Ukuthi yini i-Primary Lateral Sclerosis? Izimpawu, Izimbangela, & Ukwelashwa

I-Primary lateral sclerosis (PLS) iyisimo esingavamile sezifo zezinzwa esithinta amangqamuzana ezinzwa abhekene nokuhambisa imisipha. Ngokungafani nezinye izifo ze-motor neuron, i-PLS ihlose ngokukhethekile ama-upper motor neurons ebuchosheni bakho nasemgogweni wakho, okubangela ukuba imisipha iqine futhi ibe buthakathaka ngokuhamba kwesikhathi.

Lesi simo siqhubeka kancane, sivame ukuthatha iminyaka ukuze siphelele ngokuphelele. Nakuba i-PLS ingaba inselele ukuhlala nayo, ukuqonda ukuthi kwenzekani emzimbeni wakho kungakusiza ukusebenzisana neqembu lakho lokunakekelwa kwezempilo ukulawula izimpawu nokulondoloza ikhwalithi yokuphila kwakho.

Ukuthi yini i-Primary Lateral Sclerosis?

I-Primary lateral sclerosis iyisifo se-motor neuron esithinta ngokukhethekile ama-upper motor neurons akho. La yizingqamuzana zezinzwa ebuchosheni bakho ezithumela izibonakaliso phansi emgogweni wakho ukulawula ukuhamba kwemisipha okuzenzakalelayo njengokuhamba, ukukhuluma, nokugwinya.

Uma la mangqamuzana elimazeka, awakwazi ukuxhumana kahle nemisipha yakho. Lokhu kuholela ekubeni imisipha iqine, ibe buthakathaka, futhi kube nzima ukwenza imisebenzi ehlanganisiwe. Igama elithi "primary" lisho ukuthi yilona isimo esiyinhloko, alubangelwa yisifo esinye.

I-PLS ibhekwa njengesimo esingavamile, esithinta abantu abangaphansi kuka-2 ngabantu abayi-100,000. Ngokuvamile iqala kubantu abadala abaneminyaka engama-40 kuya kwengu-60, nakuba ingase ibonakale kunoma iyiphi iminyaka. Isimo siqhubeka kancane uma kuqhathaniswa nezinye izifo ze-motor neuron, okuvame ukunika abantu isikhathi esiningi sokuziqondisa nokuhlela.

Ziyini Izimpawu ze-Primary Lateral Sclerosis?

Izimpawu ze-PLS zivela kancane kancane futhi zingase zihluke kumuntu nomuntu. Abantu abaningi baqala ukubona ukuba buthakathaka kwemisipha noma ukuba buthakathaka ezinyaweni zabo, nakuba izimpawu zingase ziqale kwezinye izingxenye zomzimba.

Nazi izimpawu ezivame kakhulu ongazihlangabezana nazo:

• Ukuba buthakathaka kwemisipha nokuqina, ikakhulukazi ezinyaweni
• Ubuthakathaka obuqala ezinyaweni futhi bungase buqhubekele phezulu
• Ukuba nzima ukuhamba noma ukulondoloza ibhalansi
• Ukuhamba okucothayo, okudinga umzamo omkhulu
• Ukuba buhlungu kwemisipha noma ukubamba
• Ukushintsha ekukhulumeni, kufaka phakathi ukukhuluma okuqengqelekayo noma okucothayo
• Ukuba nzima ukugwinya (dysphagia)
• Ukukhula kwe-reflexes uma kuhlolwa udokotela

Abanye abantu bangase babe nezimpawu ezingavamile. Lezi zingafaka ukushintsha kwemizwelo njengokuhleka noma ukukhala ngokuzumayo (okubizwa ngokuthi yi-pseudobulbar affect), ukukhathala, futhi ngezinye izikhathi ukushintsha okuncane kwengqondo. Ukuqhubeka kuvame ukuba kancane, izimpawu ziya mbi ngezinyanga noma iminyaka kunamaviki.

Kubalulekile ukukhumbula ukuthi i-PLS ithonya wonke umuntu ngendlela ehlukile. Abanye abantu bangase babe nezimpawu zezinyawo kuphela iminyaka eminingi, kanti abanye bangase babe nezinkinga zokukhuluma noma ukugwinya ekuqaleni kwesifo.

Ziyini Izimbangela ze-Primary Lateral Sclerosis?

Imbangela eqondile ye-primary lateral sclerosis ayaziwa kakhulu ezimweni eziningi. Abacwaningi bakholelwa ukuthi ivela ngokuhlangana kwezinto zofuzo nezimo ezingaphandle eziholela ekubeni ama-upper motor neurons alimale kancane kancane.

Ezimeni eziningi, i-PLS ibonakala ivela ngokungaqondakali, okusho ukuthi ivela ngaphandle komlando omkhulu womndeni. Noma kunjalo, ososayensi baye baqaphela ezinye izinto ezingase zibangele:

• Ukushintsha kwe-genetic ezinhlelweni ezithile ze-gene njenge-ALS2, nakuba lezi zingavamile
• Ukubuthana kwe-protein okungavamile ezingqamuzaneni zezinzwa
• Izinkinga zokukhiqizwa kwamandla aselula
• Ukuvuvukala ohlelweni lwezinzwa
• Ukuqina kokuxhaphaza okonakalisa amangqamuzana ngokuhamba kwesikhathi

Ezimeni ezimbalwa kakhulu, i-PLS ingadluliselwa ezizukulwaneni, ikakhulukazi uhlobo lwentsha oluthinta izingane nabantu abadala abasebancane. Lolu hlobo oluzuzwe ngofuzo luhlanganiswe kakhulu nokushintsha kwe-gene ye-ALS2 futhi luya kancane kunohlobo oluqala kubantu abadala.

Izimo ezingaphandle zingase futhi zidlale indima, nakuba azikho izimbangela ezithile eziye zaqiniswa. Ucwaningo luyaqhubeka ngokuxhumana okungenzeka nezifo, izinto eziyingozi, noma ezinye izinto ezingaphandle, kodwa kudingeka ucwaningo olwengeziwe ukuqonda le miqondo.

Nini Okufanele Ubone Udokotela Nge-Primary Lateral Sclerosis?

Kufanele ubheke udokotela uma uqaphela ukuba buthakathaka kwemisipha, ubuthakathaka, noma ukushintsha ekuhambeni kwakho okungapheli ngokuphumula. Ukubheka kusenesikhathi kubalulekile ngoba izimo eziningi zingabangela izimpawu ezifanayo, futhi ukuxilongwa okuqondile kuthatha isikhathi.

Hlela i-aphoyintimenti uma uhlangabezana nanoma yiziphi lezi zibonakaliso ezikhathazayo:

• Ubuthakathaka obuya bukhula ezinyaweni noma ezingalweni zakho
• Ukuba buthakathaka kwemisipha okuya kukhula okuphazamisa imisebenzi yansuku zonke
• Ukuba nzima ukuhamba noma ukuwa njalo
• Ukushintsha ekukhulumeni kwakho noma elizwini lakho
• Izinkinga zokugwinya ukudla noma izinto eziphuzwayo
• Ukubamba kwemisipha okuya kukhula noma okukhulu

Ungalindi uma uthola izinkinga zokugwinya, njengoba lokhu kungathinta ukudla kwakho nokulondeka kwakho. Ngokufanayo, izinkinga ezinkulu zobulinganiso zidinga ukunakekelwa kwezokwelapha ngokushesha ukuvimbela ukuwa nokulimala.

Udokotela wakho oyinhloko angenza ukuhlolwa kokuqala futhi akukhombe kuneurologist uma kudingeka. I-neurologists ikhethekile ezimweni ezithinta uhlelo lwezinzwa futhi ine-expertise yokuxilonga nokulawula i-PLS ngendlela efanele.

Ziyini Izinto Ezingase Zikwenze Ube Sekuyingozi Ye-Primary Lateral Sclerosis?

Izinto eziningi zingase zikwenze ube nethuba elikhulu lokuthola i-primary lateral sclerosis, nakuba ukuba nezinto ezingase zikwenze ube sekuyingozi akusho ukuthi uzoyithola ngokuqinisekile le simo. Ukuqonda lezi zinto kungakusiza uhlale uqaphile izimpawu ezingase zibe khona.

Izinto eziyinhloko ezingase zikwenze ube sekuyingozi zifaka:

• Iminyaka, ikakhulukazi ukuba phakathi kweminyaka engama-40 kuya kwengu-60
• Umlando womndeni wezifo ze-motor neuron (nakuba lokhu kungavamile)
• Ubulili besilisa, njengoba amadoda enesilinganiso esikhulu sokuthola i-PLS
• Ukushintsha kwe-genetic ethile, ikakhulukazi emindenini enezimo zofuzo

Ngokungafani nezinye izimo zezinzwa, izinto zokuphila njengokubhema, ukudla, noma ukuzivocavoca kubonakala zingathinti kakhulu ingozi ye-PLS. Noma kunjalo, ukulondoloza impilo enhle njalo kuwusizo futhi kungakusiza ukubhekana kangcono nezimpawu uma zivele.

Kufanele kuqaphele ukuthi i-PLS ingavamile kakhulu, ngakho-ke ngisho nokuba nezinto ezingase zikwenze ube sekuyingozi akusho ukuthi cishe uzothola le simo. Abantu abaningi abanezi zinto ezingase zikwenze ube sekuyingozi abayitholi i-PLS, futhi abantu abaningi abayitholayo abanawo ama-risk factors acacile nhlobo.

Ziyini Izingozi Ezingase Zivele Nge-Primary Lateral Sclerosis?

Nakuba i-PLS iqhubeka kancane, ingabangela izinkinga eziningi ngokuhamba kwesikhathi. Ukuqaphela lezi zinto kungakusiza wena neqembu lakho lokunakekelwa kwezempilo ukuhlela ukunakekelwa okufanele kanye nezinqubo.

Izingozi ezivame kakhulu zifaka:

• Izinkinga zokuhamba ezingase zigcine zidinga izinto zokusiza
• Ukungena engozini yokwehla ngenxa yezinkinga zobulinganiso nokuhamba
• Izinkinga zokugwinya ezingabangela ukuminxwa noma i-aspiration pneumonia
• Izinkinga zokukhuluma ezingase zidinga izinto zokusiza ekukhulumeni
• Ukuba buthakathaka kwemisipha okuvela ngenxa yokuba buthakathaka isikhathi eside
• Ukuhlukaniswa komphakathi ngenxa yezinkinga zokuhamba nokuxhumana

Abanye abantu bangase babe nezinkinga ezinzima kakhulu, ikakhulukazi ezimeni eziphambili. Lezi zingafaka izinkinga ezinkulu zokugwinya ezidinga izikhwephu zokudla, izinkinga zokuphefumula uma imisipha yokuphumula ithinteka, nokwanda kokuthola izifo ngenxa yokuncane kokunyakaza.

Izindaba ezinhle ukuthi izinkinga eziningi zingavimbeka noma ziphathwe ngokunakekelwa okuqondile. I-physical therapy ingasiza ekuqondeni ukuhamba, i-speech therapy ingaxazulula izinkinga zokukhuluma, futhi i-occupational therapy ingasiza ekuqondiseni indawo yakho ngezidingo zakho ezishintshayo.

I-Primary Lateral Sclerosis Ingavimbeka Kanjani?

Okwamanje, ayikho indlela eyaziwayo yokuvimbela i-primary lateral sclerosis njengoba imbangela eqondile ingacaci. Noma kunjalo, ukulondoloza impilo enhle yezinzwa kungaba usizo, ngisho noma kungakuqinisekisi ukuvimbela.

Imikhuba yempilo enhle yengqondo nezinzwa ihlanganisa ukuhlala usebenza ngokomzimba, ukudla ukudla okuqondile okugcwele ama-antioxidants, ukulala ngokwanele, nokulawula ukucindezeleka ngokuphumelelayo. Lezi zinto zisekela impilo enhle futhi zingasiza uhlelo lwakho lwezinzwa ukusebenza kahle.

Emindenini enomlando we-PLS ezuzwe ngofuzo, ukwelulekwa kwe-genetic kungakunika ulwazi oluwusizo mayelana nezingozi nezinto zokuhlela umndeni. Noma kunjalo, lokhu kuya ezimweni ezimbalwa kakhulu njengoba i-PLS eningi ivela ngokungaqondakali ngaphandle komlando womndeni.

Ucwaningo lwezindlela zokuvimbela luyaqhubeka, kodwa okwamanje lugxile kakhulu ekuqondeni izindlela zesifo kunasezinyathelweni ezithile zokuvimbela. Into ebaluleke kakhulu ongayenza iwukuba uqaphele izimpawu futhi ufuna ukunakekelwa kwezokwelapha ngokushesha uma izibonakaliso ezikhathazayo zivele.

I-Primary Lateral Sclerosis Ixilongwa Kanjani?

Ukuxilonga i-primary lateral sclerosis kudinga ukuhlolwa okucophelelayo yi-neurologist, njengoba ayikho i-test eyodwa engakuqinisekisa lesi simo. Ukuxilongwa kuvame ukwenziwa ngokukhipha ezinye izimo ezibangela izimpawu ezifanayo.

Udokotela wakho uzoqala ngomlando wezokwelapha ophelele kanye nokuhlolwa komzimba, egxile kakhulu ku-reflexes yakho, amandla emisipha, kanye nokuhlanganiswa. Uzobheka izibonakaliso zokungasebenzi kahle kwama-upper motor neuron, njengokwanda kwe-reflexes nokuqina kwemisipha.

Izilingo eziningi zingase zisetshenziswe ukusekela ukuxilongwa:

• I-Electromyography (EMG) ukuhlola ukusebenza kwezinzwa nemisipha
• I-MRI scans yengqondo yakho nomgogodla wakho
• Izivivinyo zegazi ukuqeda ezinye izimo
• I-genetic testing kwezinye izimo
• I-Lumbar puncture (spinal tap) ngezinye izikhathi

Inqubo yokuxilonga ingathatha isikhathi ngoba odokotela kufanele baqaphele ukuthi izimpawu zakho ziqhubeka kanjani. I-PLS ihlukaniswa ne-ALS ngokungabikho kwezimpawu ze-lower motor neuron kanye nokuqhubeka kwayo okucothayo. I-neurologist yakho ingase idinge ukukugcina uqapha izinyanga eziningi noma ngisho neminyaka ukuze enze ukuxilongwa okuqinisekile.

Ukuthola ukuxilongwa okuqondile kubalulekile ngoba kuthinta izinqumo zokwelapha futhi kukusiza ukuqonda ukuthi yini okufanele uyilindele. Unganqikazi ukubuza imibuzo mayelana nenqubo yokuxilonga futhi ufuna umbono wesibili uma ungaqiniseki ngemiphumela.

Ukuphathwa Kwe-Primary Lateral Sclerosis?

Nakuba okwamanje ayikho indlela yokwelapha i-primary lateral sclerosis, izindlela eziningi zokwelapha zingasiza ekulawuleni izimpawu nokwenza ikhwalithi yokuphila kwakho ibe ngcono. Umgomo ukulondoloza ukusebenza, ukuvimbela izinkinga, nokukusiza ukuba uziqondanise nezinguquko njengoba zivele.

Amakhemisi okuwelapha agxile ikakhulu ekulawuleni ukuba buthakathaka kwemisipha nokuqina:

• IBaclofen ukunciphisa ukuba buthakathaka kwemisipha nokubamba
• ITizanidine njengendlela ehlukile yokupumula kwemisipha
• I-Botulinum toxin injections yokuba buthakathaka kwemisipha
• IGabapentin ngokubamba kwemisipha nobuhlungu
• Ama-antidepressants uma ukushintsha kwemizwelo kwenzeka

I-physical therapy idlala indima ebalulekile ekulawuleni i-PLS. I-physical therapist ingakufundisa ukuzivocavoca ukuze ulondoloze ukuguquguquka, uqinise imisipha engathintekile, futhi uthuthukise ibhalansi. Bazokusiza futhi ufunde ukusebenzisa izinto zokusiza ngokuphepha njengoba izidingo zakho zishintsha.

I-speech therapy iba yibalulekile uma uthola izinkinga zokukhuluma noma ukugwinya. I-speech therapists ingakufundisa amasu okuthuthukisa ucacile lokukhuluma nokukusiza ufunde amasu aphephile okugwinya. Bangase futhi baqalise izindlela ezihlukile zokuxhumana uma kudingeka.

I-Occupational therapy ikusiza ukuba uqondanise imisebenzi yakho yansuku zonke nendawo yakho ukuze ulondoloze ukuzimela. Lokhu kungase kuhlanganise ukuncoma izinto zokusiza, ukushintsha ikhaya lakho, noma ukufundisa amasu okulondoloza amandla.

Indlela Yokwelapha Ekhaya Nge-Primary Lateral Sclerosis?

Ukulawula i-PLS ekhaya kuhilela ukudala indawo yokusekela nokulondoloza imikhuba esiza ekuqondeni ukusebenza kwakho nokuphila kwakho okuhle. Ukulungisa okuncane kwansuku zonke kungenza umehluko omkhulu ekududuzeni kwakho nasekuzimeneni kwakho.

Ngokuqina kwemisipha nokuqina, ukuzivocavoca okuthambile kokwelula kungaba usizo kakhulu. Ukubhamba amanzi afudumele noma ama-heating pads kungase futhi kunikeze impumuzo, ngenkathi ugwema ukubanda okukhulu okungenza kube mbi kakhulu ukuqina. Ukunyakaza okuthambile njalo usuku lonke kuvimbela imisipha ekuqineni kakhulu.

Ukushintsha kokuphepha ekhaya kuba yibalulekile njengoba isimo siqhubeka:

• Faka ama-handrails ezindaweni zokuhamba namagumbi okugezela
• Susa izinto ezingase zikwenze uwa njengezigqoko eziqengqelekayo
• Qinisekisa ukukhanya okuhle ekhaya lakho lonke
• Cabanga ngesistimu yokuxwayisa yezokwelapha
• Gcina izinto ezisetshenziswa njalo zifinyeleleka kalula

Ukugcina ukudla okuhle kusekela impilo enhle namandla. Uma ukugwinya kuba nzima, sebenzisana nodokotela wokudla ukushintsha izakhiwo zokudla ngenkathi uqinisekisa ukudla okuqondile. Hlala uthola amanzi amaningi, kodwa xoxa nganoma yiziphi izinkinga zokugwinya neqembu lakho lokunakekelwa kwezempilo.

Ungawuyekeli umuzwa wakho. Ukuhlala uxhumene nomndeni nabangane, ukulandela izinto ozithandayo ezilungisiwe, nokucabanga ngokwelulekwa noma amaqembu wokusekela kungakusiza ukubhekana nezinselele zokuphila ne-PLS.

Kufanele Uzilungiselele Kanjani I-Aphoyintimenti Yakho Nodokotela?

Ukulungiselela i-aphoyintimenti yakho nodokotela kungakusiza ukuba usebenzise kahle isikhathi sakho futhi uqiniseke ukuthi ulwazi oluqondile alukhohlwe. Ukulungiselela okuhle kuholela ezingxoxweni ezisebenzayo kakhulu mayelana nokunakekelwa kwakho.

Ngaphambi kwe-aphoyintimenti yakho, bhala zonke izimpawu zakho, kufaka phakathi ukuthi zaqala nini nokuthi zishintshe kanjani ngokuhamba kwesikhathi. Qaphela ukuthi yini eyenza zibe ngcono noma zibe zimbi, nokuthi zikuthinta kanjani imisebenzi yakho yansuku zonke. Yiba uchwepheshe ngokushintsha kokusebenza, njengokuba nzima ukukhuphuka izitebhisi noma ukushintsha ekubhaleni kwakho.

Letha uhlu oluphelele lwemithi yakho, kufaka phakathi imithi yokuthengwa ngaphandle kwelayisensi kanye nezinye izinto. Lungiselela futhi uhlu lwemibuzo ofuna ukuyibuza:

• Yiziphi izivivinyo engizidingayo, futhi zizobonisa ini?
• Isimo sami siqhubeka ngokushesha kangakanani?
• Yiziphi izindlela zokwelapha ezitholakalayo ngezimpawu zami?
• Nini okufanele ngicabange ngezinto zokusiza?
• Ingabe kukhona ukuhlolwa okuqhubekayo okufanele ngikwazi ngakho?
• Yiziphi izibonakaliso ezizoxwayisa okufanele zingenze ngikubize?

Cabanga ngokuletha ilungu lomndeni noma umngane ukukusiza ukukhumbula ulwazi oluqondile nokwenza ukubuka okwengeziwe ngezimpawu zakho. Bangase baphawule ukushintsha ongaziqapheli.

Ungakhohlwa ukuletha ulwazi lwakho lwe-insurance nanoma yimaphi amaphepha okukhomba uma ubona ochwepheshe. Ukuba nawo wonke amadokhumenti adingekayo kulungile kuqinisekisa ukuthi i-aphoyintimenti yakho ihamba kahle.

Yini Eyinhloko Okufanele Uyikhumbule Nge-Primary Lateral Sclerosis?

I-Primary lateral sclerosis iyisimo esingavamile kodwa esilawuleka esithinta ama-upper motor neurons akho, okubangela ukuba buthakathaka kwemisipha nokuqina okuqhubeka kancane ngokuhamba kwesikhathi. Nakuba ayikho indlela yokwelapha etholakalayo okwamanje, izindlela eziningi zokwelapha eziphumelelayo zingakusiza ukulondoloza ukusebenza nekhalithi yokuphila.

Into ebaluleke kakhulu okumele uyikhumbule ukuthi i-PLS ithonya wonke umuntu ngendlela ehlukile, futhi ukuqhubeka kwayo okucothayo kuvame ukunika isikhathi sokuziqondisa nokuhlela. Ukusebenzisana eduze neqembu lokunakekelwa kwezempilo elihlanganisa i-neurologists, abaphathi, kanye nochwepheshe abanye kukunika ithuba elihle kakhulu lokulawula izimpawu ngokuphumelelayo.

Ukuxilongwa kusenesikhathi kanye nokwelashwa okuqondile kungenza umehluko omkhulu ekuhlangenwe nakho kwakho ne-PLS. Unganqikazi ukufuna usizo ngezimpawu ezintsha, futhi khumbula ukuthi ukulondoloza impilo yakho enhle nokuhlala uxhumene nabanye kubalulekile kulo lonke uhambo lwakho nalesi simo.

Ucwaningo lwe-PLS luyaqhubeka, lunikeza ithemba lokuthola izindlela zokwelapha ezinhle ngokwengeziwe esikhathini esizayo. Okwamanje, gxila kulokho ongakulawula: ukuhlala usebenza ngangokunokwenzeka, ukulondoloza ukudla okuhle, nokukwakha inethiwekhi eqinile yokusekela ukukusiza ukubhekana nezinselele ezizayo.

Imibuzo Evamile Mayelana ne-Primary Lateral Sclerosis

Ingabe i-primary lateral sclerosis ifana ne-ALS?

Cha, i-primary lateral sclerosis ne-ALS izimo ezihlukile, nakuba zombili zizifo ze-motor neuron. I-PLS ithonya kuphela ama-upper motor neurons ebuchosheni bakho nasemgogweni wakho, kanti i-ALS ithonya kokubili ama-upper nama-lower motor neurons. I-PLS futhi iqhubeka kancane kakhulu kunesi-ALS futhi inethemba elihle ngokwengeziwe esikhathini esizayo. Abanye odokotela bacabanga ukuthi i-PLS uhlobo lwe-ALS, kodwa ukwahlukana kubalulekile ekuqondeni ukubikezelwa kwakho kanye nezindlela zokwelapha.

Umuntu angaphila isikhathi esingakanani ene-primary lateral sclerosis?

Abantu abaningi abane-PLS bane-life expectancy evamile noma eseduze nevamile, ikakhulukazi uma kuqhathaniswa nezinye izifo ze-motor neuron. Isimo siqhubeka kancane ngeminyaka eminingi, futhi nakuba singathinta kakhulu ikhwalithi yokuphila, asivame ukuba yingozi ebulawa ngokushesha. Noma kunjalo, izinkinga ezimeni eziphambili, njengokuba nzima kakhulu ukugwinya, zingase zibe yingozi edinga ukuphathwa ngokucophelela neqembu lakho lokunakekelwa kwezempilo.

Ingabe ngizogcina ngisehlaleni lokuhamba nge-PLS?

Akuwona wonke umuntu one-PLS ozodinga isihlalo sokuhamba, futhi isikhathi sihluke kakhulu kubantu. Abanye abantu balondoloza ikhono lokuhamba iminyaka eminingi ngezinto zokusiza njengezikhali noma ama-walkers. Abanye bangase bagcine bezuza ezihlalweni zokuhamba kude, ngenkathi besahamba izindawo ezimfushane ekhaya. Ukuqhubeka okucothayo kwe-PLS kuvame ukunika isikhathi sokuziqondanisa kancane nezinguquko zokuhamba nokucwaninga izinketho ezihlukile zokusiza.

Ingabe ukuzivocavoca kungasiza ngezimpawu ze-primary lateral sclerosis?

Yebo, ukuzivocavoca okuqondile kungaba usizo kakhulu kubantu abane-PLS. Ukuzivocavoca okuthambile kokwelula kusiza ekuqondeni ukuguquguquka nokunciphisa ukuqina, ngenkathi ukuqinisa imisipha engathintekile kungasiza ekuqondeni ubuthakathaka. Ukuzivocavoca emanzini kuvame ukuba usizo ngoba ukukhanya kunciphise ukucindezeleka ezinhlangothini ngenkathi kuvumela ukunyakaza. Ngaso sonke isikhathi sebenzisana ne-physical therapist ukwakha uhlelo lokuzivocavoca oluphephile oluqondene nezidingo zakho nekhono lakho.

Ingabe kukhona izindlela zokwelapha ezintsha ezicwaningwayo ze-PLS?

Ucwaningo lwezindlela zokwelapha i-PLS luyaqhubeka, nakuba intuthuko ihamba kancane kunokuba yizimo ezivamile ngenxa yokungavamile kwayo. Ucwaningo oluqhubekayo lugxile ekuqondeni izindlela zesifo, ukwakha izindlela zokwelapha ezinhle kakhulu, nokucwaninga izindlela zokwelapha ezingavimbela ukubola kwezinzwa. Ezinye izivivinyo zezifo ze-ALS zingase futhi zihlanganise abantu abane-PLS. Buza i-neurologist yakho mayelana namathuba ocwaningo oluqhubekayo nokuthi ingabe ungafanelekele noma yimaphi ama-clinical trials.