Iyini i-FSGS? Izimpawu, Izimbangela, & Ukwelashwa

I-FSGS imele i-Focal Segmental Glomerulosclerosis, isifo sezinso esithinta amafutha amancane ezinsoni zakho okuthiwa yi-glomeruli. Uma une-FSGS, inyama ebuhlungu yenza ezingxenyeni ezithile zalezi zifutha, okwenza kube nzima ezinsoni zakho ukuhlanza udoti kanye noketshezi elengeziwe egazini lakho.

Lesi simo singazizwa siqina uma uqala ukuzwa ngakho, kodwa ukuqonda ukuthi kwenzekani emzimbeni wakho kungakusiza uzizwe ulawula kakhulu. I-FSGS ithonya abantu bazo zonke izigaba, nakuba ivame kakhulu ezinhlwini ezithile, futhi ngokunakekelwa okuhle, abantu abaningi baphila impilo egcwele, esebenzayo ngenkathi baphatha lesi simo.

Iyini i-FSGS?

I-FSGS uhlobo lwesifo sezinso lapho inyama ebuhlungu ikhula khona ezindaweni ezithile zamayunithi okuhlunga kwezinso zakho. Cabanga ngezinso zakho njengokuba nezigidi zama-strainers amancane okuthiwa yi-glomeruli ahlukanisa udoti ezintweni ezinhle umzimba wakho odinga ukuzigcina.

Igama lichaza ngqo ukuthi kwenzekani: "focal" kusho ukuthi ezinye kuphela ze-glomeruli zakho zithinteka, "segmental" kusho ukuthi kuphela izingxenye zefutha ngalinye elithintekile linephutha, futhi i-glomerulosclerosis ibhekisela enkambeni yokwenzakala. Lokhu kulimala kwenza la mafutha angasebenzi kahle ekwenzeni umsebenzi wawo.

Ngokungafani nezinye izifo zezinso ezithinta wonke amafutha ngokulinganayo, i-FSGS ihlukanile. Ezinye zezifutha zakho zezinso zisebenza kahle kakhulu ngenkathi ezinye zithuthukisa lezi zindawo ezinzima. Lesi sibonelo sisiza ngempela odokotela lapho benza ukuxilongwa.

Ziyini izimpawu ze-FSGS?

Isilwane sokuqala esivamile se-FSGS yiprotheni emathini akho, ongayibona njengomchamo onamafutha noma onamabhabhu. Lokhu kwenzeka ngoba amafutha akho ezinsoni ezilimele aqala ukushiya iprotheni iphume lapho kufanele ihlale khona egazini lakho.

Nawa ama-symptom ongawahlangabezana nawo njengoba i-FSGS ithuthuka:

• Urin yobumba noma efinyelelayo engapheli
• Ukukhula kwamagxolo ezinyaweni, ezinkulwini, emilenzeni, noma ezungezile emehlweni
• Ukuzuza isisindo ngenxa yokugcinwa kwamanzi
• Ukuzizwa ukhathele kakhulu kunokujwayelekile
• Ukulahlekelwa ukudla
• Ukuphuma kwegazi elikhulu
• Igazi emathini (akujwayelekile)

Abanye abantu abane-FSGS ephansi ababonisi noma yiziphi izimpawu ekuqaleni, kungakho lesi simo ngezinye izikhathi sitholakala ngesikhathi sokuhlolwa kwegazi noma kwelitshe okujwayelekile. Ukukhula kwamagxolo kuqala kancane kancane futhi kungabonakala kakhulu ekuseni noma ngemuva kokuba uhlale noma ume isikhathi eside.

Ezinyathelweni eziphambili, ungase uhlangabezane nokuntuleka komoya, isicanucanu, noma ukushintsha kokuthi ukhishwa kangaki. Lezi zimpawu zikhula lapho umsebenzi wakho wokukhipha igazi uba mubi kakhulu.

Imiphi imiklamo ye-FSGS?

I-FSGS iza ngezinhlobo ezimbili eziyinhloko: eyinhloko kanye neyesibili. I-FSGS eyinhloko kwenzeka lapho isifo sikhula ngokwalo ngaphandle kwesinye isimo esingaphansi esibangela.

I-FSGS eyinhloko ihlukaniswe ngokwengeziwe ezingxenyeni zezofuzo nezingenawo ubuhle. Uhlobo lwezofuzo luqhubeka emindenini futhi lubangelwa ukushintsha kwezinhlobo zezofuzo ezithinta indlela i-kidney yakho yokucwecwa esebenza ngayo. Uhlobo olungenayo i-genetic lukhula ngezizathu ezingaqondakali ngokuphelele.

I-FSGS yesibili ivela lapho esinye isimo noma isizathu silimaza ama-kidney akho futhi liholele esimweni sokulimala. Lolu hlobo lungabangelwa ukutheleleka njenge-HIV, imithi ethile, ukukhuluphala, noma ezinye izifo ze-kidney.

Kukhona nezindlela ezahlukene zokulimaza abagcini bangazibona ngaphansi komkhiqizo, kufaka phakathi ukuwohloka, i-tip, i-perihilar, i-cellular, kanye nezinye izinhlobo ezingachazwanga. Udokotela wakho angase akhulume ngala magama, kodwa okubaluleke kakhulu ukuthi icala lakho elithile liphendula kanjani ekwelapheni.

Yini ebangela i-FSGS?

Imbangela eqondile ye-FSGS eyinhloko ivame ukungaziwa, okungaba yinto ecasulayo kodwa akusho ukuthi wenze into engalungile. Ezimweni eziningi, kubonakala kuhlobene nezinkinga zesimiso sakho sokuvikela umzimba noma izici ze-genetic.

Uma i-FSGS idlulela emindenini, ivame ukubangelwa ukuguqulwa kwe-genes okusiza ekuvikeleni ubukhulu be-filters zakho zezinso. Lezi zinguquko ze-genetic zingadluliselwa kubazali, nakuba ngezinye izikhathi zenzeka njengokuguqulwa okusha.

I-FSGS yesibili inezimbangela ezibonakalayo ezifaka phakathi:

• Ukutheleleka yi-viral, ikakhulukazi i-HIV
• Imithi ethile efana ne-heroin, i-lithium, noma izilinganiso eziphezulu ze-pain relievers
• Ukukhuluphala okukhulu okubekela uxinzelelo olukhulu ezinsweni zakho
• I-Reflux nephropathy evela ekuthelelekeni okuphindaphindayo kwezinso
• I-Sickle cell disease
• Ezinye izifo zezinso noma ukungapheleli kwesakhiwo

Ngezinye izikhathi i-FSGS ithuthuka ngemuva kokuba izinso zakho zicindezelwe yisimo esinye isikhathi eside. Izindaba ezinhle ukuthi uma i-FSGS yesibili ibambekele kusenesikhathi futhi imbangela ephambili iphelelwe, ukonakala kwezinso kungase kubuyiselwe.

Ezimweni ezingavamile, i-FSGS ingase iqalwe yizimo ezithile ze-autoimmune noma ibe yiphutha lemithi esetshenziswa ekwelapheni umdlavuza. Udokotela wakho uzosebenza ukuthola noma yiziphi izimbangela ezingaba khona njengengxenye yohlelo lwakho lokwelapha.

Nini kufanele ubheke udokotela nge-FSGS?

Kufanele uxhumane nodokotela wakho uma uqaphela umchamo onamafutha ohlala ukhona ongahambi ngemuva kosuku noma amabili. Nakuba umchamo onamafutha ngezinye izikhathi ungaba yinto evamile, umchamo onamabhulukwana njalo ubonisa ukulahlekelwa yi-protein.

Ukukhuluphala okungapheli ngokuphumula kuyisibonakaliso esibalulekile okufanele uxoxe ngaso nomhlinzeki wakho wezinsizakalo zezempilo. Lokhu kuyiqiniso ikakhulukazi uma uqaphela ukuqina emehlweni ekuseni noma uma izicathulo zakho zizizwa zicindezela lapho zivame ukufaneleka kahle.

Funani ukunakekelwa kwezokwelapha ngokushesha uma uhlangabezana nalokhu okulandelayo:

• Ukukhuluka okukhulu ngokuzumayo ebusweni, ezandleni, noma ezinyaweni
• Ubunzima bokuqeda umoya noma ubuhlungu esifubeni
• Ukunciphisa kakhulu kokungqongqoza
• Igazi emathisini kanye nezinye izimpawu
• Ukukhathala okukhulu okuhlupha imisebenzi yansuku zonke

Uma unomlando womndeni wesifo sezinso, kubalulekile ukukhuluma nganoma yiziphi izinguquko zokungqongqoza nodokotela wakho ngisho noma zibonakala zincane. Ukutholakala kwangaphambi kwesikhathi kungenza umehluko omkhulu ekulawuleni i-FSGS ngokuphumelelayo.

Iyini imikhakha yokusongela i-FSGS?

I-FSGS ingathinta noma ubani, kodwa izici ezithile zingandisa amathuba akho okukhula kwalesi simo. Iminyaka idlala indima, i-FSGS ivame ukuxilongwa kubantwana nasebasha, nakuba ingase ibonakale kunoma iyiphi iminyaka.

Isiko lakho lezinhlanga lithinta ingozi yakho, abantu base-Afrika abamnyama banamathuba amaningi okukhula kwe-FSGS kunamaqembu ezizwe ezahlukene. Lolu bungozi olukhulu lubonakala luhlobene nezici zezinto eziphilayo ezinikeza ukuvikelwa okuthile ekutholakaleni kwezifo ezithile kodwa kungase kukhulise ukuqabuleka kwesifo sezinso.

Umlando womndeni ungenye ingozi enkulu, ikakhulukazi ngezinhlobo ze-FSGS ezifuywe ngezinto eziphilayo. Uma unezihlobo ezinesifo sezinso, ikakhulukazi uma saqala ebuntwaneni, ingozi yakho ingase ibe phezulu.

Ezinye izici zokungena engozini zifaka:

• Ukuba ne-HIV infection
• Ubukhulu obukhulu, ikakhulukazi uma bukhona isikhathi eside
• Umlando wokusebenzisa izidakamizwa, ikakhulukazi izidakamizwa ze-intravenous
• Izimo ezithile zezinto eziphilayo ezifana nesifo se-sickle cell
• Ukulimala kwangaphambili kwesinso noma isifo
• Ukusetshenziswa isikhathi eside kwezidakamizwa ezithile

Ukuba nezici zokungena engozini akusho ukuthi uzokhula ngokuqinisekile i-FSGS, nabantu abaningi abanazo izici eziningi zokungena engozini abakhuleli lesi simo. Ngakolunye uhlangothi, abanye abantu bakhula i-FSGS ngaphandle kokuba nezici zokungena engozini ezicacile.

Ziyini izinhlanganisela ezingase zenzeke ze-FSGS?

I-FSGS lingabangela izinkinga eziningi, kodwa ukwazi ngazo kusiza wena neqembu lakho lokunakekelwa kwezempilo ukubona izimpawu zokuqala nokuthatha izinyathelo zokuvikela. Ukukhathazeka okukhulu kunokulimaza okukhulu kwesibindi okungase ekugcineni kuholele ekwehlulekeni kwesibindi.

Ukuphindaphindeka kwegazi kuvame ukuvela ne-FSGS futhi kungadala isikhathi lapho ukucindezela okuphezulu kubangela ukulimala okukhulu kwesibindi. Yingakho ukulawulwa kokucindezela kwegazi kuba yingxenye ebalulekile yohlelo lwakho lokwelashwa.

Izinkinga ezivamile ongazihlangabezana nazo zihlanganisa:

• I-nephrotic syndrome enokuphulukana okukhulu kwamapuroteni nokukhuluphala
• Amazinga aphezulu e-kolesterol
• Ukungena okukhulu kwegazi
• Ukutholakala okukhulu kwezifo
• Isifo samathambo esivela ekuchithweni kwesibindi
• I-anemia njengoba umsebenzi wesibindi uyancipha

Ukulahleka kwamapuroteni ku-FSGS ngezinye izikhathi kungaba okukhulu kangangokuthi kubangele i-nephrotic syndrome, lapho ulahlekelwa yi-protein eningi kangangokuthi umzimba wakho awukwazi ukugcina ibhalansi efanele yamanzi. Lokhu kuholela ekukhuleni okukhulu nezinye izinkinga zokuguqulwa kwemvelo.

Ezimweni ezingavamile, abantu abane-FSGS bangathuthukisa ukwehluleka kwesibindi okukhulu, ikakhulukazi uma isimo siqhubeka ngokushesha noma uma kunenkinga eyengeziwe ezibindini. Noma kunjalo, ngokubeka iliso okufanele nokwelashwa, izinkinga eziningi zingaqalekelwa noma ziphathwe kahle.

Abanye abantu abane-FSGS ekugcineni badinga i-dialysis noma ukuhlinzwa kwesibindi, kodwa leli iphutha aliyona into engaqaleki. Abantu abaningi bagcina umsebenzi wesibindi ozinzile iminyaka ngokwelashwa okufanele.

Kungenzeka kanjani ukuvimbela i-FSGS?

Nakuba ungakwazi ukuvimbela izinhlobo ze-FSGS ezifuywe nge-genetic, kunezinyathelo ongazithatha ukuze uvikele impilo yesibindi sakho futhi mhlawumbe uvikele i-FSGS yesibili. Ukugcina isisindo esinempilo kunciphisa ukucindezela ezibindini zakho futhi kunciphisa ingozi yakho yokuthuthukisa isifo sesibindi esihlobene nobukhulu.

Uma unezimo ezingabangela i-FSGS yesibili, kubalulekile ukuziphatha kahle. Lokhu kuhlanganisa ukulawula i-HIV ngokwelashwa kwe-antiretroviral, ukugwema izidakamizwa zokuzilibazisa, nokusebenzisa imithi evela kudokotela kuphela njengoba elulekile yisikhungo sakho sezempilo.

Izindlela zokulondoloza impilo yezinso ngokujwayelekile zihlanganisa:

• Ukulawula ukucindezeleka kwegazi noshukela uma unayo
• Ukugcina umzimba uthambile kodwa ungagcini
• Ukulinganisela ukudla okucutshungulwayo okune-sodium eningi
• Ukungabhemi noma ukuyeka uma ubhema njengamanje
• Ukuvakashela kudokotela njalo okuhlanganisa nezivivinyo zomsebenzi wezinso
• Ukuba oqaphile ngemithi yokunciphisa ubuhlungu ethenywa ngaphandle kwelayisensi

Uma unemlando womndeni wesifo sezinso, ukwelulekwa ngokwemfundo yezakhiwo ze-genetic kungasiza ekuqondeni ingozi yakho nokuqondisa izinketho zokuhlola. Ezinye izinhlobo ze-FSGS ezivela ezakhiweni ze-genetic zingatholakala ngokuhlolwa ngaphambi kokuba izimpawu zivele.

Ukukhathalelwa kwempilo njalo yindlela yakho engcono kakhulu yokuzivimbela, ikakhulukazi uma unezingozi. Ukutholakala kwesikhathi esifanele nokuphathwa kunganciphisa kakhulu ukuqhubeka kwesifo sezinso uma sekuvele.

I-FSGS ihlonishwa kanjani?

Ukuhlola i-FSGS ngokuvamile kuqala ngezivivinyo ezijwayelekile ezibonisa amaprotheni emchameni wakho noma ukushintsha emsebenzini wezinso zakho. Udokotela wakho cishe uzokukhipha izivivinyo zegazi nezemchamo ukuze alinganise ukuthi izinso zakho zisebenza kangcono kangakanani nokuthi ulahlekelwa yiprotheni elingakanani.

I-biopsy yesinso ngokuvamile idingeka ukuqinisekisa ukuxilongwa kwe-FSGS. Phakathi nalesi senzo, isampula encane yethishu yesinso isuswa futhi ihlolwe ngaphansi komkhiqizo ukuze ibukeze iphethini yemikhawulo.

Inqubo yokuxilonga ngokuvamile ihlanganisa:

1. Izivivinyo zemchamo zokuhlola amaprotheni negazi
2. Izivivinyo zegazi zokulinganisa umsebenzi wezinso nama-protein levels
3. Ukuqapha ukucindezeleka kwegazi
4. I-ultrasound yesinso ukuze ubuke usakhiwo lwesinso
5. I-biopsy yesinso yokuxilongwa okuqinisekisiwe
6. Ukuhlolwa kwe-genetic uma kukhona ukungabaza nge-FSGS yomndeni

Udokotela wakho angase futhi ahlole izimo ezingabangela i-FSGS yesibili, njenge-HIV, izifo ze-autoimmune, noma ezinye izifo. Lokhu kusiza ekuqondeni ukuthi i-FSGS yakho iyeyona yokuqala noma yesibili esimweni esinye.

Imiphumela ye-biopsy izobonisa hhayi kuphela ukuba khona kwe-FSGS kodwa futhi izosisiza ukuqonda uhlobo oluthile nokuthi yiliphi ibanga le-damage eliye laqeda. Ulwazi lolu luqondisa uhlelo lwakho lokwelashwa futhi lusiza ekubikezeleni ukuthi isimo singathuthuka kanjani.

Iyini impilo ye-FSGS?

Ukwelashwa kwe-FSGS kugxile ekunciphiseni ukonakala kwesibindi, ukuphatha izimpawu, nokuphatha noma yiziphi izimbangela eziyisisekelo. Indlela ethile ixhomeke ekutheni une-FSGS yokuqala noma yesibili nokuthi isimo sakho sibuhlungu kangakanani.

Nge-FSGS yesibili, ukwelapha imbangela eyiyisisekelo kuyinto ebalulekile. Lokhu kungasho ukulawula i-HIV ngemithi, ukulahlekelwa isisindo uma ukukhuluka kuyimbangela, noma ukuyeka imithi elimaza izinkalankala zakho.

Izinhlangano ezivamile zokwelapha i-FSGS zifaka:

• Abaphikisi be-ACE noma i-ARB ukuvikela izinkalankala nokulawula igazi
• I-Corticosteroids ukunciphisa ukuvuvukala kwezinye izimo
• Imithi yokucindezela imishini yezimboni ezinhlotsheni ezithile
• I-Diuretics ukusiza ngokuvuvukala
• Imithi yokunciphisa i-cholesterol
• Ukunciphisa ukudla kwe-protein kwezinye izimo

Ama-steroids afana ne-prednisone ngokuvamile kuyilona lokokuqala ukwelashwa okuzama ukwenziwa nge-FSGS yokuqala, ikakhulukazi kubantwana nabantu abadala abasebasha. Le mithi ingasiza ekunciphiseni umsebenzi we-immune system ongase ube nomthelela ekonakaleni kwesibindi.

Uma ama-steroids engaqondi noma ebangela imiphumela emibi kakhulu, udokotela wakho angase akukhuthaze ezinye izidakamizwa zokucindezela imishini yezimboni njenge-cyclosporine, i-tacrolimus, noma i-mycophenolate. Le mithi idinga ukulandelelwa ngokucophelela kodwa ingaba yiphumelela kakhulu kwabanye abantu.

Ukuphathwa kwezinga lokucindezeleka kwegazi kubalulekile kungakhathaliseki ukuthi yiziphi ezinye izindlela zokwelapha ozisebenzisayo. Ngisho noma ingcindezeleko yakho yegazi ibonakala iyinhle, imithi evikelayo izingqinamba zakho ingasiza ekuthambiseni ukuqhubeka kwe-FSGS.

Ungayiphatha kanjani i-FSGS ekhaya?

Ukuphatha i-FSGS ekhaya kuhilela ukwenza izinguquko zendlela yokuphila ezisekela impilo yezingqinamba zakho kanye nempilo yakho yonke. Ukulandela ukudla okuhle kwezingqinamba kungasiza ekuthambiseni umsebenzi wezingqinamba zakho nokuphatha izimpawu ezinjengokuvuvuka.

Udokotela wakho noma umtapo wezondlo angase akukhuthaze ukunciphisa ukudla kwamapuroteni ukuze unciphise umthwalo wezingqinamba zakho, nakuba lokhu kuyahluka kuye ngesimo sakho esithile. Ukuncipha kwe-sodium kusiza ekulawuleni ingcindezeleko yegazi nokukhuphuka.

Izindlela zokuphatha ekhaya nsuku zonke zihlanganisa:

• Ukuthatha imithi ngokuqondile njengoba kulotshiwe
• Ukuqapha isisindo sakho nsuku zonke ukuze uqaphele ukugcinwa kwamanzi
• Ukunciphisa i-sodium ngaphansi kwama-2,300mg ngosuku
• Ukusebenza ngokuzivocavoca okulula njengoba ubekezelela
• Ukuthola ukuphumula okwanele nokuphatha ukucindezeleka
• Ukugwema i-NSAIDs engamakhawunti ngaphandle kwemvume yodokotela

Gcina irekhodi lamihla ngemihla yesisindo sakho, ingcindezeleko yegazi (uma une-monitor ekhaya), nanoma yiziphi izimpawu ezinjengokuvuvuka noma izinguquko ekushiseni. Lolu lwazi lusisiza iqembu lakho lokunakekelwa kwezempilo ukulungisa ukwelashwa kwakho njengoba kudingeka.

Hlala usesikhathini ngokugoma, njengoba ezinye izindlela zokwelapha i-FSGS zingathinta isimo sakho sokuvikela umzimba. Gwema abantu abagulayo ngokucacile uma kungenzeka, futhi yenza ukuhlanza izandla okuhle.

Ungangabazi ukuthintana nodokotela wakho uma uqaphela ukwanda kwesisindo ngokuzumayo, ukukhula kokuvuvuka, noma noma yiziphi izimpawu ezintsha. Ukungenelela okusheshayo kuvame ukuvimbela ukukhula kwezinkinga.

Kufanele ulungiselele kanjani i-aphoyintimenti yakho nodokotela?

Ukulungiselela i-aphoyintimenti yakho kusiza uqinisekise ukuthi uthola okuningi ngesikhathi sakho nomhlinzeki wakho wezempilo. Letha uhlu lwazo zonke imithi oyithathayo, kufaka phakathi imithi engamakhawunti, izongezelelo, kanye nemithi yemifino.

Bhala imibuzo yakho kusengaphambili ukuze ungakhohlwa ukubuza ngezinto ezikukhathazayo. Kuwusizo ukuqondisa imibuzo yakho uma isikhathi siphela ngesikhathi sokuqokwa.

Ulwazi okufanele ulethe ekubeni kwakho:

• Uhlu oluphelele lwemithi yamanje kanye nezinani
• Umbhalo wezindinganiso zansuku zonke uma ubuzilandelela
• Ukufunda kokucindezela kwegazi uma uqapha ekhaya
• Uhlu lwezimpawu nokuthi zenzeka nini
• Umbukiso womndeni wesifo sezinso
• Imiphumela yokuhlolwa yangaphambili evela kwabanye odokotela

Cabanga ukuletha umngane othembekile noma ilungu lomndeni ukuze akusize ukukhumbula ulwazi olubalulekile oluxoxwe ngesikhathi sokuvakasha. Bangaphinda banikeze ukwesekwa ngokomzwelo futhi basize ekuvikeleni izidingo zakho.

Lungela ukuxoxa ngendlela yakho yansuku zonke, kufaka phakathi ukudla, ukuzivocavoca, nanoma yiziphi izinselele obhekene nazo ngohlelo lwakho lokwelashwa lwamanje. Udokotela wakho udinga lolu lwazi ukuze anikeze ukunakekelwa okuhle kakhulu.

Iyini into ebalulekile mayelana ne-FSGS?

I-FSGS iyisimo sezinso esilawuleka esithinta wonke umuntu ngokuhlukile, futhi ukuba naleli gciwane akusho ukuthi impilo yakho kufanele ishintshe kakhulu. Ngokwelashwa okufanele kanye nokuguqulwa kwesitayela sokuphila, abantu abaningi abane-FSGS bagcina umsebenzi omuhle wezinso iminyaka eminingi.

Into ebaluleke kunazo zonke ongayenza ukusebenzisana eduze neqembu lakho lokukhathalela impilo futhi uzibophezele ohlelweni lwakho lokwelashwa. Ukuqapha okuvamile kuvumela ukulungiswa okungayeka ukuqhubeka kwesifo nokuvimba izinkinga.

Khumbula ukuthi ucwaningo lwe-FSGS luqhubeka, futhi kukhishwa izindlela zokwelapha ezintsha. Okungenzeka kungatholakali namuhla kungaba yisinqumo esikhathini esizayo, ngakho ukugcina impilo yakho yezinso manje kugcina eminye imiphakathi ivulekile kamuva.

Nakuba i-FSGS idinga ukunakekelwa okuqhubekayo, ayikufanele ikucacisele noma ikunciphise imigomo yakho. Abantu abaningi abaneli simo baqhubeka nokusebenza, uhambo, ukuzivocavoca, futhi bajabulela impilo egcwele, enenjongo ngenkathi baphatha impilo yabo yezinso.

Imibuzo evame ukubuzwa mayelana ne-FSGS

Ingakwelashwa ngokuphelele yini i-FSGS?

Okwamanje, ayikho indlela yokwelapha i-FSGS, kodwa le simo singaphathwa kahle ukuze kunciphise ukuqhubeka kwalo. Abanye abantu, ikakhulu labo abane-FSGS yesibili, bangase babone ukuthuthuka uma imbangela ephambili iphelelwe. Umgomo wokwelapha ukulondoloza umsebenzi wezinkalankala nokuvimbela izinkinga kunokususwa lesi sifo ngokuphelele.

Ngingayidinga yini i-dialysis uma ngine-FSGS?

Akuwona wonke umuntu one-FSGS ozodinga i-dialysis. Abantu abaningi bagcina umsebenzi wezinkalankala uzinzile iminyaka ngokwelashwa okuhle. Isidingo se-dialysis kuncike ekutheni umsebenzi wezinkalankala wakho uyancipha kangakanani nokuthi uphendula kangcono kanjani ekwelapheni. Ukulandelela njalo kusiza iqembu lakho lokunakekelwa kwezempilo ukuba lisebenele ngokushesha ukuze kunciphise ukuqhubeka.

Ngingaba nabantwana yini uma ngine-FSGS?

Abesifazane abaningi abane-FSGS bangaba nokukhulelwa okuphumelelayo, kodwa kudinga ukuhlelwa ngokucophelela nokubhekwa yi-dokotela wakho wezinkalankala nodokotela wezintokazi onolwazi ekukhulelweni okuyingozi. Amanye amayeza asetshenziswa ekwelapheni i-FSGS angase adingeke ashintshwe ngaphambi nangesikhathi sokukhulelwa. Okubalulekile ukuxoxa ngezinhloso zakho zokuhlela umndeni neqembu lakho lokunakekelwa kwezempilo kusenesikhathi.

Ingabe i-FSGS ihlale ivela ngenxa yezakhiwo?

Cha, i-FSGS ayihlali ivela ngenxa yezakhiwo. Nakuba ezinye izinhlobo zivela emindenini ngenxa yezakhiwo ezihlukahlukene, amacala amaningi e-FSGS awufihli. I-FSGS yesibili ibangelwa ezinye izimo noma izinto, futhi ngisho ne-FSGS ephambili ingase ivela ngaphandle komlando womndeni. Ukuhlolwa kwezakhiwo kungasiza ekuqondeni ukuthi i-FSGS yakho inengxenye yefa.

Kufanele ngibone kangaki udokotela wami uma ngine-FSGS?

Ukuqhakaza kokuvakashela kuya ngokuthi isimo sakho siqine kangakanani nokuthi yiziphi izindlela zokwelapha ozithola. Ekuqaleni, ungase udinga ukuqokwa njalo ngezinyanga ezimbalwa ukuze kulandelelwe indlela oqhubeka ngayo ngokwelashwa. Uma isimo sakho siqine, ukuvakashela njalo ngezinyanga ezingu-3-6 kuyinto evamile, kodwa udokotela wakho uzokunquma isimiso esifanele ngokususelwa ezidingweni zakho zomuntu siqu nemiphumela yokuhlola.