibalulekile lapho use-appointment. Gcina incwadi noma uhlu lwefoni lezimpawu, izinguquko, noma ukukhathazeka okuye kwabonakala kusukela ekuvakasheni kokugcina.

Letha uhlu lwayo yonke imithi ingane yakho eyiphuzayo, kufaka phakathi imithamo nokuthi bayithatha kangaki. Letha futhi noma yiziphi iziphumo zezivivinyo zakamuva noma amarekhodi avela kwabanye odokotela uma ubone ochwepheshe kwenye indawo.

Cabanga ukuletha ilungu lomndeni elisekela noma umngani ezivivinyweni, ikakhulukazi ngezivakashi zokuhlela ukuhlinzwa. Bangakusiza ukukhumbula ulwazi futhi banikeze ukwesekwa ngokomzwelo ngesikhathi soxoxa ngezinketho zokwelapha.

Lungisa imibuzo ekhethekile mayelana nokuthuthuka kwengane yakho, ukuhlinzwa kwesikhathi esizayo, ukulinganiselwa kwemisebenzi, kanye nombono wesikhathi eside. Unganqikazi ukubuza nganoma yini ekukhathazayo, kungakhathaliseki ukuthi ingase ibonakale incane kangakanani.

Yini eyinhloko mayelana ne-bladder exstrophy?

I-Bladder exstrophy yisimo esinzima kodwa esilawuleka kakhulu esihlupha izingane kusukela ekuzalweni. Nakuba idinga ukuhlinzwa okuningi kanye nokunakekelwa komtholampilo okuqhubekayo, iningi lezingane ezinesimo siphulukana futhi ziphila impilo egcwele, enempilo, neyamandla.

Into ebaluleke kakhulu okumele uyikhumbule ukuthi awuwedwa kule ndlela. Amaqembu e-urology ezingane anamava kakhulu ekwelapheni i-bladder exstrophy, futhi kukhona amaqembu wokusekela kanye nezinto ezikhona zokusiza imindeni ukuhamba ngezinselele.

Ngokunakekelwa komtholampilo okufanele, izingane eziningi zifeza ukulawula okuhle kwe-urinary kanye nomsebenzi we-kidney ovamile. Zingaba yingxenye yemidlalo, ziye esikoleni esivamile, futhi zilandele amaphupho azo njenganoma yiliphi elinye ingane. Isikhiye ukusebenza eduze neqembu lakho lezokwelapha nokulandela uhlelo lokwelapha.

Khumbula ukuthi uhambo lwengane ngayinye luyizinto ezihlukile, futhi imiphumela iyaqhubeka ithuthuka njengoba amasu okuhlinzwa ethuthuka. Hlala unethemba, buza imibuzo, futhi gubha izinqoba ezincane endleleni.

Imibuzo evamile ebuzwa mayelana ne-bladder exstrophy

Ingane yami ene-bladder exstrophy ingaba nezingane zayo ngolunye usuku?

Yebo, abantu abaningi abane-bladder exstrophy bangaba nezingane, nakuba amanani okukhiqiza ingane angase aphansi kunokuvamile. Amandla okukhiqiza ingane kubantu besilisa ngokuvamile aphezulu kunabesifazane, kodwa ukukhulelwa kungenzeka kwabesifazane abane-bladder exstrophy.

Ukuhlinzwa kokwakhiwa kabusha kwe-genital kusiza ukuthuthukisa kokubili umsebenzi nokubonakala, okusekela ubuhlobo obuvamile obuseduze. Iqembu lezokwelapha lengane yakho lixoxa ngezinketho zokulondoloza ukukhiqiza ingane lapho kufanele futhi liphendule imibuzo mayelana nohlelo lokuphila lomndeni.

Ingane yami izoqhubeka isebenzisa ama-catheters?

Akunjalo ngokuqinisekile. Izingane eziningi ezine-bladder exstrophy ekugcineni zifeza ukulawula ngaphandle kokudingama-catheters, ikakhulukazi ngokuhlinzwa okuphumelelayo kokwakhiwa kabusha kwe-bladder neck. Kodwa-ke, ezinye izingane zidinga ukusebenzisa i-clean intermittent catheterization.

Uma kudingeka i-catheterization, izingane eziningi zifunda ukwenza lokhu ngokwazo ngesikhathi sesikolo. Kuyaba yingxenye yomsebenzi wazo wansuku zonke, ifana nokugeza amazinyo, futhi ayivimbeli ekuhlanganyeleni kwemisebenzi evamile.

Zingaki ukuhlinzwa ingane yami ezokudinga?

Izingane eziningi zidinga ukuhlinzwa okukhulu okuyi-2-4, kodwa inani eliqondile liya ngesimo esithile sengane yakho nokuthi ziphendula kanjani ekwelapheni. Ukuhlinzwa kokuqala kwenzeka esikhathini esisha, kulandele izinqubo zokulawula phakathi kweminyaka engu-2-4.

Ukuhlinzwa okuqhubekayo kungase kudingeke ngokwakhiwa kabusha kwe-genital noma uma izingqinamba zivele. Iqembu lakho lokuhlinzwa lixoxa ngesikhathi esilindelekile futhi likusize ukulungiselela isinyathelo ngasinye.

I-bladder exstrophy ingatholakalwa ngesikhathi sokukhulelwa?

Ngezinye izikhathi, kodwa akunjalo njalo. I-Bladder exstrophy ingabonakala kwi-ultrasounds eningiliziwe ngemva kwamasonto angu-15-20 okukhulelwa, kodwa ngokuvamile ayitholakali. Izinga lokutholakala liyathuthuka ngeteknoloji engcono ye-ultrasound kanye nochwepheshe abanamakhono amakhulu.

Ngisho nalapho kutholakala kwangaphambi kokuzalwa, akushintshi indlela yokwelapha, kodwa kuvumela imindeni ukuba ilulele ngokomzwelo nangokwenhlangano ngezidingo zokunakekelwa kwengane yabo.

Yini umbono wesikhathi eside wezingane ezine-bladder exstrophy?

Umbono wesikhathi eside muhle kakhulu ngokwelashwa okufanele. Izingane eziningi zifeza ukulawula, zine-kidney function evamile, futhi ziphile impilo evamile ngokuphelele. Ziya esikoleni esivamile, zihlanganyele emidlalweni, zilandele imisebenzi, futhi zibe nemindeni yazo.

Ukulandelela okuvamile neqembu le-urology kubalulekile ekuphileni konke ukuhlola umsebenzi we-kidney kanye nempilo ye-bladder. Ngokunakekelwa komtholampilo okuhle, abantu abane-bladder exstrophy bangalindela isikhathi sokuphila esivamile kanye nekhwalithi yempilo.