Ganaxolone (indlela yokumathisa ngomlomo)
Imikhiqizo etholakalayo
Ztalmy
Mayelana naleli khambi
I-Ganaxolone isetshenziswa ekwelapheni kwezifo zokubamba ezigulini ezine-cyclin-dependent kinase-like 5 (CDKL5) deficiency disorder (CDD). Lolu dokotela lutholakala kuphela ngomyalelo wodokotela wakho. Lo mkhiqizo utholakala ngezindlela zokulinganisa ezilandelayo:
Ngaphambi kokusebenzisa leli khambi
Ekucatshangeni kokusebenzisa imithi, izingozi zokuthatha imithi kufanele ziqhathaniswe nezinzuzo ezizoletha. Lo ngumqondo owenzayo wena nodokotela wakho. Kulo muthi, okulandelayo kufanele kucabangelwe: Tshela udokotela wakho uma uke waba nanoma yiluphi uhlobo oluqondile noma oluhambelanayo lokulimala kule mithi noma kunoma iyiphi enye imithi. Tshela futhi ochwepheshe bakho bezempilo uma unanoma yiluphi olunye uhlobo lokulimala, njengokudla, izibhebhe, izigcini, noma izilwane. Ngomkhiqizo ongenayo iresiphi, funda ilebula noma izithako zephakheji ngokucophelela. Izifundo ezifanele azikwenzelwanga ubudlelwano bobudala nemiphumela ye-ganaxolone kubantwana abaneminyaka engaphansi kweminyaka emi-2. Ukuphepha nokuphumelela akukaqiniswa. Izifundo ezifanele ebudlelwaneni bobudala nemiphumela ye-ganaxolone azikwenzelwanga kubantu abadala. I-CDD ngokuvamile iyisifo sabantwana nabantu abadala abasebancane. Ayikho izifundo ezifanele kwabesifazane zokunquma ingozi yengane uma usebenzisa le mithi ngesikhathi sokuncelisa. Linganisa izinzuzo ezingaba khona nezingozi ezingaba khona ngaphambi kokuthatha le mithi ngesikhathi sokuncelisa. Nakuba ezinye izidakamizwa kufanele zingasetshenziswa ndawonye, kwezinye izimo imithi emibili ehlukene ingasetshenziswa ndawonye ngisho noma kungenzeka ukuhlangana. Kulezi zimo, udokotela wakho angafuna ukushintsha umthamo, noma ezinye izinyathelo zokuphepha zingadingeka. Uma uthatha le mithi, kubalulekile kakhulu ukuthi ochwepheshe bakho bezempilo bazi uma uthatha noma iyiphi imithi ehlaliswe ngezansi. Ukuhlangana okulandelayo kukhethwe ngokusekelwe ekubalulekeni kwabo okungenzeka futhi akuyona yonke into. Ukusebenzisa le mithi nanoma iyiphi imithi elandelayo ngokuvamile ayinconywa, kodwa kungadingeka kwezinye izimo. Uma kokubili imithi ilotshiwe ndawonye, udokotela wakho angashintsha umthamo noma ukuthi uyayisebenzisa kangakanani enye noma zombili imithi. Ezinye izidakamizwa akufanele zisetshenziswe ngesikhathi noma eduze kwesikhathi sokudla ukudla noma ukudla izinhlobo ezithile zokudla njengoba kungenzeka ukuhlangana. Ukusebenzisa utshwala noma utshaba ngezinye izidakamizwa kungabangela ukuhlangana. Xoxa nochwepheshe bakho bezempilo ngokusetshenziswa kwemithi yakho ngokudla, utshwala, noma utshaba. Ukuba khona kwezinye izinkinga zezokwelapha kungathinta ukusetshenziswa kwale mithi. Qiniseka ukuthi utshela udokotela wakho uma unanoma yiziphi ezinye izinkinga zezokwelapha, ikakhulukazi:
Indlela yokusebenzisa leli khambi
Thatha leli leyeza kuphela njengoba kunqunyiwe udokotela wakho. Ungalithathi ngaphezulu, ungalithathi njalo, futhi ungalithathi isikhathi eside kunalokho udokotela wakho akuyalile. Leli leyeza liza ne-Medication Guide nemiyalo yokuqondisa. Funda futhi ulandele imiyalo ngokucophelela. Buza udokotela wakho uma unemibuzo. Ungalithatha leli leyeza nokudla. Ukuze usebenzise ukuxuba: Inani leli leyeza lizohluka kubantu abahlukene. Landela imiyalo yodokotela wakho noma imiyalo esembolekweni. Ulwazi olulandelayo luhlanganisa kuphela amanani ajwayelekile aleli leyeza. Uma inani lakho lihlukile, ungalishintshi ngaphandle kokuthi udokotela wakho akuqondise ukuba wenze njalo. Inani leyeza olithathayo lixhomekeke emandleni leyeza. Futhi, inani lezinani olithathayo nsuku zonke, isikhathi esivunyelwe phakathi kwezinani, nobude besikhathi olithatha leli leyeza kuya ngenkinga yezokwelapha oyisebenzisela leli leyeza. Uma uphuthelwa yisilinganiso saleli leyeza, silithathe ngokushesha okukhulu. Noma kunjalo, uma sekusondele isikhathi sesilinganiso sakho esilandelayo, susa isilinganiso esiphuthelwe bese ubuyela esimweni sakho sokuthatha isilinganiso. Ungawandisi ama-doses. Gcina leli leyeza esitsheni esivaliwe ekushiseni kwegumbi, kude nokushisa, ukufuma, nokukhanya okuqondile. Gcina ungawagqabi. Gcina ungafinyeleleki ezinganeni. Ungagcini leyeza eliphelile noma leyeza elingasadingeki. Buza ochwepheshe bakho bezempilo ukuthi kufanele ulahle njani noma yiliphi leyeza ongeke ulithathe. Sebenzisa leli leyeza phakathi nezinsuku ezingu-30 zokuqala ukuvula ibhodle. Lahla noma yiliphi leyeza elingasetshenzisiwe ngemva kwezinsuku ezingu-30.
Umshwana wokuzihlangula: I-August iyinkundla yolwazi lwezempilo futhi izimpendulo zayo azihlanganisi iseluleko sezokwelapha. Njalo thintana nochwepheshe bezokwelapha onelayisensi eduze nawe ngaphambi kokwenza noma yiluphi ushintsho.