Ukuthi yini i-Ehlers-Danlos Syndrome? Izimpawu, Izimbangela, & Ukwelashwa

I-Ehlers-Danlos syndrome (EDS) iyinhlangano yezimo eziwela ezindlelweni, ezihlasela izicubu ezihlanganisayo zomzimba wakho - "ukuncamathela" okuhlanganisa isikhumba sakho, izintambo, imithambo yegazi, namalungu. Cabanga ngezicubu ezihlanganisayo njengoba kungumklamo wendlu; uma kungelona oluqinile njengoba kufanele kube, izingxenye ezahlukene zomzimba wakho zingaba buthakathaka noma zoluleke kakhulu kunokujwayelekile.

Lesi simo sihlukanisa wonke umuntu ngokuhlukile, futhi abantu abaningi abane-EDS baphila impilo egcwele, esebenzayo ngokusekelwa okulungile nokuphathwa. Nakuba kubhekwa njengokungavamile, kuhlukanisa cishe umuntu omunye ku-5,000, ukuqonda izimpawu zakho kungakusiza ukusebenza nabaphakeli bezempilo ukuthola indlela engcono kakhulu yokuphambili.

Ukuthi yini i-Ehlers-Danlos Syndrome?

I-Ehlers-Danlos syndrome kwenzeka lapho umzimba wakho ungenzi i-collagen ngokufanele. I-Collagen ifana nesakhiwo esinikeza ubukhulu namandla esikhumbeni sakho, ezintambo, nasemalungwini. Uma lesi sakhiwo singakhiwa kahle, singenza lezi zicubu zibe nokuthambile, buthakathaka, noma zithambekele ekulimala kunokuba kufanele kube.

Kunezinhlobo eziyi-13 ze-EDS ezahlukene, ngayinye ihlasela umzimba ngezindlela ezihlukile kancane. Uhlobo oluvamile kakhulu, oluthiwa yi-hypermobile EDS, luhlukanisa ikakhulukazi izintambo zakho futhi luzenze ziguquguqukeke kakhulu. Ezinye izinhlobo zingathinta isikhumba sakho, imithambo yegazi, noma amalungu ngokubaluleke kakhulu.

Izinhlobo eziningi ze-EDS zidluliselwa emindenini, nakuba ngezinye izikhathi zingabonakala okokuqala kumuntu ongenayo umlando womndeni. Lesi simo sihlukanisa abantu bazo zonke izizinda ngokulinganayo, futhi izimpawu zingaba ezincane noma ezinzima kakhulu.

Ziyini izimpawu ze-Ehlers-Danlos Syndrome?

Izimpawu ongazihlangabezana nazo ziyahluka kuye ngohlobo lwe-EDS olukhona, kepha kunezibonakaliso ezivamile abantu abaningi abazibonayo. Izimpawu zakho zingaba zincane futhi azibonakali, noma zingaba zikhulu futhi zihlukanise impilo yakho yansuku zonke.

Izimpawu ezivamile kakhulu zihlanganisa:

• Izintambo ezinobuningi obukhulu - Ungase ukwazi ukugoqa izintambo zakho ngaphezu kwabantu abaningi, ngezinye izikhathi kubizwa ngokuthi "ukuba nezintambo ezimbili"
• Ubuhlungu nokuqina kwezintambo - Ikakhulukazi ngemva kwemisebenzi noma ekupheleni kosuku
• Ukukhishwa kwezintambo njalo - Izintambo eziphuma endaweni kalula, ngokuvamile ngaphandle kokulimaza okukhulu
• Isikumba esithambile, esinokunyathela - Isikumba sakho singase sizizwe silukhuni futhi sinyathele ngaphezu kokujwayelekile
• Ukubulala kalula - Ungase ubulale ngamahlabathana amancane noma ngezinye izikhathi ngaphandle kokukhumbula ukulimala
• Izilonda eziphola kancane - Ukusika nokuqeda kungase kuthathe isikhathi eside ukuphulukisa kunokulindelekile
• Ukukhathala - Ukuzizwa ukhathele kaningi, ikakhulukazi ngemva kwemisebenzi yomzimba

Abanye abantu nabo baye baba nezinkinga zokugaya ukudla, ukushaya kwenhliziyo, noma ukukhungatheka uma bekuma. Lezi zimpawu zingase ziye ziye, futhi ungase ube nezinsuku ezinhle nezinsuku ezinzima kakhulu.

Izinhlobo ezithile ezingavamile ze-EDS zingabangela izimpawu ezinzima kakhulu ezihlasela inhliziyo yakho, imithambo yegazi, noma izitho. Uma unebuhlungu esifubeni esibi, ukushintsha kokubona ngokuzumayo, noma ezinye izimpawu ezikhathazayo, kubalulekile ukufuna usizo lochwepheshe ngokushesha.

Ziyini izinhlobo ze-Ehlers-Danlos Syndrome?

Kunezinhlobo eziyi-13 ezivunyiwe ze-EDS, ngayinye inephethini yayo yezimpawu. Ukuqonda ukuthi yiluphi uhlobo olungase lube nakho kusiza iqembu lakho lokunakekelwa kwezempilo ukunikeza ukunakekelwa nokugadwa okuhle kakhulu.

Izinhlobo ezivame kakhulu zihlanganisa:

• I-EDS (hEDS) - Uhlobo oluvamile kakhulu, oluthinta ikakhulukazi izikhamiso ezinokuguquguquka okukhulu nobuhlungu
• I-EDS (cEDS) - Lithinta isikhumba nezikhamiso, libonisa isikhumba esishelelayo kakhulu namathambo alula
• I-EDS ye-Vascular (vEDS) - Uhlobo oluyingozi kakhulu, oluthinta imithambo yegazi namalungu
• I-EDS ye-Kyphoscoliotic (kEDS) - Lithinta umgogodla, libonisa ukugoba okukhulu nobuthakathaka bemisipha
• I-EDS ye-Arthrochalasia (aEDS) - Libangela ukuguquguquka okukhulu kwezikhamiso nokuphuma kwazo njalo

Uhlobo ngalunye lunamigomo ethile yokuxilongwa, futhi amanye angaqinisekiswa ngokuhlolwa kwe-genetic, kuyilapho amanye exilongwa ngokusekelwe ezimpawu zokwelapha. Udokotela wakho angakusiza ukuthola uhlobo olufanelana kangcono nezimpawu zakho nomlando womndeni wakho.

Izinhlobo ezingavamile ze-EDS zingathinta izinhlelo zomzimba ezithile kakhulu, njengokuzwa kwakho, amazinyo, noma ukusebenza kwenhliziyo yakho. Lezi zinhlobo zivame ukudinga ukunakekelwa okukhethekile kwabachwepheshe bezokwelapha abaningi.

Yini ebangela i-Ehlers-Danlos Syndrome?

I-EDS ibangelwa izinguquko (izinguquko) ezinjini zakho eziqondisa indlela umzimba wakho okwenza ngayo i-collagen. Lezi zinguquko ze-genetic ngokuvamile zidluliselwa kubazali oyedwa noma bobabili, nakuba ngezinye izikhathi zingase zenzeke ngokungazelele ngaphandle komlando womndeni.

I-genes ezahlukene zibhekene nezinhlobo ezahlukene ze-EDS. Isibonelo, izinguquko ku-COL5A1 noma ku-COL5A2 i-genes ngokuvamile zibangela i-classical EDS, kuyilapho izinguquko ku-COL3A1 i-gene zibangela uhlobo oluyingozi kakhulu lwe-vascular.

Izinhlobo eziningi ze-EDS zilandela lokho okubizwa ngokuthi iphethini ebusayo ye-autosomal. Lokhu kusho ukuthi udinga ukudlulisela i-gene eyodwa eguqukile kubazali oyedwa ukuze ube nesimo. Noma kunjalo, ezinye izinhlobo ezingavamile zidinga ukudlulisela i-genes eguqukile kubazali bobabili.

Uma une-EDS, ngokuvamile kunesilinganiso esingu-50% sokuyithumela kubantwana bakho ngamunye, nakuba lokhu kuyahluka kuye ngohlobo oluthile. Ukuqondisa ngokuzalwa kungakusiza ukuqonda isimo sakho esithile nezinketho zokuhlela umndeni.

Nini kufanele ubona udokotela nge-Ehlers-Danlos Syndrome?

Kufanele ucabangele ukukhuluma nodokotela uma ubona izimpawu eziningi ezingase ziphakamise i-EDS, ikakhulukazi uma zithinta ikhwalithi yokuphila kwakho. Ukuqaphela kwasekuqaleni kungakusiza ukuthola ukunakekelwa okufanele futhi uvikele izinkinga.

Hlela i-aphoyintimenti uma uhlangabezana nalokhu okulandelayo:

• Ukukhishwa kwemihlangano njalo noma ukungapheleli kokukhishwa (ukukhishwa okungaphelele)
• Ubuhlungu obungapheli bemihlangano obungaphuli ngokuphumula
• Isikumba esinokunwaba okungavamile esiphenduka kancane
• Ukukhuluphala okulula ngaphandle kwesizathu esicacile
• Izilonda eziphulukayo kancane noma zishiya amabala angavamile
• Umbukiso womndeni we-EDS noma izimpawu ezifanayo

Funani ukunakekelwa kwezokwelapha ngokushesha uma unezimpawu ezingase ziphakamise i-EDS ye-vascular, njengokubuhlungu okukhulu ngokuzumayo kwesifuba noma esiswini, ukushintsha kokubona ngokuzumayo, noma izikhathi ezinzima zikhanda. Nakuba i-EDS ye-vascular iyindlala, idinga ukuhlolwa okusheshayo.

Ungakhathazeki uma izimpawu zakho zibonakala zingenamandla - abantu abaningi abane-EDS baphila impilo evamile ngokuphathwa okuqondile. Ukuthola ukuxilongwa empeleni kungaba kuqinisekisa futhi kukusize uthole ukwesekwa nokuphathwa okulungile.

Ziyini izici ezingozi ze-Ehlers-Danlos Syndrome?

Isici esiyinhloko sokungozi lwe-EDS ukuba nomlando womndeni wesimo. Njengoba izinhlobo eziningi zidluliselwa, ukuba nomzali onale-EDS kukhuphula kakhulu amathuba akho okuba nayo.

Kodwa-ke, izici eziningi zingathinta indlela i-EDS ekukuthinta ngayo:

• Umlando womndeni - Ukuba nomzali noma umfowethu noma udadewethu onale EDS noma izimpawu ezifanayo
• Ubulili - Ezinye izimpawu, ikakhulukazi ukuguquguquka kwamajozi, kungabonakala kakhulu kwabesifazane
• Iminyaka - Izimpawu zivame ukubonakala ngokucacile phakathi nokuqina noma ekuqaleni kokukhula
• Izinga lomsebenzi womzimba - Kokubili ukusebenza okuningi kakhulu nokusebenza okuncane kakhulu kungenza izimpawu zibe zimbi
• Ukushintsha kwamahomoni - Ukukhulelwa, ukuqina, noma ukuyeka ukuya esikhathini kungathinta ubukhulu bezimpawu

Kubalulekile ukukhumbula ukuthi ukuba nezici ezingozi akusho ukuthi uzophuthuma ube nezinkinga. Abantu abaningi abane-EDS baphila impilo esebenzayo, eanelisayo ngokufunda ukuphatha izimpawu zabo ngokuphumelelayo.

Ngezinye izikhathi i-EDS ingabonakala emindenini lapho kungekho muntu omunye obonakala ethintekile. Lokhu kungenzeka ngoba izizukulwane zangaphambili zazinezimpawu ezincane ezazingabonakali, noma ngenxa yokushintsha okusha kwe-genetic.

Ziyini izinkinga ezingase zenzeke ngenxa ye-Ehlers-Danlos Syndrome?

Nakuba abantu abaningi abane-EDS baphatha isimo sabo kahle, kuwusizo ukuqonda izinkinga ezingase zenzeke ukuze ukwazi ukusebenza neqembu lakho lokunakekelwa kwezempilo ukuze uzivimbe. Izinkinga eziningi ziphatheka uma zitholakala ngokushesha.

Izinkinga ezivamile ongahlangana nazo zihlanganisa:

• Ubuhlungu obungapheli kwamajozi - Ukungakhululeki okuqhubekayo okungathinta imisebenzi yansuku zonke
• Ukulimala okuvamile - Ukuphahlazeka, ukucindezeleka, nokuphuma kwamajozi emisebenzini evamile
• I-Osteoarthritis - Ukugqwala nokukhahlela kwamajozi ngokushesha ngenxa yokungazinzi
• Ukukhathala okungapheli - Ukukhathala okuqhubekayo okungaphuli ngokuphumula
• Izinkinga zokugaya - Izinkinga zokugaya, kufaka phakathi i-gastroparesis noma i-reflux
• Izinkinga zamahlombe - I-gum disease, ukucindezeleka kwamazinyo, noma izinkinga zamahlombe

Ezinye izinkinga ezingathi sína zingaba khona, kodwa azivamile. Lezi zingafaka izingqinamba zevalvu yentliziyo, ukwanda kwe-aorta, noma ukuqhekeka kwamalungu emizweni ethile ye-EDS, ikakhulukazi i-EDS yezinzwa.

Izindaba ezinhle ukuthi ukulandelela njalo nokunakekelwa okuvimbelayo kungasiza ekutholeni izinkinga ezingaba khona ekuqaleni. Ukusebenzisana eduze neqembu lakho lokunakekelwa kwezempilo kukuvumela ukuthi uqhubeke phambili nezingqinamba futhi ugcine ikhwalithi yokuphila kwakho.

Ukuvimbela i-Ehlers-Danlos Syndrome kungenzeka kanjani?

Njengoba i-EDS isimo sezofuzo, awukwazi ukuyivimbela. Kodwa-ke, ungathatha izinyathelo eziningi zokuvimbela izinkinga nokuphatha izimpawu zakho ngokuphumelelayo, okungenza umehluko omkhulu endleleni isimo elithinta ngayo impilo yakho.

Gxila kulezi zindlela zokuvimbela:

• Ukuzivocavoca okuthambile, okuvamile - Ukwakha amandla emisipha ukuze usekele izintambo ezingaqinile
• Ukwelashwa komzimba - Ukufunda izindlela ezifanele zokunyakaza nezinqubo zokuvikela izintambo
• Ukudla okuhle - Ukusekela ukululama komzimba wakho nezidingo zamandla
• Ukulala okwanele - Ukusiza umzimba wakho ukuba ulungise futhi uphathe ubuhlungu
• Ukuphathwa kwengcindezi - Ukunciphisa izinto ezingenza izimpawu zibe zimbi
• Ukuvikela elangeni - Ukuvikela isikhumba esibuthakathaka ekubeni lilimale

Uma uhlela umndeni futhi une-EDS, ukwelulekwa kwezofuzo kungakusiza ukuqonda izingozi nezinketho ezikhona. Lokhu akusho ukuthi akufanele ube nabantwana - abantu abaningi abane-EDS bayazali abahle abaphatha ngempumelelo kokubili isimo sabo nempilo yomndeni.

Ukuqaphela ekuqaleni nokungenelela kuvame ukubangela imiphumela emihle. Uma i-EDS ikhona emndenini wakho, ukuba uqaphele izimpawu kubantwana kungabasiza ukuthola ukwesekwa ngokushesha kunokuba kube sekwephuzile.

I-Ehlers-Danlos Syndrome ihlonishwa kanjani?

Ukuxilongwa kwe-EDS kuhilela ukuhlolwa ngokucophelela kwezimpawu zakho, umlando womndeni, kanye nokuhlolwa komzimba. Ayikho ivivi elilodwa elingaxilonga zonke izinhlobo ze-EDS, ngakho-ke udokotela wakho uzosebenzisa izindinganiso ezithile ezenziwe ochwepheshe kule ndawo.

Umhlinzeki wakho wezinsizakalo zezempilo ngokuvamile uzoqala ngokuthi:

• Ukuhlaziya umlando wakho wezokwelapha - Kuhlanganisa nomlando womndeni kanye nezethameli zezimpawu
• Ukuhlolwa komzimba - Ukuhlola ukuguquguquka kwamajozi, ubukhulu besikhumba, kanye nezikhombiso
• Ukuhlolwa kokuguquguquka okukhulu - Ukusebenzisa izikali ezimisiwe ukuze kuqale ukuguquguquka kwamajozi
• Ukuhlolwa kwezimpawu - Ukuqapha izindlela zobhlungu, ukukhathala, nezinye izimpawu

Kwezinye izinhlobo ze-EDS, ukuhlolwa kwe-genetic kungaqinisekisa ukuxilongwa. Noma kunjalo, ku-hypermobile EDS (uhlobo oluvamile kunazo zonke), ukuxilongwa kusekelwe ngokuphelele ezindinganisweni zezokwelapha njengoba imbangela ye-genetic ingakaaziwa.

Udokotela wakho angase akuqondise kubachwepheshe abanjengabachwepheshe be-genetic, i-rheumatologists, noma i-cardiologists ukuze kwenziwe ukuhlolwa okuengeziwe. Le ndlela ephelele iqinisekisa ukuthi uthola ukuxilongwa okuchane kanye nokulandelela okufanele kohlu lwakho oluthile lwe-EDS.

Iyini impilo ye-Ehlers-Danlos Syndrome?

Nakuba ayikho impilo ye-EDS, kunezindlela eziningi ezisebenzayo ezingakusiza ukuthi uphathe izimpawu futhi uvikele ukuphazamiseka. Ikhona ukufumana ukuhlanganiswa okulungile kwezindlela ezisebenza esimweni sakho esithile.

Ukuphathwa kuvame ukugxila ekutheni:

• Ukuphathwa komzimba - Ukuqina kwemisipha ezungezile izikhonkwane nokufunda izindlela zokunyakaza eziphephile
• Ukuphathwa kobuhlungu - Ukusebenzisa imithi, ukushisa, ukubanda, noma ezinye izindlela zokulawula ubuhlungu
• Ukuvikela izikhonkwane - Ama-brace, izesekeli, noma ama-splint ukuvimbela ukulimala
• Izinhlelo zokujima - Imisebenzi engenamthelela njokubhukuda noma i-yoga ebushelelezi
• Ukuphathwa komsebenzi - Ukufunda ukuguqula imisebenzi yansuku zonke ukuze kunciphise ukucindezeleka
• Imithi - Yokuhlungu, ukuvuvukala, noma izimpawu ezithile njengengxaki zenhliziyo

Iqembu lakho lokwelapha lingase lifake ochwepheshe bezokwelapha komzimba, ochwepheshe bezifo ze-rheumatologist, ochwepheshe bezinhliziyo, nabanye ochwepheshe kuye ngezimpawu zakho. Le ndlela yeqembu iqinisekisa ukuthi zonke izinhlangothi zesimo sakho zixazululwe.

Abantu abaningi bathola ukuthi ukuhlanganisa ukwelashwa kwezokwelapha nokuguqulwa kwesitayela sokuphila kubanika imiphumela emihle kakhulu. Okusebenza kungase kuhluke komunye umuntu komunye, ngakho ungadangali uma kuthatha isikhathi ukuthola uhlelo lwakho lokwelapha oluhle kakhulu.

Indlela yokuphatha i-Ehlers-Danlos Syndrome ekhaya?

Ukuphathwa ekhaya kuyisigaba esibalulekile sokuphila kahle ne-EDS. Izinqumo zansuku zonke ozithathayo zingathinta kakhulu indlela ozizwa ngayo nokuthi usebenza kanjani, futhi abantu abaningi bathola impumelelo enkulu ngamasu okuzinakekela okuqhubekayo.

Ukuphathwa ekhaya okuphumelelayo kufaka phakathi:

• Ukunyakaza okuthambile nsuku zonke - Ngisho nemizuzu engu-10-15 yokuzivocavoca efanele kungasiza
• Ukwelapha ngokushisa nangokubanda - Ukusebenzisa iziketi ezishisayo noma izikhwama zokubanda ukuqeda ubuhlungu
• Ukuhlanza kahle kokulala - Ukudala indawo yokulala enhle ngamakhadi asekelayo
• Amathekhniki okuqeda ukucindezeleka - Njengokuzindla, ukuphefumula okujulile, noma imisebenzi ethambile
• Ukugcwala kahle kwamanzi nokudla okunempilo - Ukusekela izinqubo zokwelapha umzimba wakho
• Ukulinganisela umsebenzi - Ukulinganisela umsebenzi nokuphumula ukuvimbela ukubhebhetheka

Ukufunda ukulalela umzimba wakho kubalulekile. Ngezinye izinsuku ungase uzizwe ukhulu futhi ufune ukwenza okuningi, kuyilapho ngezinye izinsuku ungase udinga ukuphumula kakhulu. Kokubili kuyinto evamile nge-EDS.

Cabanga ngokuqapha idayari yezimpawu ukuze ubone izindlela zokuthi yini esiza noma ebiyisa izimpawu zakho. Ulwazi lolu lungaba lubalulekile lapho usebenza neqembu lakho lokunakekelwa kwezempilo ukuze ulungise uhlelo lwakho lokwelapha.

Kufanele uzilungiselele kanjani ukubona udokotela wakho?

Ukulungiselela i-aphoyintimenti yakho kungakusiza ukuba uthole okuningi ngesikhathi sakho nomhlinzeki wakho wezempilo. Ukulungiselela okuhle kuvame ukubangela ingxoxo enenzuzo kakhulu nokukhathalela okuhle.

Ngaphambi kwe-aphoyintimenti yakho:

• Bhala uhlu lwezimpawu zakho - Faka lapho zaqala khona, yini eyenza zibe ngcono noma zimbi
• Butha umlando womndeni - Ulwazi mayelana nezihlobo ezinalezi zimpawu ezifanayo noma i-EDS
• Letha imithi yakho yamanje - Kuhlanganise nezinye izinto kanye nezinye izindlela zokwelapha
• Lungiselela imibuzo - Bhala phansi lokho ofuna ukukwazi noma ukuxoxa ngakho kakhulu
• Bhala imiphumela - Indlela izimpawu ezikuthinta ngayo impilo yakho yansuku zonke, umsebenzi, noma imisebenzi
• Letha amarekhodi adlule - Imiphumela yokuhlola, izithombe, noma imibiko evela kwabanye odokotela

Ungakhathazeki ngokuba nezimpendulo zonke noma ngokuchaza konke ngokuphelele. Udokotela wakho ulapho ukuze akusize uhlanganise izingcezu futhi akuqondise ekulawuleni kangcono izimpawu zakho.

Cabanga ukuthi ulethe umngane othembekile noma ilungu lomndeni uma ucabanga ukuthi kuzosiza. Bangase bakhumbule imininingwane oyikhumbula, noma banikeze ukwesekwa ngokomzwelo ngesikhathi sokuqokwa.

Iyini into ebalulekile mayelana ne-Ehlers-Danlos Syndrome?

I-Ehlers-Danlos syndrome iyimo eliphatheka elisebenza ngendlela ehlukile kubantu abaningi. Nakuba lingase libe nezinkinga, abantu abaningi abane-EDS baphila impilo egcwele, esebenzayo ngokwesekwa okufanele nendlela yokwelashwa.

Izinto ezibaluleke kakhulu okumele uzikhumbule ukuthi ukuqaphela kwasekuqaleni kuholela emiphumeleni emihle, futhi kunezindlela eziningi zokwelapha ezisebenzayo ezitholakalayo. Ukusebenzisana nabaphakeli bezempilo abanolwazi nokufunda ukulawula izimpawu zakho kungenza umehluko omkhulu ezingeni lokuphila kwakho.

Awuwedwa ekusebenjani ne-EDS. Kunezinkampani ezisekelayo, izinsiza eziwusizo, nabachwepheshe bezempilo abaqonda leli gciwane. Ngokubekezela, ukuzikhulumela, nesistimu yokusekela efanele, ungaphila impilo ngempumelelo ne-EDS.

Imibuzo evame ukubuzwa mayelana ne-Ehlers-Danlos Syndrome

Q1: Ingabe i-Ehlers-Danlos syndrome iyisongo elikhulu empilweni?

Izinhlobo eziningi ze-EDS azisiyisongo elikhulu empilweni futhi abantu baphila isikhathi eside esijwayelekile. Kodwa-ke, i-vascular EDS (uhlobo oluyimfihlo kakhulu) ingaba nzima kakhulu ngoba ithinta imithambo yegazi namalungu. Ngisho nange-vascular EDS, abantu abaningi baphila kahle ngokubeka iliso okufanele nokunakekelwa. Ithimba lakho lezempilo lizokusiza uqonde isimo sakho esithile nanoma yiziphi izinyathelo zokuqapha ongafuna ukuzithatha.

Q2: Ungaqeqesha nge-Ehlers-Danlos syndrome?

Yebo, ukuzivocavoca kuzuzisa kakhulu abantu abaningi abane-EDS. Ikhona into ebalulekile yokukhetha izinhlobo ezifanele zokuzivivinya nokuzenza ngokuphepha. Imisebenzi engathinti kakhulu njokubhukuda, i-yoga ebushelelezi, kanye nokuqeqeshwa kwamandla kungasiza ekuzinziseni izikhamiso zakho nokunciphisa ubuhlungu. Uchwepheshe wakho wezokwelapha angakusiza ekuthuthukiseni uhlelo lokuzivocavoca oluphephile futhi oluphumelelayo ngezidingo zakho ezithile.

UMbuzo 3: Ingabe i-Ehlers-Danlos syndrome iba mbi njengoba umuntu esekhulile?

I-EDS ibathinta abantu ngezindlela ezahlukene ekuphileni kwabo. Abanye abantu bathola ukuthi izimpawu zabo ziqala ukulawuleka njengoba befunda amasu angcono okuqondana nazo, kanti abanye bangase baphawule ukukhula kokukhuluphala kwezinhlangothi noma i-arthritis ngokuhamba kwesikhathi. Izindaba ezinhle ukuthi ngokuphathwa okuhle, abantu abaningi bagcina ikhwalithi yempilo yabo kahle naseminyakeni yabo yokuqala. Ukunakekelwa okuqhubekayo kwezokwelapha nokusebenza ngokuzikhandla kungasiza ekuvimbeni izinkinga.

UMbuzo 4: Ingabe ukukhulelwa kungaphephile nge-Ehlers-Danlos syndrome?

Abantu abaningi abane-EDS banokukhulelwa okuphumelelayo, yize kubalulekile ukusebenzisana eduze nabaphakeli bezempilo abaqonda lesimo. Ezinye izimpawu zingase zibe zimbi ngesikhathi sokukhulelwa ngenxa yenguquko yamahomoni, futhi izinyathelo zokuqapha ezinye zingase zidingeke kuye ngohlobo lwakho lwe-EDS. Ukuxoxa ngezinhlelo zakho nodokotela wakho kanye nochwepheshe wezokwelapha wamama nabantwana kungasiza ekuqinisekiseni ukukhulelwa okuvikelekile kakhulu.

UMbuzo 5: Ngingazi kanjani ukuthi ingane yami ingaba ne-Ehlers-Danlos syndrome?

Izingane ezine-EDS zingase zibonise izimpawu ezifana nokuguquguquka okungavamile kwezinhlangothi, ukulimala okuvamile, isikhumba esithambile, noma ukulunywa okulula. Zingase zikhononde ngebuhlungu bezinhlangothi noma zibonakale zikhathala kalula. Noma kunjalo, izingane eziningi ziguquguquka ngokwemvelo, ngakho kubalulekile ukubheka izindlela nokuqondana nezinkathazo nodokotela wakho wezingane. Ukuqaphela okusheshayo kungasiza izingane ukuthi zithole ukwesekwa okufanele futhi zifunde ukuphatha izimpawu zazo kusukela ebuntwaneni.